Seven years ago, Tracey had no idea that her son Jack would be the healthy young man he is today.
A few months before his third birthday, she noticed that he was falling over more than his brothers ever had and she was sure that it wasn’t clumsiness. After a particularly bad tumble, Tracey took Jack to their local hospital. They treated his bumps and bruises, but couldn’t pinpoint what was wrong. A trip to the GP confirmed that Jack’s condition was troubling, but no diagnosis was made. Increasingly concerned, Tracey brought her son to the RCH Emergency
“It was like a breath of fresh air. Even though they couldn’t yet see what was going on with Jack, the doctors and nurses took everything I said on board.”
So began Jack’s seven-year RCH journey. Testing to determine Jack’s diagnosis — severe Rolandic epilepsy — took time because of the type of seizures he was experiencing. Focussed around the central part of the brain, Jack’s seizures also came in clusters. Therefore, Jack could go weeks without one, only to have a group or cluster of seizures occur within a short
time. Predicting when the clusters would occur was impossible, so detecting this abnormal electrical activity in Jack’s brain was no small feat.