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HARC HARC  
MONTHLY E‑BULLETIN
Issue 36, May 2015
The Hospital Alliance for Research Collaboration
 
In the news
Research
Avoiding adverse outcomes
Patients in focus
Too much or too little medicine
Reports
Profile
Events
TOP STORY

Giving patients a voice

Mr Dan Wellings, head of insight and feedback at NHS England

Dan Wellings, head of insight and feedback at NHS England, led our recent HARC Forum discussion on the potential of patient experience to improve our health services. Read the wrap of the meeting in our story below and watch our short Five Questions with Dan Wellings video.

read more
 
     
IN THIS ISSUE  
 

Patients in the spotlight

This month’s Bulletin focuses on the patient experience of healthcare. We lead with our wrap of the recent forum featuring NHS expert Dan Wellings, and look at research that shows how feedback from patients about the safety of care they receive in hospital can be used to drive safety improvements.

In our profile article, we meet Professor Afaf Girgis, an internationally renowned behavioural scientist who has dedicated much of her career to addressing the psychosocial needs of cancer patients.

Please forward this edition of the Bulletin to colleagues who might be interested in joining the HARC network and, as always, get in touch with your feedback, or suggestions at: communications@saxinstitute.org.au.

If your email address has changed, make sure you send us your new address so that we can update your subscription.

Megan Howe
Editor, HARC e-Bulletin

 
 
IN THE NEWS  
 
Giving patients a voice

The relatively simple step of asking patients whether they feel better after a health intervention is among a growing range of measures being used to drive change in the health system, a recent HARC forum heard.

The forum keynote speaker, Mr Dan Wellings, head of insight and feedback at NHS England, outlined several ways in which the organisation was collecting data on both patient experiences and patient reported outcome measures ‒ known as PROMs.

“Increasingly we’re moving to make sure health is not done to people, but people become involved in their health,” he said.

Asking friends and family

Mr Wellings outlined use of the Friends and Family Test (FFT), which aimed to measure patients’ experience in the health system by asking them at the time of their treatment, whether they were likely to recommend the health service or treatment to friends and family, and why.

So far, 6.5 million patients had completed the FFT and a review showed that 78% of Trusts (or hospital groups) reported the test had increased the emphasis they placed on patient experience, he told he forum.

“The vast majority of feedback we get is positive. It shows what is going well,” he said. “The key thing is that it is real time – not six months after the event”.

He said the test was mainly used as a service improvement tool, providing feedback to frontline staff and boosting morale. But it could also act as an early warning system, helping to identify problems – big or small – which health services could address.

A recently published UK study also showed that feedback from patients about the safety of care they receive in hospital, including  data from the Friends and Family Test can be used to drive safety improvements. (See below: Patient Feedback on safety can drive improvements)

Mr Wellings also outlined the NHS England PROMS program, which was introduced in 2009 and covers four surgical conditions: hip replacement, knee replacement, groin hernia and varicose veins.

Each year, 180,000 patients undergoing those procedures complete a questionnaire about how they feel pre-surgery. Three to six months later, they repeat the survey to assess if they feel better. The data on knee surgery suggested the procedure resulted in big health improvements for patients, he said.

PROMs and performance

PROMs data was also being used to identify hospitals that were doing well and those that were not doing so well, he said.  It had led to the establishment of best practice tariffs for hip and knee replacements, under which providers with significantly poorer outcomes received a reduced payment per procedure.

Bureau of Health Information chief executive Dr Jean‒Frederic Levesque told the Forum that a range of patient reported data was now being collected in NSW hospitals.

“We are listening to patients and what they have to say about their outcomes, and going beyond satisfaction to the patient experience and asking them how they feel their care has influenced them,” he said. “The real challenge continues to be linking all this patient data and other sorts of data.”

Dr Karen Luxford, director of patient based care at the Clinical Excellence Commission (CEC), outlined a number of initiatives aimed at collecting and responding to patient feedback, including the Patient Based Care Challenge being taken up by many Local Health Districts.

“Stories we hear, along with data, and the way we use these two things in combination, are for us some of the real drivers for change,” she said.

 
 
 
Government plan to revamp ‘bloated’ Medicare

The federal government has announced a wide‒ranging review of the Medicare system, establishing a taskforce to examine all 5500 tests, procedures and consultations funded under the Medicare Benefits Schedule.

Health Minister Sussan Ley said a taskforce led by Professor Bruce Robinson, Dean of the Sydney Medical School, University of Sydney, would consider how MBS services could be aligned with the latest clinical evidence.

The review was aimed at delivering a more efficient Medicare and addressing issues such as over‒testing and funding of unproven treatments, but was not a cost‒saving exercise, Ms Ley said.
“Basically, there's wide agreement the Medicare system in its current form is sluggish, bloated, and at high risk of long‒term chronic problems and continuing to patch it up with Bandaids won't fix it,' she said.

She also announced that a separate Primary Health Care Advisory Group led by former AMA President Dr Steve Hambleton had been established to look at new care and funding models for people with complex and chronic illness.

And Ms Ley also flagged a crackdown on Medicare compliance, saying the Government would work with clinical leaders, medical organisations and patient representatives to develop clearer compliance rules and benchmarks.

The three taskforces are expected to report back to the government by the end of 2015.

Meanwhile, a perspective in the MJA argued that any review of Medicare should consider whether it could be used more effectively to prioritise those with greater need due social characteristics such as class, disadvantage or ethnicity, as routinely occurs under the UK’s NHS.

The health care system, and in particular elements such as the MBS and PBS, needed to be equipped to enable policy decisions that achieved vertical equity ‒ that is decisions requiring positive discrimination, wrote health economists Dr Kim Dalziel and Professor Jeffery Richardson.

 
 
 
E-health record reboot among Budget measures

The stalled national electronic medical records system is set to be revamped, with the federal government pledging $485 million over four years in the May budget to trial an opt-out rather than opt-in, electronic system.

Less than one in 10 Australians were currently signed up to the Personally Controlled Electronic Health System (PCEHR), and Health Minister Sussan Ley said an independent review had recommended this was not a large enough sample to make it an effective national system or worth the time for doctors and patients to use it.

The Government’s package would see the system renamed myHeath Record and transform it so all patients would have an electronic record unless they opted out.

The new system would better reflect the needs of health professionals, Ms Ley said, including better alignment with clinical workflows and ensuring information such as current medications lists and known adverse drug reactions could easily be identified by practitioners.

Other key budget health and medical research measures:

  • National Collaborative Research Infrastructure Strategy funded for a further two years. $300 million cost  offset by $263 million in savings from the sustainable research excellence program
     
  • Medical Research Future Fund set up from August with $10 million in grants distributed over the next 12 months. $400 million in grants earmarked over four years
     
  • $26 million on immunisation, including new $6 incentive to immunisation providers who catch up children overdue for vaccinations. Family benefits no longer available if children unvaccinated
     
  • National Medical Stockpile will be replenished at a cost of $34 million; $64 million to the Darwin-based National Critical Care and Trauma Response Centre
     
  • $600 million in cancer measures including PBS-listing for new melanoma and breast cancer drugs and cervical cancer screening program overhaul
     
  • $1 billion in savings from "rationalising and streamlining" programs, including dental workforce programs and removing duplication of child health assessments by state and federal governments
     
  • After‒hours primary care Practice Incentives Program (PIP) payment for general practices will be reintroduced from July

For more visit:  Australian Government 2015-16 Health Portfolio Budget Statements

See below: Patient portals could widen health disparities

 
 
 
Bill to ban e‒cigarette sales to minors

The NSW Government has moved to ban the sale of electronic cigarettes and accessories to minors, amid concerns about a sharp rise in their use by teens in other countries.

NSW Health Minister Jillian Skinner tabled a Bill in NSW Parliament making it an offence to sell e‒cigarettes and accessories, including e‒liquids, to anyone under 18 years.

If passed, the offence will carry the same maximum penalty as the sale of tobacco products to a minor ‒ $11,000 for an individual or $55,000 for a corporation, with bigger fines for repeat offenders.

The Bill comes as US data shows that in 2014, e-cigarettes were the most commonly used tobacco product among middle (3.9%) and high (13.4%) school students, with an estimated 2.4 million young people using e‒cigarettes.

A Welsh study found that 5.8% of 10‒11 year olds had tried e-cigarettes ‒ far more than had tried tobacco ‒ and 12.3% of 11‒16 year olds said they had used e‒cigarettes. However, the study found that few of the young people who tried e‒cigarettes were regular users and most who did so were also tobacco smokers.

 
 
 
RESEARCH  
AVOIDING ADVERSE OUTCOMES BACK TO TOP
 

Patient feedback on safety can drive improvements

Feedback from patients about the safety of care they receive in hospital, together with data from staff, can be used to drive safety improvements,  a UK study has found.

Patients in 33 UK hospital wards completed a Patient Measure of Safety (PMOS) survey asking about how they perceived safety aspects of their care. 

 
Both the staff responses ... and the patient responses to the measure of safety survey independently predicted safety outcomes  
 
 
The friends and family test

They also completed the Friends and Family test (FFT), in which they rated how likely they would be to recommend the ward to friends and family if they needed similar care.

Nurses on the wards were also asked to complete four outcome measures from the Hospital Survey of Patient Safety Culture survey, and the results were collated with publicly reported safety outcome data from each ward. 

The study found that while the Friends and Family Test was associated with patients’ perceptions of safety, it was not associated with safety outcomes.

However, both the staff responses to the patient safety culture survey and the patient responses to the measure of safety survey independently predicted safety outcomes, according to findings in the BMJ Quality and Safety journal.

When put together, those two surveys accounted for 49% in the variance in safety outcomes across the wards, the study found, and the patient safety survey was useful for identifying differences between the hospitals.

“In other words, what patients tell us about the safety of their care may partially overlap with staff perceptions, but patients tell us something that helps us understand more about the safety outcomes on hospitals wards,” the authors wrote.

Lawton R, O’Hara JK, Sheard L, Reynolds C, Cocks K et al. Can staff and patient perspectives on hospital safety predict harm-free care? An analysis of staff and patient survey data and routinely collected outcomes BMJ Qual Saf 2015; online

 
 
 

Models help ALERT hospitals to high-risk patients

Patients at the greatest risk of adverse outcomes including cardiac arrest and transfer to intensive care could be identified upon admission to hospital using a scale which relies on routinely collected data, a new study suggests.

The Adverse Hospital Outcome for Medical Patients (ALERT) scale could be used to assign patients to different levels of observation, depending on the likelihood of an adverse event, the authors said.

Researchers analysed data from 4883 consecutive admissions at two hospitals in Winnipeg, Canada, to construct the ALERT scale. Its ability to predict death or cardiopulmonary resuscitation within 30 days of admission or transfer to an ICU within 48 hours of admission was then assessed through validation across four hospitals including a further 65,640 admissions.

The data measured in the ALERT scale included gender, age, degree of co-morbidity (Charlson Comorbidity Index), chronic disability (Activities of Daily Living Score), Glasgow Coma Score, systolic blood pressure, respiratory rate, heart rate and white cell count.

The model accurately identified 75% of adverse outcomes and 75% of the non-adverse outcomes, according to findings in BMJ Open.

“The primary advantage of our model is that data needed to inform the model is likely to be already collected on admission in most hospitals or easily added to data collected on admission,” the authors wrote.

Meanwhile, a separate Canadian study found the risk of a patient being readmitted to hospital within 12 months of discharge could be reasonably well predicted based on a model using administrative data.

The study of 61,924 patients, of whom 33% were readmitted within a year of discharge, found that significant predictors for re-hospitalisation included: older age, male gender, diseases of the eye, adnexa, circulatory system, neoplasms, genitourinary or musculoskeletal system and connective tissue, at least one hospital admission in the previous two years and not having a family physician.

The predictive model used in the study could help health care providers target interventions to prevent unnecessary readmissions, according to findings in the Journal of Health Services Research & Policy.

Roberts D, Patrick W, Mojica J, Ostryzniuk P, Patrick M et al. The ALERT scale: an observational study of early prediction of adverse hospital outcome for medical patients. BMJ Open 2015; 5:e005501

Cui Y, Metge C, Ye X, Moffatt M, Oppenheimer L et al. Development and validation of a predictive model for all-cause hospital readmissions in Winnipeg, Canada. Journal of Health Services Research & Policy 2015; 20(2):83‒91

 
 
 

“Fix and forget” is a common approach to safety problems, study shows

Front-line hospital staff who encounter safety problems that they can resolve on the spot ‒ including near misses ‒ usually “fix and forget” the problem, rather than reporting it, a study shows.

However, this approach could lead to safety incidents being repeated or staff being constantly engaged in time-consuming workarounds, the Canadian authors warned.

The study involved in-depth interviews with 40 healthcare practitioners at a tertiary care hospital, focusing on how they dealt with front-line safety issues that they could resolve on the spot.

The research found that “fixing and forgetting” was the main choice most practitioners made in situations where they faced problems that they fix themselves, according to findings in BMJ Quality and Safety.

These included three main situations: near misses, which were seen as unworthy of reporting as the patient was not harmed; the solving of patients’ individual safety problems, which were viewed as one-off events; and encountering re-occurring safety problems that were framed as inevitable, routine events.

The authors said practitioners believe reporting of near-miss incidents such as a patient almost being given the wrong intravenous fluid would create overburdening paperwork.  Practitioners believed if a problem had not progressed to the patient, there was no need to report it.

“Choosing to be efficient in the moment may ironically cause the front-line providers to be far less efficient over time than intended,” the authors wrote.

They suggested communication and training about what should be reported, why and how should be considered more carefully, adding that recognising staff who acted as “disruptive questioners” as desirable employees could help encourage a new approach.

Hewitt TA, Chreim S. Fix and forget or fix and report: a qualitative study of tensions at the front line of incident reporting. BMJ Qual Saf 2015; 24: 303‒310
 

 
 
PATIENTS IN FOCUS BACK TO TOP
 

How do patients choose a doctor?

The factors that influence patients’ choice of doctors differs significantly depending on the condition for which they are seeking treatment, according to a new study which highlights the need to provide better targeted information about healthcare providers.

The Dutch study analysed what influenced the choice of heathcare providers in hypothetical situations posed to patients with three different conditions: knee arthrosis (616 patients), chronic depression (368 patients) and Alzheimer’s disease (421 patient representatives).

Findings in Health Services Research showed that for patients with knee arthrosis, the most important factors were effectiveness and safety of surgery.

Among patients with chronic depression, better continuity of care, a better personal match with the therapist during earlier contact, or the possibility to participate in decisions about the care process were the most important factors.

A better level of caregiver expertise, reduced travel distance and care delivery in accordance with agreements were the most important factors in the choice of doctor among the representatives of patients with Alzheimer’s disease, the study found.

The authors said the findings suggested that there was a room for quality information about healthcare providers in patients’ decision processes, and that information needed to be tailor-made to target specific patient groups.

Groenewoud S, Van Exel NJA, Bobinac A, Berg M, Huijsman R et al. What influences patients' decisions when choosing a health care provider? Measuring preferences of patients with knee arthrosis, chronic depression, or Alzheimer's disease, using discrete choice experiments. Health Services Research 2015 [Internet] DOI: 10.1111/1475-6773.12306
 

 

 
 
 

Patient portals could widen health disparities

The push for patients to use online health portals could exacerbate inequities, according to a US study that reveals stark health literacy, educational and racial disparities in older patients’ use of an online health portal.

The findings come as the Australian federal government this month pledged a $485 million “rescue” package to revamp the stalled national e-health system (see news story above).

The US study of 534 older adults attending an urban medical clinic found that most patients had a portal access code generated for them, but only 57.5% had gone on to register their accounts.

White patients and college graduates were the more likely to have registered their patient portal accounts, as were patients with greater health literacy, the study found. For example, only 22% of patients with limited health literacy registered their portal accounts, compared with 73% of those with adequate health literacy skills.

Healthier patients were also more likely to have registered for the patient portal than those with chronic conditions, according to findings in the Journal of the American Informatics Association.

The study also showed disparities in the use of the portal among those who were registered. Highly educated patients were the most likely to use the portal for prescription refill requests and white patients were more likely to have checked test results using the portal than African American patients.

Possible barriers to patients using the portal included a “digital divide” in Internet connectivity, difficulties with usability, forgetting to enrol after being given an access code, a lack of interest in the functions available and negative attitudes towards technology, the authors said.

“Our findings suggest research should focus on addressing the barriers faced by older under-served populations at the registration stage of patient portal initiation,” they wrote. They suggested that if patient portals were implemented, intervention strategies would be needed to monitor and reduce disparities in their use.

Smith SG,  O’Conor R, Aitken  W,  Curtis LM,  Wolf MS et al. Disparities in registration and use of an online patient portal among older adults: findings from the LitCog cohort. J Am Med Inform Assoc [Internet] 2015 DOI:http://dx.doi.org/10.1093/jamia/ocv025
 

 
 
 

Financial incentives help people change health behaviours ‒ but not forever

Giving people financial incentives helps to change health behaviours such as smoking and diet, a new review shows, but the effects dissipate three months after the incentive is removed. 

The review and meta-analysis included 34 studies involving 10,585 adult patients who were given financial incentives to achieve sustained changes in smoking, eating and physical activity behaviours.

 
Overall, the incentives increased the likelihood of patients changing their behaviour by 70% after six months and the effect was sustained for up to 18 months from the start of the intervention  
 
 
Removing incentives

In more than half the studies, the incentives were worth less than $US400 ($A504), while the rest were higher, and most studies also offered other interventions such as counselling, self-help manuals, brochures, professional advice or nicotine replacement therapy concurrently.

Overall, the incentives increased the likelihood of patients changing their behaviour by 70% after six months, according to findings in Preventive Medicine, and the effect was sustained for up to 18 months from the start of the intervention.

The behaviour change was sustained for 2‒3 months after the incentive was removed, but by six months, it had dissipated.

The review also found incentives had a greater effect on the health behaviours of patients classified as highly deprived ‒ a finding that suggested incentive schemes could help reduce health inequities.

“Although the use of personal financial incentives appears useful in initiating healthier behaviours, with changes sustained for some months after incentive removal, results from this review suggest that effects may ultimately dissipate, i.e. new habits do not appear to be formed,” the authors wrote.

While the review didn’t compare the use of incentives with other behaviour‒change strategies, the authors suggested it might be worth complementing their use with behaviour‒maintenance and relapse‒prevention strategies that could be delivered after the incentive was removed.

Mantzari E, Vogt F, Shemilt I, Wei Y, Higgins JPT et al. Personal financial incentives or changing habitual health-related behaviors: A systematic review and meta-analysis. Preventive Medicine 2015; 75: 75‒85
 

 
 
TOO MUCH OR TOO LITTLE MEDICINE BACK TO TOP
 

Hospital admission doesn’t cut polypharmacy in elderly

Three quarters of elderly patients admitted to hospital are already taking five or more drugs ‒ and there is little change in their medication use when they are discharged, an Australian study shows.

The researchers said that polypharmacy ‒ defined as five or more regular prescription medications ‒ was associated with adverse outcomes among older people living in the community, but had not been well explored in a hospital setting.

The study of 1220 patients aged 70 years and over admitted to general medical units in 11 acute care hospitals in Queensland and Victoria found polypharmacy was common and one in five patients were taking 10 or more medications.

Patients were prescribed a mean of 7.1 regular medications per day on admission to hospital and 7.6 medications per day on discharge, according to findings in the MJA.

The authors said that during the hospital admission, there was “no clinically meaningful change to the number or the classification (symptom control, prevention or both) of medications, nor in the prevalence of specific drug classes such as statins, opioid analgesics, antipsychotics and benzodiazepines.”

“This may suggest that active attempts were not made to de-prescribe when appropriate,” they wrote.

While it had not been established when and where the process of detailed medication review should occur, they suggested the acute care hospital ward, under the care of physicians, could be an appropriate setting for discontinuing inappropriate drugs.

Meanwhile, a separate article in JAMA Internal Medicine proposed a five-step protocol for de‒prescribing to minimise polypharmacy and improve patient outcomes, especially in the elderly.

The steps included prioritising drugs for discontinuation that had the lowest benefit‒harm ratio and the least likelihood of adverse withdrawal reactions or disease rebound syndromes, and monitoring patients closely for improvements in outcomes or onset of adverse effects.

Hubbard RE, Peel NM, Scott IA, Martin JH, Smith A et al. Polypharmacy among inpatients aged 70 years or older in Australia.  MJA 2015; 202 (7): 373‒78

Scott IA, Hilmer SN, Reeve E, Potter K, Le Couteur D, et al. Reducing Inappropriate Polypharmacy. The Process of Deprescribing. JAMA Intern Med 2015; 175(5):827‒834 

 
 
 

Paracetamol not backed for low back pain and osteoarthritis

The routine use of paracetamol to treat low back pain has been called into question, following a review showing the drug doesn’t reduce pain or disability and could put patients at risk of liver damage.

The study, which also showed paracetamol provided little benefit for hip and knee osteoarthritis, prompted a call to review clinical guidelines recommending the drug a first-line treatment for both conditions.
 

 
The review also found that patients taking paracetamol were nearly four times more likely to have abnormal results on liver function tests than those taking placebo, although it was unclear whether those results had any clinically significant impact  
 
 
Surveillance failures

The researchers conducted a systematic review and meta-analysis of 13 randomised trials. Findings in the BMJ showed high quality evidence that paracetamol was ineffective for reducing pain intensity or improving quality of life in the short term in people with low back pain. 

For hip or knee osteoarthritis, there was high-quality evidence that the analgesic provided a significant, but not clinically important, effect on pain and disability in the short term, which was no better than placebo.

The review also found that patients taking paracetamol were nearly four times more likely to have abnormal results on liver function tests than those taking placebo, although it was unclear whether those results had any clinically significant impact.
 

Gustavo CM, Maher CG, Ferreira PH, Pinheiro MB, Chung-Wei CL et al. Efficacy and safety of paracetamol for spinal pain and osteoarthritis: systematic review and meta-analysis of randomised placebo controlled trials. BMJ 2015; 350: h1225

 
 
 

Obesity screening falls short in general practice

Less than one quarter of patients have their BMI recorded in their medical records, according to an Australian study which urges more support for GPs to help them meet clinical guidelines on screening for overweight and obesity.

The researchers studied medical records of 270,426 adult patients from 78 Melbourne general practices to assess whether the GP had recorded patients’ BMI and waist circumference, as recommended in NHMRC guidelines for managing overweight and obesity.

Just 22% of patients had a documented BMI, while just 4.3% had their waist circumference measurement recorded, the MJA study found.

Barriers that GPs faced in screening patients for obesity included problems identifying obese patients, difficulty approaching the discussion about obesity and a perceived lack of appropriate training, as well as clinical software restrictions, the study suggested.

The authors called for further research into the barriers and enablers to increased obesity screening in general practice
 

Turner L, Harris MF, Mazza D. Obesity management in general practices: does current practice match guideline recommendations? MJA 2015; 202 (7):370‒73
 

 
 
 
REPORTS BACK TO TOP
 

Plan to turn around failing mental health system

This long-awaited 700-page report on the National Mental Health Commission’s review of mental health programs and services was released last month after parts of it were leaked to the media. The report makes 25 recommendations including shifting $1 billion in funding from acute care in state and territory hospitals and redirecting it into community care from 2017. It describes the mental health system as “poorly planned and badly integrated” and says that despite almost $10 billion in Federal spending on mental health annually, there are no agreed or consistent national measures of whether this leads to effective outcomes or whether people’s lives are improved as a result. 

Download report


The 15 vital signs for healthcare progress

This report, “Vital signs: core metrics for health and health care progress”, produced by a committee overseen by the US Institute of Medicine (IOM), proposes a streamlined set of 15 core measures that could provide consistent benchmarks for health progress. It outlines how the measures ‒ including life expectancy, infant and maternal mortality, overweight and obesity, evidence‒based care, healthy communities and patient safety ‒ could be applied at every level and across health sectors.

Download report


Care costs almost twice as high at some hospitals

Some public hospitals spend nearly twice as much as others to provide exactly the same service, according to a landmark report which reveals wide variations in the cost of care at 80 public hospitals across Australia. The National Health Performance Authority report showed there were also wide variations in costs per admission for 16 common conditions and procedures analysed. For example, the average cost for a patient undergoing an appendectomy (without complications) ranged from $4600 to $10,100 among major metropolitan hospitals.

Download report


Patients have a say on ED care in NSW

The experiences of 26,000 patients who visited the emergency departments (EDs) of 76 public hospitals in NSW from April 2013 to March 2014 are the focus of two complementary reports released by the Bureau of Health Information this month. The reports showed that that 52% of patients reported their care as “very good” and a further 30% said it was “good”. Almost two‒thirds of patients said they would speak highly of the ED experience if asked by family or friends. The surveys also found Aboriginal people and those whose first language was not English were less positive about many aspects of their ED experience.

Download report


Slow improvement in health status of Indigenous population

This report released by the Australian Institute of Family Studies summarises the most recent indicators of the health of Australia’s Aboriginal and Torres Strait Island peoples. It shows that the health status of Indigenous people is slowly improving, but they remain the least healthy population in Australia. The report states that there is increased acknowledgement of the importance of strong cultural foundations to sustainable improvements in health and wellbeing.

Download report


 
PROFILE BACK TO TOP
 
Professor Afaf Girgis  

Professor Afaf Girgis

Director, Psycho-oncology Research Group
Centre for Oncology Education and Research Translation (CONCERT)
Ingham Institute for Applied Medical Research, UNSW Medicine

SHOWCASING INNOVATION: Shining a light on patients’ psychosocial needs

If Professor Afaf Girgis has her way, the psychosocial needs of every Australian cancer patient will one day be assessed regularly as part of their routine care.

The internationally renowned behavioural scientist and Director of the psycho-oncology research group at the University of NSW says she became “consumed” with the area of psycho-oncology about 25 years ago when she started working as a research assistant while completing her PhD, then did a secondment with the National Breast Cancer Centre in 1996‒97.

Working closely with breast cancer patients, the first national consumer group, now called the Breast Cancer Network Australia, was established to begin to address some of their overlooked psychosocial needs.

Two decades of research

Over the past two decades, Professor Girgis has researched and published extensively in areas including the development and psychometric testing of measures to assess cancer patients’ unmet needs and strategies for improving psychosocial outcomes in practice using rigorous research designs. In 2012, she was awarded the Clinical Oncology Society of Australia’s inaugural Psycho-oncology Award.

She says that today, Australia is a world leader in researching psycho-oncology, which covers issues ranging from emotional and social concerns to quality of life, fertility, returning to work, insurance and financial concerns.

“We do punch well above our weight internationally.”

Putting research into practice

The Cancer Institute’s establishment of translational cancer research centres had helped “shine a light” on the need to better understand how we can translate research into practice, says Professor Girgis, who is also Chief Investigator in the Centre for Oncology Education and Research Translation (CONCERT) in South‒Western Sydney.

Speaking at last month’s inaugural Patient Experience Symposium hosted by the Agency for Clinical Innovation and the Clinical Excellence Commission, she described a new project called PROMPT‒Care (patient reported outcome measures for personalised treatment and care), which she hopes will form the basis for a new standard of psychosocial cancer care for NSW patients.

It is a collaborative project involving both the South Western Sydney and the Illawarra Shoalhaven Local Health Districts and is funded by the Cancer Institute NSW and the Bupa Health Foundation.

The project, which is currently being piloted, is aimed at systematically assessing the psychosocial and physical concerns and unmet needs of oncology patients from the start of their treatment through to long-term survivorship, using an interactive e-health platform.

Identifying issues of concern

“It’s almost like a triage system, which helps to identify the issues of concern at any stage on the cancer journey and linking the patient with self-management resources and with the most appropriate service or health professional to deal with those issues,” she says.

“The unique thing about it is that we are integrating the PROMPT‒Care system with the current oncology information systems in hospitals so that reports to clinicians about psychosocial outcomes are part of the patient records ‒ not a stand‒alone system – and available in real-time to the care team.”

This gives these reports the same weight as other reports available to the clinical team, such as scans or pathology test results for example, she says.

Professor Girgis’ ambition is to see PROMPT‒Care become a routine part of oncology patients’ care across the state.  And when that’s done, she hopes data from the project can be used to adapt it to cater for other patients, including non‒English speakers or people with limited literacy.

“If I retire when this is implemented as part of routine care in NSW centres, I will be a very happy person,” she says.

 
 
 
EVENTS BACK TO TOP
 
4th Annual NHMRC Symposium on Research Translation jointly with CIPHER

‘Policy and research: working together to improve the health of Australians’ is the theme of this year’s NHMRC Research Translation Faculty Symposium, which will be held in collaboration with CIPHER ‒ the Centre for Informing Policy in Health with Evidence from Research.

The goal of the symposium is to create more effective working relationships between health and medical researchers and policy makers. Knowledge exchange, better engagement and integration of policy makers with researchers, and the provision of systems to allow this to happen are some key areas the symposium will address.

27−28 October, Sydney
Read more
 
 
 
Large Systems Transformation Forum
10 June, Sydney
Read more

The NSW Agency for Clinical Innovation (ACI) is hosting a one-day Large System Transformation Forum for NSW Health staff involved in practice improvement and service change at scale.

Large system transformation is gaining in significance around the globe, with increasing pressure bearing on governments and services to engage in systems reform. This Forum explores these matters with the aim clarifying the opportunities and priorities for systems transformation in NSW.

 
 
 
ADS ADEA annual scientific meeting

The Australian Diabetes Society (ADS) and the Australian Diabetes Educators Association (ADEA) will be reaffirming their strong partnership as leaders in diabetes education, management and research at the 2015 Annual Scientific Meeting and Exhibition.

The exciting and innovative program will bring together national and international experts to promote the exchange of the latest clinical practices and cutting edge research in diabetes.

26‒28 August, Adelaide
Read more
 
 
 
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