Being Patient-Centric

A brand-new, evidence-based, self-evaluation toolkit to help pharma companies track their levels of patient-centricity

... as recommended by patient groups

PRESS RELEASE

EMBARGO DATE: 6am GMT, 22nd November. 2017
CONTACT: Alexandra Wyke
EMAIL: alexwyke@patient-view.com
MOBILE/CELL: 0044-7960-855-019

Why this toolkit?

Over the past decade, the increasingly talked-about topic of patient-centricity has become an aspiration of the pharmaceutical industry. The challenge is: turning ambitions into effective actions. Corporate actions intended to be patient-centric need to be chosen from a patient perspective, and then measured and assessed for impact upon the company.

However, the business of pharma is complex, and patients are distant from the processes of medical R&D (and, for that matter, from most business aspects of pharma). If patients do not understand the companies, how can companies determine what actions to take to be more patient-centric?

* Dorota Sienkiewicz and Corine van Lingen (editors: Nicola Bedlington, Camille Bullot, and Kaisa Immonen), The Added Value of Patient Organisations, Brussels, European Patients’ Forum, November 2017.

Patient groups can help

Patient groups have emerged as key players in healthcare systems.* Their awareness of the corporate world is greater today than ever before.

Patient groups understand the complex business environment of pharma, and are able to articulate patient groups' own concerns and needs in a manner meaningful to all of the business functions of pharma—from the beginning, to the end, of a product's lifetime.
PatientView has captured—in the form of a self-evaluation toolkit for industry—patient groups' knowledge of patient-centricity, drawing out the groups' ability to detail key corporate priorities and actions.

PatientView's approach...

PatientView has been researching the views and needs of patient groups for the last 14 years. During that time, we have built up a substantial register of patient-group opinions and feedback on a wide variety of topics of importance to patients. The accumulation of data has allowed PatientView to coalesce the disparate views of patient groups on the subject of what makes companies patient-centric. The Being Patient-Centric corporate self-evaluation toolkit is derived from this latter evidence.

... analysing 2016-2017 feedback from:

2,000 patient groups worldwide
50+ different medical specialties
100+ countries
International, national, regional and local

Patient groups describe 9 major attributes that contribute to the process of corporate patient-centricity. Every one of the attributes is, in turn, shaped by numerous fundamental factors.

For each of the fundamental factors, patient-group comments received by PatientView were reframed in the Being Patient-Centric toolkit as questions that the patient groups themselves might well pose to companies. Patient groups pose 139 questions to pharma companies that are seeking to be more patient-centric.

Being Patient-Centric pulls the many elements defined by patient groups as important to patient-centricity together into a self-assessment questionnaire for internal company use, aimed at measuring and tracking company levels of patient-centricity. Being Patient-Centric functions as a toolkit/roadmap that leads towards effective patient-centricity from the patient perspective.

Questions from Being Patient-Centric will be incorporated within future PatientView surveys of patient groups, ensuring that this new self-evaluation assessment tool remains up to date and relevant, and continues to represent the latest thinking of patient groups (as well as containing best-practice examples from industry). We hope that companies will adopt the toolkit, and challenge their own thinking, developing and embedding dynamic strategies that place patients at the heart of their business—making Being Patient-Centric a tool of real and tangible value to the industry.

This November 2017 launch of Being Patient-Centric is the toolkit's first roll out.

Being Patient-Centric will be updated in a year's time.

EXAMPLE from Being Patient-Centric (as framed by patient groups)

Attribute (Authenticity).
Fundamental (CEO and Leadership).
Self-evaluation questions (5 questions—all of the answers to which should be "Yes").

END OF PRESS RELEASE

Other information about the Being Patient-Centric toolkit:

Publication date: 22nd November 2017.
Page count: 65 pages.
Price of toolkit (special, one-off, introductory offer): GBP 6,000.
- Purchasers can circulate the toolkit to all full-time employees of their own company.
- Purchasers are granted a one-year licence to use all parts of the self-evaluation questionnaire.