Now Available On-Demand

Obtaining Support and Ongoing Care for Children with Spinal Muscular Atrophy (SMA) After Gene Replacement Therapy

Parents, caregivers, family members and patients affected by SMA are invited to watch this six-part educational program where experts discuss the benefits of gene replacement therapy and methods to maintain respiratory health, improve motor function and optimize nutritional health for patients with SMA.

The multidisciplinary panel composed of clinicians, advocates, and parents of children with SMA will bring to light unique perspectives regarding the needs of patients with SMA and their families.

Watch each module on-demand today.

Module 1: Understanding Gene Replacement Therapy in SMA

• Understand the benefits, administration and treatment outcomes of gene replacement therapy for SMA

Module 2: Life After SMA Gene Replacement Therapy

• Learn about the beneficial effects of treatment with gene replacement therapy on patients with SMA

Module 3: Respiratory Care and SMA

• Identify strategies and/or methods to maintain respiratory health in patients with SMA

Module 4: Rehabilitative Care and SMA

• Identify strategies and/or methods to maintain motor function and mobility in patients with SMA

Module 5: Nutrition and SMA

• Recognize the therapeutic importance of maintaining optimal nutrition in patients with SMA

Module 6: Shared Stories of SMA Families: The Good, Bad, and In-between

• Communicate with other patients and families about the impact SMA has on quality of life, challenges, and best practices

Support for this program was provided by Novartis Gene Therapies.