#InternetHealth HeroesHi, All! As you know, we’ve been gathering stories from Mozilla’s network of inspiring local leaders, and feeding them into the up-and-coming network web site, Pulse, and StoryEngine.io. Below is the first in a series of monthly updates about what we're hearing and learning. The focus this month is on Open Access & Innovation. Our hope is to make this content — and ongoing analysis — easier for you to use. Please send me your feedback, ideas, and leads on other heroes we should interview. We also have an interview guide if you want to join in. We’re gearing up to do another round of analysis ahead of the next All Hands, so if you have any burning questions, now’s the time to let me know :) Best, Christine TWEETS#OpenInnovation = clinical tests via mobile @BrianMBot on revolutionizing Parkinson’s research https://wp.me/p7CQuP-2S8 #OpenScience Why destruction of UK ID card system was a big win for #privacy + #security @GusHosein https://wp.me/p7CQuP-2S9 @MozillaAdvocacy #StoryEngine The highs + lows of #openscience. @cbahlai's brilliant #StoryEngine story. https://storyengine.io/stories/open-innovation/christie-bahlai/ … cc @shefw @abbycabs @MozillaScience @CSciBio gained collaborators who wrote test code for his project through a @MozillaScience #codesprint. More at https://wp.me/p7CQuP-2RP #SeedGrants + #hackathons made @securedrop possible. @trevortimm’s story https://wp.me/p7CQuP-2RV @Mozilla #StoryEngine #privacy #security #selftaught coder @annakrystalli: #openscience + #workingopen = #reproducibility #StoryEngine https://wp.me/p7CQuP-2RT @Mozilla “Instead of running siloed programs we’re really collaborating.” @aamogos drops mad science on @Mozilla #StoryEngine https://wp.me/p7CQuP-2Ro WHAT DO NETWORK MEMBERS CARE ABOUT?Quick analysis: Here are some of the themes that emerged when members talked about Open Access & Innovation:
AMPLIFYING VOICES + MAKING NEWS
#OPENINNOVATION + #OPENACCESS STORIESHere are just a few of our #openinnovation AND #openaccess stories. We add more each week. View all » Campaigning for a predictable legal environment involves translating complex policies“We have a very scary copyright directive, currently being discussed in the EU, which redefines hosting provider liability.… The copyright proposal is deliberately, horribly obscure, and it’s horrifying once you work out the dishonesty of the legislators and the way that European Union case law is being circumvented. If I sit somebody down for 20 minutes, they get it — finding ways of making this information human-readable would be tremendously helpful.” — Joe McNamee, Executive Director of European Digital Rights (host org for a Mozilla-Ford Open Web Fellow) — An open internet is directly relevant to science“I asked, ‘Where should we publish this paper? Will you be able to access a university library when you get back to your home country?’ She just laughed and said, “Oh no. Well, I could if I paid $40 US dollars every time I wanted to access it. And it’s unlikely the people I’ll be working with will have access to the papers I’m producing for my thesis…. An open internet is one without walled gardens. This is directly relevant to science — publishers have created walled gardens by controlling access to papers. Then they convince the producers of the product that they need to copyright and restrict access in order to be successful. The restriction of papers to [mostly Western and well-resourced] university libraries is something that frustrates me because most people don’t have access to that knowledge. And if we just took out the walled gardens, people would have more access to scientific knowledge.” — Christie Bahlai, insect ecologist based at Michigan State University’s Zipkin Lab + Mozilla Science Fellow alumni — Articulating the need for open data and reproducible code“The Working Open Workshop was the place our ideas became reality — many people contributed their skills, including a developer who found our project on GitHub and spent a few hours making our whole website responsive for mobile devices. The conversations and mentorship I've had while being affiliated with Mozilla has allowed me to clearly articulate the need for open data and reproducible code to my collaborators and to the people I work with — turning my challenges into successes.” [Teaser for upcoming story! Stay tuned :)] — Kirstie Whitaker, postdoctoral researcher in the Brain Mapping Unit at the University of Cambridge + Mozilla Science Fellow Lowering barriers for others to get involved“When you talk to most people about open source or open science, they generally agree with you — but there's a barrier to getting involved. It was nice to have the Mozilla umbrella to stand behind and say, ‘Instead of just talking about this, we're going to have this support network for the study group.’ People were much more willing to get involved when they knew that it had something to do with Mozilla.” — Rob Schaefer, Ph.D. Biomedical Informatics and Computational Biology, active participant and contributor to the Mozilla Science Lab — The challenges we face aren’t technical — they’re social"How do you work with groups like the National Institute of Health, to encourage them to change the way they review grant proposals? How do you approach different types of funders, foundations for instance, to get them to realize how important and game-changing some of these modifications can be? How do you get them to see that making these changes can get them a better return on their investments? Most of the challenges that we face in this space aren’t technical. They’re social. How do you put the right social constructs in place? How do you encourage people to work in way that is going to have maximal impact?” — Brian Bot, Principal Scientist and Community Manager at Sage Bionetworks + Mentor, Mozilla Science Lab Open Leadership Cohort — Helping others work open“We’re demonstrating the advantages of an open data repository and meaningfully licensed data, so that researchers will make their data open. We’re hoping this will convince them we’re not trying to step on their toes, or take away control from them — they still retain ownership of the data, get credit, and will be cited if the data gets use somewhere.” — Achintya Rao, Science Communicator at CERN + Mentor, Mozilla Science Lab Open Leadership Cohort — QUESTIONS? NEEDS?The StoryEngine team is happy to help you find the right content, quotes, or analyze what members say about your key issue. Send an email to christine@mozillafoundation.org and let us know what you need. |