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Hello enableme member

In this edition of the EnableMe newsletter we are focusing on invisible disabilities after stroke.

Invisible Disability, or hidden disability, is an umbrella term that captures a whole spectrum of hidden disabilities or challenges that are primarily neurological in nature.

Do people sometimes have difficulty understanding how your symptoms such as extreme fatigue, dizziness, pain, and cognitive impairments can be so debilitating to you but can even be met with
hostility by society at large.

People with some kinds of invisible disabilities, such as chronic pain or some kind of sleep disorder, are often accused of faking or imagining their disabilities.

These symptoms can occur due to chronic illness, chronic pain, injury, birth disorders, etc. and are not always obvious to the onlooker.

What You Can’t See: “Hidden” Disabilities After Stroke

But You Look Good: Hidden Disability after Brain Injury

Hidden disability after brain injury. What does it really mean?

Is it different from other hidden illness or disability?

“Brain injury is often called a “hidden disability” because the person may have no physical effects but behave very differently.”

“Cognitive difficulties are often called the “hidden disability” because they may not be obvious but can have a significant impact on your behaviour and on daily life.”

one of the major problems faced by people who have hidden disabilities is that often other people don’t see the disability and often don’t believe them. Frequently we are told that we don’t seem disabled. For many people they feel that the foremost discrimination anyone faces is to be disbelieved. Hidden disabilities can also cause difficulties because of the attitude of others due to fear or ignorance as people fear what they do not know or understand or what they can not see. 

The Dilemma of Living with a Hidden Disability

 

Public lecture

hidden dissabilties: Fatigue, dizziness, pain, memory and percation, neglect, sleep disporders, personality changes, how to explain to family and firends.

 

All this and more – happy reading!

P.S click here for the all EnableMe newsletters.

Do you have a question about being a young stroke survivor?

In the next podcast we are talking about the challenges of being a young stroke survivor.

We'll be talking to....

 

Featured conversations for this week

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Ask a question:

Click here for questions asked by your fellow community members. Perhaps you can contribute some of your own experiences, learn something new or ask a question?

Gather My Crew

Gather My Crew is an online rostering tool that allows you to ‘gather’ (ask for) the practical help you need from your ‘crew members’ (friends, family, neighbours and colleagues). Gather My Crew also lets your ‘crew’ decide when and how they will help.

Gather My Crew is new, but we figure it could be a great help after a stroke. For more

Just because you can not see it does not mean it is not there

I have a friend who, as a result of her stroke cannot walk very far and she has qualified for a disabled car parking sticker.

A couple of weeks ago, as she was getting out of her car at the supermarket, she was abused by a passer-by for parking in a disabled car parking space.

I think because disabled car parking bays are identified with a wheel chair symbol we may mentally associate them with mobility aids.

For more

 

Stroke Week 2017 public lecture: New treatment and care for stroke

https://vimeo.com/233399210

Remember if you need help, or have tips to help us improve EnableMe, we would love to hear from you at enableme@strokefoundation.org.au

We look forward to assisting you in your recovery and helping you to live your life well after stroke.

Many thanks,
 

Diana Kerr | Online Community Coordinator
National Stroke Foundation | Level 7, 461 Bourke St, Melbourne VIC 3000
T +61 3 9670 1000 |StrokeLine: 1800 787 653