Hello enableme member

In this edition of the EnableMe newsletter we invite you to join the next live group chat with Dr Annie McCluskey to talk about upper limb issues and rehabilitation.

We share the latest blogs, forums and questions; and you can order or download a copy of My Stroke Journey in easy english!

Plus StrokeLine physiotherapist Katherine reviews Stronger after Stroke – your roadmap to recovery, by Dr Peter Levine.

All this and more – happy reading!

It is your chance to talk directly to Dr Annie McCluskey, an occupational therapist, educator and researcher with over 30 years' experience in stroke and brain injury rehabilitation.

Tahnee Winks, a physiotherapist from the Stroke Foundation's Follow Up service will also join us.

Grab a cuppa, and join us for an online chat. For those unable to make it, a transcript will be made available and the StrokeLine team is available help further at StrokeLine 1800 787 653 or email strokeline@strokefoundation.org.au.

Listen to the EnableMe podcast - Hand, arm and shoulder.

Details of the online group chat:

• Tuesday 4 July 2017 at 11 am AEDT (Sydney/Canberra/Melbourne/Hobart time).
• P.S We'll send you the instructions on Monday 2 July to show you how to join the chat and you contact Belinda at the EnableMe helpdesk. 

Evidence-Based Upper Limb Retraining and workshops with Dr Annie McCluskey

 

Forums:

• Belinda: Stuttering or Stammering
• Marcus :Weekend Conversation No 1
• Jude: Have your say: help shape the future of supported disability accommodation
• Marcus: Recovery & Photograph Group

For all conversations click here

Blogs:

• My name is Lid
• Lisa: No medical reason for stroke
• Jacob: Have you returned to work after stroke?

For all blogs click here

Ask a question:

• John: Is there any new research for loss of your words from a stroke?
• What can I do to improve my problems with vision?
• David Luxton: MRI or CAT scan to assess damage to the brain to provide an objective assessment of how much recovery is taking place?

Click here for questions asked by your fellow community members. Perhaps you can contribute some of your own experiences, learn something new or ask a question?

My Stroke Journey empowers people to take control of their own stroke recovery and care. My Stroke Journey brings together information on the different types of stroke causes, impacts on family and friends, details on the hospital process, services available, risks of having another stroke and information for carers and family. My Stroke Journey also features advice and reflection from stroke survivors who have ‘been there’ to guide new stroke patients on their journey.

Click here for the easy English version
Click here for the original version
Or call StrokeLine to order a hardcopy 1800 787 653 

A lack of awareness about brain injury, partly as a result of its often hidden nature can result in well-meaning comments causing offense, according to brain injury survivors contributing to Headway's research. 

Share your thoughts or experiences with Marcus and the EnableMe community here.

Here's the good news: we know that playing video games can help stroke survivors regain lost movement.

It was thought for a long time that if you'd had a stroke, after a certain period you weren't going to get any better. The challenge for many people is staying motivated long term. Dr McNulty's work shows that keeping it fun can help continue your recovery.

For more about Dr Penelope NcNulty.

We'd love to hear what wii, online and electronic games you use at home. If you are using or have used wii based, online or electronic gaming rehab please share your experience here.

StrokeLine physiotherapist Katherine is a big fan of Dr Peter Levine's book Stronger After Stroke.

Stronger After Stroke is not a novel or a story, but instead a brilliant guide to stroke rehabilitation. It’s simply loaded with information and advice for stroke survivors and carers wanting to take charge of their own recovery. Reading from cover to cover takes you from being a novice to an expert in stroke rehab – giving you knowledge that is invaluable in achieving the best possible recovery after a stroke.

The author, Peter Levine, provides clear explanations of the principles behind stroke recovery, discussing neuroplasticity and how ‘brain rewiring’ can be maximised.

For more.

Your local library may have a copy of Stronger after Stroke. If they don’t, you can request they buy a copy – this will make it available not only to you, but to other survivors in your community.

Why are Australians being denied access to the latest advancements in stroke treatments that could save lives?

No postcode untouched.

If you are angry with the state of stroke treatment in this country please contact your local MP and have your voice heard! 

Remember if you need help, or have tips to help us improve EnableMe, we would love to hear from you at enableme@strokefoundation.org.au

We look forward to assisting you in your recovery and helping you to live your life well after stroke.

Many thanks,
 

Diana Kerr | Online Community Coordinator
National Stroke Foundation | Level 7, 461 Bourke St, Melbourne VIC 3000
T +61 3 9670 1000 |StrokeLine: 1800 787 653