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Edition 51, 2022
Hi Friend,
Welcome to this edition of Brainwaves. See below information regarding the growth in our engagement with people through the new Peer support groups and the Families and Carers Facebook page.
The National Epilepsy Support telephone service is receiving more calls and all of these from Tasmania are referred to our local team where we provide further personal service and support.
The Tasmanian Government has progressed the implementation of Access Mental Health in partnership with Lifeline Tasmania. It is available from 9am-10pm 7 days a week to support and make it easier to access and engage with the mental health system. Access Mental Health supersedes the Mental Health Services Helpline, and the number is 1800 332 388. I welcome this milestone for the Tasmanian Mental Health Reform Program.
As always be in touch if you would like to know anything else.
Warm regards
Wendy Groot, CEO Epilepsy Tasmania.
Epilepsy Peer Support Groups
Epilepsy Tasmania now has three Peer Support groups, for adults with epilepsy and carers, meeting on a regular basis in Launceston and Hobart.
This gives people living with epilepsy, or families and carers of people with epilepsy, the opportunity to meet others in similar circumstances to talk about their stories and share tips, information, feelings and experiences with those who have a shared understanding.
Meetings focus on topics or themes suggested by the groups, with anything from; medication, isolation, diet, well-being, driving, memory etc.
We hope these sessions are giving people a chance to talk freely, openly and give them a voice on epilepsy.
We're also offering individual peer support.
To Join a Group or Access an Individual Service
Contact Amy, our Peer Support Coordinator:
Phone: 0419 596 489 or email: support@epilepsytasmania.org.au
Facebook Group - Epilepsy Connect Tasmania Families and Carers
An interactive closed Facebook group for safely discussing life’s journey with epilepsy.
Moderated by Epilepsy Tasmania’s Social Worker and Peer Support Coordinator who has lived experience with epilepsy. Ask questions or just know you’re not alone.
Download the Epilepsy First Aid Poster for Your Workplace
Place it in prominent positions around your workplace for both staff and customers.
Make an EOFY Donation
Pass the hat around or organise a event in your workplace, before the EOFY is upon us.
Seer Seizure Risk Forecaster App
The Seer Seizure Risk Forecaster App has the potential to change people’s lives as they navigate their seizures and epilepsy.
Learn more about the Seer app and the seizure risk forecasting features.
National Epilepsy Support Service (NESS)
NESS is a free, Australia-wide phone service that provides support and information for people living with epilepsy and those who assist them.
1300 761 487
Monday to Saturday 9.00am to 7.00pm (AEST)
NESS is not a medical emergency line.
“We must accept finite disappointment, but we must never lose infinite hope.”
Martin Luther King Jr.
Epilepsy Tasmania is a not-for-profit community organisation improving the quality of life of Tasmanians with epilepsy, and those around them, through education, coordination and support.
