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Introduction - Craig Stockton, MND Scotland Chief Executive
During MND Awareness week this year, MND Scotland launched its campaign to get free personal care for those under 65 who are terminally ill.
I am pleased to say that the Scottish Government response has been positive, and you can read more about this below.
We are also featuring Gordon Aikman's story, and his incredible campaigning to raise awareness and funds for MND Scotland.
Our Annual Report and Accounts for 2013/14 have also been published, and thank you to everyone who has supported MND Scotland during the year.
As usual, there’s a lot to read about in this Autumn edition of Aware. I hope you enjoy it and that you will continue to support the work of MND Scotland in whatever way you can.
The full magazine can be viewed here.
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Campaigning News
Last year, MND Scotland wrote to each local authority in Scotland asking them to supply details of their charging policy for personal care. The responses formed the basis for our campaign to ensure all local authorities in Scotland follow COSLA guidance and exempt people who are terminally ill from personal care charging.
Our MND Awareness Week reception at the Scottish Parliament on 18th June highlighted our campaign.
90 people with MND and their families, as well as 40 MSPs attended the reception. Michael Matheson MSP, Public Health Minister, confirmed that the Scottish Government believes that no terminally ill person in Scotland should pay for personal care and that they are working with the COSLA guidance group to address this.
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Fundraising - Holyrood Park Fun Run, and Kilmanjaro 2015
If you want to get involved in fundraising for MND Scotland, there are plenty of things you can do. Coming up, we have or annual Fun Run and Sponsored Walk at Holyrood Park, Edinburgh, a Firewalk (yes - walking on red hot coals!), the Cumbrae Cycle, and even a
trek to Kilimanjaro in 2015!
We rely almost entirely upon people like you to fund our work. Whether you want to run a marathon, organise your own event, give through your workplace, or leave a gift in your will, our
Fundraising Team are here to help!
Find out more...
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Research - The MND Scotland Register
Over recent years we have invested over £1,000,000 in research projects which aim to advance our understanding of the causes of MND, and hopefully help us to develop new treatments in the future.
We continue to fund the MND Scotland Register which helps ensure equality of care and access to research.
We have also invested in social research projects which help us to understand the services that people with MND receive from the Health and Social Care sectors, and to identify what works well and what needs to be improved.
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Volunteering Opportunities
Are you looking for a new challenge and a way of helping others? Do you want to use your time and skills to help MND Scotland? We are proud of our volunteers across the country, all of whom play a vital role in helping MND Scotland to provide support and information to people affected by Motor Neurone Disease.
We currently offer a range of volunteering opportunities for Trustees, Complementary Therapists, and many others.
Find out more...
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Improving our Aware e-newsletter and meeting the needs of readers is important so please feel free to offer feedback by contacting info@mndscotland.org.uk
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