No images? Click here
CLAPA Connect: May 2021
Thank you for getting involved in Cleft Lip and Palate Awareness Week 2021! By sharing your stories, sharing our posts with your friends and family, and by fundraising in support of our work, you've made countless more people aware of cleft, and shown the UK cleft community that they don't have to face their journey alone.
Here's the difference you made, in numbers:
- On Facebook, you shared our posts 2,200 times and helped us to reach an incredible 284,000 people!
- On Twitter, your retweets got our infographics and videos seen 250,000 times – that’s 500% more than usual!
- On Instagram, our posts were seen 120,000 times by 6,600 people.
- 75 of you joined our Step Up for CLAPA Challenge.
- On Facebook and Just Giving alone, your fundraisers have raised over £22,000!
THANK YOU for joining us in spreading the word about cleft!
In This Newsletter:
Events: Q&A on Treatment Decision Making & 'Father's Day' Coffee Club
#ShareASmile: Help us keep this series going
Your Stories
CLAPA Voices - get involved!
Research opportunities
Face Equality Week
Treatment Decision Making in Adults with a Cleft Q & A
We recently shared the results of new research into treatment decision making in adults born with a cleft. At this live Q & A on Monday 14th June at 8pm, our Adult Services Manager will be breaking down the findings in more detail and discussing what they mean for the cleft community.
You won’t need to sign up anywhere to tune in, just head to our Facebook page on the day to catch the livestream. The video will also be saved to our Facebook page and added to our website after the event.
By clicking 'going' on our event page, you'll get a handy reminder to join on the day!
Coffee Club: 'Father's Day' Special
In celebration of Fathers' Day, we're hosting a special Coffee Club on Monday 21st June at 7pm on Zoom!
Since taking our events online over the past year, we've been delighted to see so many more dads coming along to learn more about cleft and share their experiences of diagnosis, early years, and beyond.
We're celebrating Fathers' Day with a themed Coffee Club aimed at dads at all stages of their cleft journey. Come along, meet others, and share your experiences, memories, questions and answers. As always, you are also very welcome to attend and just listen in if you'd prefer.
Find out more and book your free place below.
#ShareASmile
Thank you to everyone who is continuing to send in stories and photos as part of our ongoing #ShareASmile series!
Would you like to keep these posts going? Wherever you are on your cleft journey and whatever you'd like to share, we'd love to hear from you.
Your stories
Lucy, Keira, and Lily's presentation for CLAPA
Lucy, Keira and Lily recently secured an incredible £3,000 grant for CLAPA after delivering the winning presentation at their school for the Youth and Philanthropy Initiative (YPI).
Kathryn's Story
"...As a professional ice skater being on stage or in the 'spotlight” performing in front of tens of thousands of people has definitely been a daily fight to build up my confidence to be where I am today...I am still learning that I do not need to compare myself to the ideal “perfect”. Everyone is different in their own way and this is mine!"
New opportunity: CLAPA Voices
The voice of the cleft community is the foundation of everything we do at CLAPA. From developing new services to shaping our messaging, we want people affected by cleft to be involved every step of the way. CLAPA Voices is your chance to be heard.⠀
⠀
Sign up today to be the first to hear about opportunities throughout the year for you to feed into our work, as well as take part in research projects. You can pick the ones that interest you and fit around your schedule, so this is a brilliantly flexible way to get involved!⠀
Research Opportunities
Adult Care & COVID 19
The Centre for Appearance Research is looking for adults whose cleft care was impacted by COVID-19.
Please take part in this short survey and contribute to improving adult cleft care in the UK.
Experiences of Somali People with Visible Differences
The Centre for Appearance Research is looking to talk to Somali people with a visible difference like a cleft scar. Interviews are 100% confidential and can be in English or Somali.
Ethical Decision-Making During the Pandemic
This study is looking at how the NHS made decisions around cleft treatment during the pandemic, and how this was communicated to patients and families.
Teen Appearance and Body Image (TABI)
The Centre for Appearance Research is looking for 11-17-year-olds to take part in an online survey about appearance and body image.
Cleft Care Scotland Patient Engagement Group
Would you like to have a say in NHS cleft care in Scotland? Cleft Care Scotland is inviting applications from people to join their recently formed Patient Engagement Group
Face Equality Week - Resources for schools
As well as Cleft Lip and Palate Awareness Week, this month also saw Face Equality Week and our friends at Changing Faces have released their 'A World of Difference' classroom and teacher training resources. Click on the buttons below to find out more.
Keeping Your Data Safe
We’ll use the information you’ve provided when signing up to send you the most relevant content, and you can update this data (and your preferences) at any time.
Read our Privacy Policy to find out more about how we collect, store, and use your information. You can also get in touch at any time at info@clapa.com or call 020 7833 4883 if you have any questions or concerns.
