Dear Community,
Happy Holidays & Happy New Year! We just completed a 2-day strategy meeting for our operations, data and project planning for 2020. We are so proud of the work we completed in 2019, and are excited to continue our efforts in 2020, especially as we grow into new directions. We thank each and every one of you for making ACTION the community it is today, and for that we say:
Cheers!!
Welcome Christy!
Please help us welcome Christy Larkins, our new Specialist for the ACTION Network!
Over the last 4 ½ years I have worked as a project specialist on the “Solutions for Patient Safety” network which focuses on eliminating Hospital Acquired Conditions for pediatric patients and Employee Staff Safety. During that time my initial focus was working with the data submitted by our network hospitals and managing the membership processes including onboarding, database management, data communications, and training. As our network grew, membership management became my main focus and in addition to membership management, I took on project management work for three of our work streams focused on preventing patient harm in Adverse Drug Events, Surgical Site Infections, and Human Factors. Prior to my work at Cincinnati Children’s I worked in Customer Service, eBusiness and Supply Chain for manufacturing companies. I am a Lean Six Sigma Greenbelt and have a Bachelor’s degree from Xavier University.
I am excited about my role as a program specialist on the ACTION team here at Cincinnati Children’s. I look forward to using the skills I have learned over the past 4 ½ years to help the ACTION team manage their membership, engagement, and quality improvement, in addition to the opportunity to work more closely with the patients and families that we are helping in our VAD and cardiac care programs.
– Christy
Upcoming EventsMarch 5–6, 2020 April 2020 (Date TBD) May 13–15, 2020 June 10, 2020 June 11–13, 2020 September 2020 (Date TBD) |
16th Annual MCS & CPB MeetingMay 13–15, 2020
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ISHLT Abstracts Accepted!
Congratulations to all of our abstract authors for ISHLT 2020! The following ACTION abstracts have been accepted:
- Barriers to Establishing and Maintaining Therapeutic Anticoagulation in Pediatric Ventricular Assist Device Support: Advanced Cardiac Therapies Improving Outcomes Network Initiative (Mehegan, M., et al.)
- Contemporary Berlin Heart EXCOR outcomes in North America: Report from the ACTION Registry (Lorts, A., et al.)
- Intracorporeal VAD Outcomes in the ACTION Quality Improvement Network (Sutcliffe, D., et al.)
- “How are you doing?”: Patient and Family Support Resources for Children on Ventricular Assist Devices (Machado, D., et al.)
- Understanding Pediatric VAD Center Practices for Establishing and Maintaining Optimal Support (Donnellan, A., et al.)
- Current Discharge Practices In Pediatric VAD Patients: A Survey Of The ACTION Collaborative (Tunuguntla, H., et al.)
- Preparing For Discharge In Pediatric Ventricular Assist Device Supported Patients (Elias, B., et al.)
- The Fontan VAD Physiology Project (FVPP) (Cedars, A., et al.)
- Significant Variation in Cardiac Rehabilitation For Pediatric Ventricular Assist Device Recipients Across North American: An ACTION Network Survey (Burstein, D., et al.)
Registry Database
Updates
Quarterly Reports
Sites with 25 or more accruals in registry/simplified clinical will be receiving a separate quarterly report for their respective sites.
Email us: ACTION.DCC@cchmc.org
Quality
Improvement
Updates
Discharge and De-escalation
To maximize sharing and learning for teams testing the discharge interventions, in 2020 we are going to move from monthly Global QI calls to monthly Discharge Committee calls. Please continue to update and enter your discharge data!
ABC Stroke
Please continue to enter your ABC stroke data for the first 8 weeks of implant.
Fontan VAD Physiology
Please continue to enter your Fontan patients into the Registry and FVPP REDCap. This data set is close to being analyzed. Please submit your data by January 6, 2020, to be part of the publication.
Global QI Calls
In 2020, these monthly calls will be turned into “ACTION for All” calls in which we will update on projects, data, and initiatives across the network. That majority of quality improvement sharing will now occur within the relative committees with active QI projects.
DMD Survey
The Duchenne’s Muscular Dystrophy (DMD) Committee of ACTION has created a survey to understand DMD patient care practices across institutions. We have received over 30 survey responses so far, and we are extending the answering deadline to 12/23/19. This survey is open to all types of clinicians, and multiple responses per center are allowed.
NOTE: It has been brought to our attention that question #27 of the DMD survey does not have an “n/a” response available for centers that have not implanted a VAD in MD patients. Since we have already received survey responses, we are instructing centers to select “Other MD” if you have NOT implanted a VAD in an MD patient.
