Dear Community,
ACTION remains very active as we transition to a more chronic phase of COVID-19, and begin to normalize some of our institutions, including healthcare delivery. If you haven’t already visited Basecamp (or the COVID-19 webpage) to see the library of ACTION-related FAQ’s and infographics, we encourage you to do so, as they may be of use at your institution.
ACTION work on the waitlist is in high gear, with the Donor Decision Project emerging from the planning stages into implementation, including a regular webinar to review donor offers. Again, see Basecamp for details. There is also progress on the Heart Failure front, as we are working towards a PHIS-ACTION data extraction, and planning initial QI work in this area. Additionally, spurred by COVID-19 but also extending far beyond the immediate crisis, we are working together with PHTS to develop a cohesive approach to telehealth as it can be applied to VAD, waitlist and transplant care.
On June 11th, we are very excited about hosting the first in our new virtual series ACTION Learning Sessions. Led by David Peng, these will focus on a variety of timely and timeless topics, starting with a look at Fontan VAD patients. Ari Cedars will be presenting, and panelists include Pirooz Eghtesady, Ryan Davies, Sharon Chen, David Morales, Jodie Lantz, and Christina VanderPluym. We hope you can join us and help make it a success.
As always, stay healthy and well!
Regards,
Join us for VIRTUAL learning sessions!
The best way to improve outcomes is to share what we have learned quickly and openly. In these learning sessions, we will showcase and discuss the latest ACTION data, initiatives, best practices and clinical conundrums with our community.
Registration for learning sessions is required. See registration info below or visit our learning sessions webpage for more details.
Patients with Fontan Circulation and VADs: What Have We Learned?
Thursday, June 11, 2020 | 4:00 PM Eastern
Speaker: Ari Cedars, MD – Johns Hopkins Children’s Center/Johns Hopkins Hospital
Focus: Late-breaking data from the ACTION Fontan VAD physiology project.
Make sure to submit a question or topic you want to discuss regarding Fontan VADs during our learning session. Please submit it on the event registration page or email us.
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Expert panel and discussants:
Sharon Chen, MD, MPH – Stanford University
Ryan Davies, MD – UT Southwestern Medical Center/Children’s Health Dallas
Pirooz Egthesady, MD, PhD – Washington University in St Louis/St. Louis Children’s Hospital
Jodie Lantz, MSN, APRN, PCNS-BC – Children’s Health Dallas
David Morales, MD – Cincinnati Children’s
Christina VanderPluym, MD – Boston Children’s Hospital
And YOU!
Please register by June 8, 2020. Registration is free and open to anyone interested in participating. To join us, click below:
NEW COVID-19 Infographics!
These two new infographics –available on our COVID-19 webpage – are aimed to help give mask-wearing guidance to patients and families.
- How to Wear a Mask like a Health Hero offers a guide to the dos and don’ts of face mask wearing.
- Tips for Helping Kids Wear Masks provides useful ways to help little ones get used to wearing their masks.
Spanish versions coming soon!
Newest Centers
Johns Hopkins Children's Center |
Cancelled EventsSeptember 24, 2020 (CANCELLED) September 25–26, 2020 (CANCELLED) Upcoming EventsJune 10, 2020 (NOW VIRTUAL) June 11, 2020 (4 PM Eastern) July 9, 2020 (4 PM Eastern) October 4–7, 2020 |
Registry Database
Updates
Quarterly Report
DCC will be sharing the networkwide, 3rd quarterly report this week. This report will include data from the 28 sites. Centers with more than 25 accrued patients will also receive a center specific report later this month. Please stay tuned.
Thank you all for continuing to respond to queries and questions from the DCC.
Email us: ACTION.DCC@cchmc.org
Quality Improvement Updates
COVID-19 Calls
Thank you to those who continue to share learnings and experiences on the weekly COVID-19 calls with ACTION and PHTS! These calls are now moving to bi-weekly, with the next call on June 4th.
Discharge Committee
The next Discharge Committee meeting will take place on June 3, 2020. Please continue to enter data in REDCap on any patients who have been discharged.
Stroke QI Project
Leadership is diving into the Stroke QI work to better understand how we can reduce strokes even further. The stroke reduction work will re-launch in the next few months. Please continue to enter data into REDCap for your VAD patients.
Telehealth Project
The telehealth project group had a very successful virtual design meeting on May 15th! The virtual 2-hour design session was the first of its kind for ACTION, and thanks to the great participation, engagement, and collaboration of the group, we were able to define a SMART aim, drivers, and interventions for the project. We will be focusing on 2 interventions to start with; a checklist with criteria for defining which patients qualify for virtual visits and making education materials for patients/families.
Thanks to Matthew O’Connor, MD, Deipanjan Nandi, MD, and Robert Gajarski, MD for leading this new group! Next steps and other details will be circulated to the participating teams soon – stay tuned!
