Dear Community,
We are getting ready for our ACTION Learning Session on November 2-3, 2019 in Ann Arbor, MI! The meeting is open to ALL members of our ACTION community; clinicians, parents, patients, industry partners, and all others. Other details about this meeting are included below. We are looking forward to seeing many of you soon! Please let us know if you have anything to include for next month!
Regards,
2019 ACTION Learning Session
November 2–3, 2019 | Ann Arbor, MI
Main Focus: Waitlist Outcomes
SATURDAY
Talking about a patients process from referral to transplant (time of diagnosis > transplant listing > receiving a transplant).
Afternoon Breakout 1: Patients & Families to brainstorm on data reports/visuals, education materials, and support efforts for patients and families,
Afternoon Breakout 2: Providers to brainstorm on data, decision aids, and donor offer tracking tools to ultimately improve rates of accepted organs.
ACTION Happy Hour: Saturday evening – All are invited
SUNDAY
Discussions around patient reported outcomes and timing of referrals for advanced cardiac therapies
NOTE
The Cardiac Networks United meeting is Sunday, November 3, immediately following the close of the ACTION Meeting. Other networks meeting in conjunction with Cardiac Networks United are NPC-QIC Nov. 2–3 and PAC3/PC4 Nov. 4–5.
Newest Centers
Joe DiMaggio Children’s Hospital
Hollywood, Florida
- Robert Winchester, APRN,
NP-C, CCTC - Immanuel Turner, MD,
Peds Cardiac Surgeon - Megan Zakrzewski, APRN
- Lana Shugh, MD
- Maryanne Chrisant, MD
- Megan Rodriguez, APRN
- Breanna Vandale, MSN, RN,
Nurse Mgr
Levine Children’s Hospital
Charlotte, North Carolina
- Gonzalo Wallis, MD, Med Dir Peds HF/TX
- Adam Morrison, MD
- Stephanie Harakas, MSN, RN,
ACCNS-P - Celin Wittman, MSN, BN, CPNP
- Katherine (Kati) Robinson, BSN, RN, CCTC
MUSC Children's Health
Charleston, South Carolina
- Heather Henderson, MD
Dell Children's Medical Center of Central Texas
Austin, Texas
- Chesney Castleberry, MD
- Richard Owens, Perfusionist
Upcoming Events
November 2–3, 2019
ACTION Learning Session
In conjunction w/ Cardiac Networks United Meeting
Ann Arbor, Michigan
March 2020
Potential ACTION Leadership Meeting
Location TBD
April 2020 (Date TBD)
Potential ACTION Happy Hour at ISHLT
Montreal, Canada
May 13–15, 2020
Potential ACTION Meeting at 16th Annual MCS & CPB Meeting
Cincinnati, Ohio
Fall 2020 (Date TBD)
ACTION Meeting at Heart Failure/VAD Summit
St. Louis, MO
Utilization
& Value Committee
Using Explanted Equipment for Training & Education
When explanting a device, check with the clinical specialist from industry about the possibility of keeping the device and creating a device training kit or for hands on training.
- When explanting HeartMate 3, you will need the entire pump with the segment of the driveline that connects to the modular cable as well as modular cable to make it a functional sim trainer
- For Berlin Heart explants or pump exchanges, you can use pump with perfusion tubing, driveline tubing, and a 500 ml saline bag to create a closed circuit trainer to be used with an IKUS/ sim mannequin for educational purposes
ABCD’s of Reducing Stroke & Improving Quality of Life
We continue to monitor the ABC’s data to see their impact on stroke reduction. The Discharge and De-escalation project rolled out during our October Global QI call. The two interventions being tested are a patient journey map and team flight plan.
If your site is interested in participating in this improvement project, please complete the survey below.
Testing will begin in November!
ACTION Registry Database
Changes in Effect for the
ACTION Registry Database
There have been substantial form changes to the ACTION Registry database, effective Sunday, October 20, 2019.
View these changes, by visiting Simplified Clinical/CDP https://cdp.simplifiedclinical.com
There is a "Reference Documents" tab on the left-hand navigation bar. Please select the “2019” version of the document you wish to view. For convenience, these documents are also posted in Basecamp.
Email us: ACTION.DCC@cchmc.org
Thank you all for your continued efforts!
Open Positions in ACTION Centers
Children’s Healthcare of Atlanta
The Advanced Cardiac Therapies Team
Looking for: Advanced Practice Provider (APP) who will primarily be responsible for coordinating the clinical care for all heart failure, VAD and heart transplant patients.
Minimum of three years of nursing experience in cardiovascular nursing, cardiac surgical nursing, cardiac transplantation, and/or care of patients with ventricular assist devices.
For the full job posting or to apply, visit our website.
Email Contact: Diane Krasnopero, DNP, CPNP-AC/PC
Lead APP for Advanced Cardiac Therapies team, Children’s Healthcare of Atlanta
Stanford Children’s Health/LPCH
The Pediatric Advanced Cardiac Therapies (PACT) Program
Looking for: Physician to support clinical and academic growth. Seeking an Assistant or Associate Professor in the Clinician Educator faculty line. Position will be primarily clinical, but with opportunities for collaborative and independent investigation and scholarship. Our faculty are involved in multiple clinical trials, including PANORAMA, Teammate, and PumpKIN. We are active participants in PHTS and ACTION. There are a multitude of research opportunities in these and other areas.
PACT works to unify the pediatric treatment of heart failure, VAD therapy, and heart transplantation. Inpatient service includes consultative service in the CVICU. There is an excellent working relationship between the CVICU, CT surgery and PACT teams. We run an independent service for floor-level care. Outpatient program includes cardiomyopathy, heart failure, VAD and transplant clinics, satellite sites and outreach sites.
For the full job posting or to apply contact David Rosenthal, MD directly.
Email Contact: David Rosenthal, MD or 650-723-7916
Medical Director, PACT, Professor of Pediatrics, Stanford University, Roma and Marv Auerback Pediatric Cardiology Scholar
