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Five Ways to Welcome a Newborn with Down Syndrome

 

Last month, we released the book,  "Welcoming a Newborn with Down Syndrome," specifically for families receiving a diagnosis of Down syndrome after the birth of their baby. The book is based on "Diagnosis to Delivery" and also includes stories from diverse families with children at different ages. Check out 5 ways local organizations can share this resource with families!

 
 

5 Ways to Welcome a Newborn with Down Syndrome

1. Add the book to your gift basket for parents of newborns. Ideally, new parents would receive "Welcoming a Newborn with Down Syndrome," and expectant parents would receive our recently updated"Diagnosis to Delivery: A Pregnant Mother's Guide to Down Syndrome" and "Your Loved One is Having a Baby with Down Syndrome."  You can place orders with Woodbine House.

2. Add a link to "Welcoming a Newborn"  in the New Parent or Resources section of your website. (However, please don't upload the whole book to your website since we are constantly updating the original source file and need to track our numbers for grant purposes.)

3. Share the release of the book on social media and in your newsletter so that other families can check out the free digital version and share the book with anyone who might need it. 

4. Add the book to your organization's resource library. 

5. Watch for updates about the upcoming release of the Spanish translation of the newborn book being funded by the Kennedy Foundation and our upcoming "Coping with Loss" booklet for parents who have lost a baby or child with Down syndrome.

 
 

Welcome Basket Ideas

From Amy Allison, Executive Director at the Down Syndrome Guild of Greater Kansas City:

DSG has been visiting families in local hospitals for many years, and we bring them baskets to help them feel welcomed and loved by this community. Our baskets have included "Babies with Down Syndrome," "Gifts," "Down Syndrome: The First 18 Months," DSG bumper stickers, a calendar, cute onesies and bibs, and booties. We were so pleased to add "Welcoming a Baby with Down Syndrome" to our baskets and have already delivered several of them to families in the past month. Those families were very happy to receive a guidebook for the first month and to read the stories of real families. This book fills a gap by providing information that is easy to understand for families just starting on the first steps of their journey.  

 
 
 

Amy Julia Becker Article in Parents.com

Amy Julia Becker writes in Parents.com that the book is a positive and hopeful gift to new parents that "provides honest, comforting stories alongside accurate, helpful information. It is filled with facts and figures in conjunction with personal perspectives and beautiful photographs of individuals with Down syndrome. I suspect all new parents will find it a helpful guide as they enter into life with a child with special needs and welcome a new baby with Down syndrome.

The booklet runs a little over 100 pages, but it can easily be read in one sitting. The sections are comprehensive but brief—enough to be informative but not so much as to be overwhelming. This book has been vetted by doctors and genetic counselors, and it also has been reviewed by parents of children with Down syndrome. The balance of medical information and personal concern shines through. Unlike some more “neutral” articles about Down syndrome, this one begins with the assumption that life with a child with Down syndrome is ultimately good: