This month we'll have the unique opportunity to learn from leading genetic counselors about how to bridge the gap between patients, medical professionals, and the Down syndrome community. This is vital as a growing number of prenatal testing companies are competitively vying for marketshare, and more women than ever are learning about a diagnosis of Down syndrome prenatally.
In addition, we'll discuss how local Down syndrome organizations can effectively use our new Understanding Prenatal Screening and Testing for Chromosome Conditions pamphlet to ensure that women receive balanced information about non-invasive prenatal screening and chromosome conditions before testing.
Stephanie Meredith, author of the printed resources, and Mark Leach, bioethics specialist, both with the National Center, will present two webinars on the new information for medical outreach efforts by Down syndrome organizations. They will also be joined by genetic counselors, Katie Stoll, MS, LGC, who is teaching a symposium on disability and prenatal testing at the National Society of Genetic Counselor's 2013 Annual Meeting, and Blythe Crissman, MS, CGC, who is currently conducting the Duke University School of Medicine Down Syndrome Prenatal Diagnosis Study. Attendees will learn:
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The professional recommendations for how the new testing should be incorporated into clinical practice and what the sensitivity rate actually means;
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The new information available for supporting patients when they are offered testing and after they receive a test result; and
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Guidelines for meeting the needs of expectant parents, building positive relationships with medical providers, and creating a viable medical outreach program.
This webinar is available to all members of Down syndrome support organizations interested in boosting their medical outreach efforts.
You can join us on Monday, October 21, 2013 from 8:00 PM-9:00 PM Eastern Time or Tuesday, October 22, 2013 from 11:00 AM-12:00 PM Eastern Time. If you'd like to register for the webinar, please send a confirmation email to Stephanie Meredith at info@lettercase.org and indicate which day you'd like to attend. Confirmed attendees will receive emailed instructions for joining the webinar.