Summer 2019 NEWSLETTERSarcoma News CornerDoxorubicin is an extremely effective soft tissue sarcoma drug, but it has serious side effects that limit maximum dosages. This company has devised a method that increased the maximum dose in mice by SIX TIMES! Wow! They plan to start a clinical trial for sarcoma soon. The frustrating lack of new treatment drugs for sarcoma is clearly spelled out in this informative article, as are potential ways to re-design sarcoma clinical trials. If you are on treatment, or off treatment with a compromised immune system, please be cautious. As indicated in this article, measles is spread through the air in addition to surfaces, so frequent handwashing isn't enough. A surgical procedure to gradually "stretch" normal bone to grow into the place of a resected osteosarcoma avoided amputation for this boy. Amazing is an understatement! Imagine surviving five types of cancer, including three types of sarcoma (rhabdomyosarcoma, chondrosarcoma, and leiomyosarcoma), all starting in your teens. The woman who did is now helping adolescent and young adult (AYA) cancer patients deal with their special needs. Inspiring!
The Sarcoma Alliance has exciting programs during the month of July to raise awareness for this rare cancer and to honor everyone affected by sarcoma. Want to get involved? Here are some ways to raise awareness for this rare cancer:--Join our Fundraising Campaign for Sarcoma Awareness Month --Shop on our online store and wear your Sarcoma Alliance gear during the month of July ----Share our infographics from our Facebook News Page with your contacts! --Embrace the color yellow theme! Light up your city square in yellow, put a yellow sunflower wreath on your home, etc. Get creative and then share your pictures and stories with us at info@sarcomaalliance.org or on our Facebook support group page. 2019 Sarcoma ExchangeThe Sarcoma Alliance is presenting the 2nd Sarcoma Exchange at the Miami Airport Marriott September 27-29, 2019. Participant feedback from the first pilot program was overwhelmingly positive and we expect this to be part of our annual programming. The Sarcoma Alliance’s Sarcoma Exchange is an educational event dedicated to sarcoma patients and the people who support them. Join us at this special meeting designed for sarcoma patients, survivors, caregivers, family members, patient advocates, and medical specialists, to exchange information about current therapies and available resources, and develop relationships with others in the sarcoma community. Registration for this program is now open! Space is limited, so please reserve your spot today. Visit us on Facebook!Sarcoma Alliance News Page: Sarcoma Alliance Support Group: |