|
On October 15, Pregnancy and Infant Loss Remembrance Day, we released Coping with Loss: Down Syndrome as a free, online book by Stephanie Hall Meredith and Nancy McCrea Iannone to offer support to families who have experienced a miscarriage or lost a baby or child with Down syndrome. Because most people with Down syndrome live long lives, the loss can be particularly isolating and devastating.
These parents tend to describe their loss in terms of losing their child, their community, and their identity, and they often deal with insensitive comments about the diagnosis or health issues while coping with grief. So we created this book to help them find comfort and support, and we hope this resource gives Down syndrome organizational leaders a way to reach out during a time of need. The book covers topics like coping with grief; dealing with comments and the practicalities of loss; helping siblings cope; and finding resources. This book also features the stories and photos of families who have experienced the loss of a child with Down syndrome
and who provide their personal insight.
|
