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REGISTRATION IS OPEN!

Download the flyer to share with patients and their support networks.

Registration is now open for the Marfan Foundation’s 2026 Global Virtual Conference, taking place June 15–18, 2026.

This free four-day event provides people living with Marfan, Loeys-Dietz, VEDS, Stickler syndrome, and related conditions - and their loved ones - access to trusted medical information, expert-led sessions, and supportive community connections.

Some Conference topics include:
• Cardiology and vascular health
• Genetics and research updates
• Exercise and physical activity 
• Mental health and quality-of-life issues
• Q&As with medical experts

We would appreciate your help in sharing this opportunity with patients and families who may benefit from attending.

DOWNLOAD AND SHARE THE FLYER

For more information and to register:
marfan.org/conference

The conference is completely virtual and accessible worldwide, with sessions scheduled across multiple days to accommodate varying schedules and time zones.

Thank you for helping connect patients and families to trusted education, resources, and community support.

Global Virtual Conference is offered free to our community thanks to supporters like you. Please consider donating to help us continue providing access to trusted information, connection, and support. Thank you! 

 
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About Us:

The Marfan Foundation, 22 Manhasset Avenue,

Port Washington, NY 11050, US, 516 883 8712

 

The Marfan Foundation drives research, education, and support – and builds community – to improve outcomes, save lives, and empower all people to thrive who are living with Marfan, Loeys-Dietz, Vascular Ehlers-Danlos syndromes and related genetic aortic and vascular conditions. We work tirelessly to advance research; educate patients and families, medical professionals, and the general public; and provide a supportive community for all affected by these conditions. To learn more, visit marfan.org. Donate

 

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