Dear Advocate-

Regardless of your political views, yesterday's election still poses many questions for the bleeding disorders community:

• Will the next Administration protect pre-existing conditions?
• Will Medicaid expand in my state?
• What’s likely to happen next in the litigation over the Affordable Care Act, and what does it mean for me?
• What legislation should I expect in my state in 2021?

While we don't have all of the answers, we understand the concerns.

As always, we are here to support the bleeding community regardless of the political climate. While it may be only be online for now, we will continue to be on Capitol Hill and at state legislative days to make sure your voice is heard, to provide leadership and guidance to our community, and to fight for policies that protect patients’ access to care. We are actively watching, listening, and participating in policy work at the state and federal levels on your behalf.

Our community has a legacy of grassroots advocacy work by being informed, staying involved, and taking action. We ask that you make a commitment to stand with HFA and when encouraged, make your voice heard!  

Below are a number of resources to help you become better informed, understand our policy priorities, and ways to connect with your elected representatives. Together we are stronger.

Remember, advocacy is in YOUR blood.

Access to Care is Our Bedrock Principle

People with bleeding disorders depend, to an almost unparalleled degree, on access to quality, affordable health care. We are committed to defending and promoting access to safe and effective care and treatments, and access to the quality, affordable coverage that pays for such care.

There are a multitude of policy issues facing the bleeding disorders community.  Be informed and learn more about issues such as accumulator adjuster programs, protections for pre-existing conditions, step therapy, and more. As a grassroots organization, we support the community by providing information and tools to participate in monitoring, advocating, and supporting federal and state public policies that impact the lives of people living with bleeding disorders.

Now is the time to be an engaged, active advocate. 

Connect with Your Elected Officials

As a citizen, one of the most powerful ways to affect change is by contacting your elected official. Use this resource to follow the issues important to the bleeding disorders community and then write, call, or tweet your legislator.

Make plans to join us during our upcoming Week of Advocacy & Virtual Fly-In to make your voice heard with your legislators.