No Images? Click here
Sharing Resources at the American Academy of Pediatrics Conference
If you'll be attending the American Academy of Pediatrics Conference in San Francisco October 21-24, we'd love for you to stop by our National Center for Prenatal and Postnatal Resources booth #2429. We're right next to the AAP Resource Center and Relaxation Station.
We'll be displaying printed samples of all our resources from Lettercase and Down Syndrome Pregnancy
which are available free online, and we'll have discounted books available as well. We'll also be having a daily drawing for packets of resources about Down syndrome and other genetic conditions, including the following:
- Understanding a Down Syndrome Diagnosis in English and Spanish, as well as bifolds in 6 additional languages
- Understanding a Turner Syndrome Diagnosis bifold
- Delivering a Prenatal or Postnatal Diagnosis
- Diagnosis to Delivery: A Pregnant Mother's Guide to Down Syndrome in English or Spanish
- Welcoming a Newborn with Down Syndrome: A New Parent's Guide in English or Spanish
- Your Loved One Is Having a Baby with Down Syndrome for family members and friends supporting new and expectant parents
- Coping with Loss: Down Syndrome for parents who have experienced miscarriage or the loss of a child
If you're unable to attend the conference and would like to place a discounted order, please visit the Lettercase/Down Syndrome Pregnancy Bookstore by October 31.
Beyond the Genetic Diagnosis: Providing Parents What They Want to Know
We'll also be available to discuss our recent article published with Dr. Robert A. Saul in Pediatrics in Review, "Beyond the Genetic Diagnosis: Providing Parents What They Want to Know" (with available CME credit) We'd love for you to stop by and discuss!
Abstract
Clinicians need to provide accurate, up-to-date, and balanced information to parents following a prenatal or postnatal diagnosis of Down syndrome and other genetic conditions. Families want information about the genomic outcomes and medical issues, but they also want information about life outcomes and social supports. Because the anticipated outcomes of a condition can change significantly based on available social support, health care, and services, it is important for clinicians to stay up-to-date about new developments and credible, medically reviewed information about Down syndrome and other genetic conditions to access resources for clinical care.