New 10th Anniversary Diagnosis to Delivery book available and lots more great news!

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Cover of Diagnosis to Delivery

Down Syndrome Awareness Month Book Sale and Updated Diagnosis to Delivery Book!

This is the last week of Down Syndrome Awareness Month and a perfect time to stock up on materials about Down syndrome! All of our materials are available free online, but some doctors and parent advocacy groups like to have printed materials to give new and expectant parents at the moment of diagnosis. 

This month, you can purchase discounted Lettercase and Down Syndrome Pregnancy products from our bookstore for 20% off, including our new 10 Year Anniversary Edition of Diagnosis to Delivery: A Pregnant Mother's Guide to Down Syndrome for expectant parents preparing for the birth of a baby with Down syndrome:

Lettercase Resources

Medical practices and hospitals often use the printed Lettercase resources when discussing a prenatal diagnosis or screening results to expectant parents first receiving the news. All condition-specific resources are reviewed by representatives of national medical and advocacy organizations. Also great for advocacy organizations to share with medical providers through medical outreach programs!

  • "Understanding Prenatal Screening and Testing" bi-folds in English or Spanish ($1.50 each)
  • Understanding a Down Syndrome Diagnosis in English and Spanish ($8) 
  • Understanding a Down Syndrome Diagnosis bi-folds in 10 different languages ($4 each)
  • "Delivering a Prenatal or Postnatal Diagnosis" bi-folds for medical providers ($1.50 each)

Down Syndrome Pregnancy Resources

Medical practices and Down syndrome advocacy organizations often use the Down Syndrome Pregnancy Resources for new parents and expectant parents who are preparing for the birth of the baby and have more detailed questions. Great for gift baskets!

  • NEW: Diagnosis to Delivery: A Pregnant Mother's Guide to Down Syndrome 10 Year Anniversary Edition in English or Spanish ($12 each)
  • Welcoming a Newborn with Down Syndrome: A New Parent's Guide in English or Spanish ($12 each)
  • Breastfeeding and Down Syndrome ($12)
  • Your Loved One Is Having a Baby with Down Syndrome ($8)
  • The Congratulations Project hard cover ($32) and soft cover ($17)
  • Coping with Loss: Down Syndrome for those who experience loss through miscarriage, still birth, or the death of a child ($8)

If you're interested in placing a discounted order, please visit the Lettercase Bookstore by October 31. 

Order Books
Stephanie Meredith Storytelling for genetic counselors video

"Diagnosis to Delivery" Co-Author, Stephanie Meredith, Storytelling for Genetic Counselors

At a Genetic Support Foundation event, "Diagnosis to Delivery" and "Welcoming a Newborn" Co-Author, Stephanie Meredith, used humor to share what she wished genetic counselors would have told her 20 years ago after the birth of her son with Down syndrome.

Watch Video
 
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Free Online Training for Medical Professionals

Take a look at our new free online training modules through the University of Kentucky's Human Development Institute for medical professionals and students to improve the diagnosis experience and long-term patient outcomes! PHT 201 reviews the history of disability rights and the impact on outcomes; PHT 204 covers best practices for delivering a prenatal diagnosis (with video modeling); and PHT 205 covers best practices for delivering a postnatal diagnosis (also with video modeling). PHT 206 is a fee-based course that combines PHT 201, 204, and 205 into one course for .5 genetic counseling CEUs through NSGC.

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Free Online Medical Outreach Training for Advocacy Organizations

Check out our free online training modules for medical outreach directors at parent advocacy organizations, as well as downloadable resources to help them  engage in prenatal medical outreach and build relationships with medical providers. 

Resources include templates for introduction letters, Lunch and Learn presentations, medical office outreach scripts, role play activities for training, and more.

 

Sarah Lawrence College Study about the Impact of Prenatal Testing on the Lives of People with Down Syndrome and Their Families

Sarah Lawrence study flyer
 
Down Syndrome Pregnancy
downsyndromepregnancy.org
stephanie.meredith@uky.edu
Part of the National Center for Prenatal and Postnatal Resources at the University of Kentucky's Human Development Institute
 
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