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June News for You!

Down Syndrome Innovations (formerly Down Syndrome Guild) offers services and supports at every age and stage to help your baby grow and thrive.

This monthly newsletter is created just for you and your family!

 
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Email Amy
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We can't wait to see you at the Grand Opening celebration for our new Lifelong Learning Campus THIS SATURDAY from 9-11 am! Please bring your whole family and participate in our fun scavenger hunt to explore our new building; learn about new services and supports; meet our team; enjoy birthday cake (it's our 37th birthday!) and more! You will also be entered into a drawing for fun prizes!  

Please note: for the safety of our members, we ask that visitors wear masks while inside the building.

RSVP for the Grand Opening

"Dash For Down Syndrome" 5K Transitions to a FUN Run/Walk!

Register for Fun Run/Walk

THIS SATURDAY at 8 am!

5916 Dearborn Street
Mission, KS

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Also this Saturday is our first 5K fundraiser with the Start/Finish taking place at our new campus!

Due to circumstances beyond our control, we are unable to barricade and redirect traffic along the entire route—so, we switched to a "Fun Run/Walk!" This means the 5K is untimed because there may be times on the route that participants might have to wait to cross due to traffic, etc. 

Untimed means more family-friendly! So be sure to register (by Thursday 6/17 at 5 pm) for your whole family and enjoy a lovely run/walk for a great cause! You won't want to miss out on getting our "limited edition" Dash For Down Syndrome shirts, which were made in our new building assisted by a few adults with Down syndrome!

Find your "happy pace" at our FUN Run/Walk before enjoying our Grand Opening!

Register for Fun Run/Walk
Register for Parent Gathering

Our next New Parent Gathering will take place (in-person) on Saturday, August 14th! Be sure to REGISTER, so we have appropriate accommodations available!  We know these gatherings are a game changer and connecting with other families is a wonderful way to find support. 

“Thank you for the wonderful welcome to the Down syndrome community! It will be so great to walk this path together.”

-Sam & Josh Speer

Register for New Parent Gathering
 
A Dad's Message

If you’re a dad and you recently learned your child has Down syndrome, this dad has an important message for you >>

At Down Syndrome Innovations, we celebrate you every day! Please contact our team if there is anything we can do to support you or your family.

And be sure to join our Dads Appreciating Down Syndrome (DADS) Facebook group where you can post questions and meet other days virtually. 

A Dad's Message...

Complimentary Consultations

Let’s talk and see how our team can support you! We offer 30-minute appointments to families, in-person or via zoom, so we can learn about your needs and provide recommendations for services and supports that are most relevant to the current stage of your journey. 

We want to make this process as easy as possible for your family!

If you are not sure what you need or how we can help, we encourage you to sign up for a free consultation!

There is something we can do at every step of the journey to support your family!

 

Email Amy!

DS Connect Registry

DS-Connect® is a powerful resource where people with Down syndrome and their families can:

  • Connect with researchers and health care providers.
  • Express interest in participating in certain clinical studies on Down Syndrome, including studies of new medications and other treatments.
  • Take confidential health-related surveys. These surveys are aimed at better understanding of the health of people with Down Syndrome across their lifespans.

Learn more here  >>

National Down Syndrome Congress Convention

Each year, thousands of people from across the globe attend the NDSC Annual Convention. This is a wonderful opportunity to hear the latest information about best practices for supporting people with Down syndrome from world-renowned experts.

The convention is virtual this year from June 21-26. Registration is $99 and you will have access to the recordings for 90 days after the event.

Review the schedule and register here.  >>

Words of Hope

Laura & Matthew Nelson

"I'm reading a book right now where a family in the 1960s had a child diagnosed with Autism. The lack of understanding, therapy, programs, and HOPE at that point for both autism and unfortunately, even for Down syndrome, is astounding. I say a prayer of thanks every time I pick up the book as I'm reminded again and again what a blessing Pathways is for Matthew, so many other kids, and for us parents, too.

I look at Matthew's future with hope...and not the kind where you squeeze your eyes shut and 'hope' things will be ok. I feel confident that he's being prepared for a good life and confident that he has the resources to help him through any difficulty. Hope is such a beautiful thing! Thank you to Marie, to Sarah, Jessie, Megan, Tyler, Amy, the interns, etc., etc., for all you do!"


~Laura Nelson, Mother of Matthew
Matthew (17) participates in Pathways Therapy Services

 

Have you “connected” with us yet? We encourage you to fill out our contact form TODAY!

A Website Page Just for You!

Don't miss your dedicated section on our new website! This is where you can find the most up-to-date information for your family!  >>

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MISSION
Our life-changing support and services enable people with Down syndrome to live to their fullest potential.


VISION
We serve as the expert resource and lead community mobilizer, sharing knowledge and creating solutions for people with Down syndrome.

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