No images? Click here
Upcoming Support Groups
💚 Western Sydney In Person Group Chat -- 12th March
💚 Life After Lymphoma Online Group Chat -- 12th March
💚 Canberra In Person Group Chat -- 19th March
💚 Impacted by DLBCL Online Group Chat -- 26th March
💚 Impacted by Lymphoma Online Group Chat -- 7th April
💚 Indolent Lymphoma Online Group Chat -- 29th April
💚 Hodgkin Lymphoma Online Group Chat -- 7th May
If you are having trouble registering for an event, please contact our nursing team at nurse@lymphoma.org.au
Webinars and in-person education events are led by lymphoma experts who discuss the diagnosis and treatment of specific lymphoma subtypes and key research and treatment updates.
💚 Hodgkin Lymphoma Free Online Event - Thursday March 6
💚Follicular Lymphoma Free In person/Online event -- Thursday April 10
💚Treatments: CAR T - cell therapy & Bi-specific Antibodies Free Sydney in person event -- Tuesday May 13
For more information and to register for these events, please check the information below.
Hodgkin Lymphoma Free Online Event
Join us on March 6 for a free Hodgkin Lymphoma Webinar with Dr Nicole Wong Doo and Lymphoma Australia. If you’ve been diagnosed with Hodgkin Lymphoma and want to hear from a leading expert, this session is for you. Don’t miss this opportunity to connect, learn, and feel supported!
Details:
Date: Thursday 6th of March 2025.
Time: 5pm AEST (NSW/VIC/ACT time).
Venue: Online virtual event.
Register Here or via the button below
Follicular Lymphoma Patient Webinar &Seminar In Sydney
Join us online/in-person in Sydney as we host experts and Haematologists presenting on the latest must-know information for people diagnosed with Follicular Lymphoma.
Details:
Date: Thursday 8th April
Time: 4pm (NSW/VIC/QLD/ACT Time)
Venue: Concord Repatriation General Hospital, Sydney (Room to be confirmed – we will email the details closer to the date).
Register Here or via the button below
CAR T-cells & Bispecifics Seminar – Everything you need to know about these treatments
Join us in-person in Sydney as we host experts and Haematologists presenting on the latest must-know information about CAR T-cell therapy and Bi-specific antibodies.
Details:
Date: Tuesday 13th May
Time: 12:30pm-3:30pm (NSW/VIC/QLD/ACT Time)
Venue: Join us in person at Shangri La Hotel, Sydney (See location here)
Register Here or via the button below
Legs Out for Lymphoma is Back in 2025!
Get ready to move this May! Legs Out for Lymphoma returns as Lymphoma Australia’s signature fundraising event, bringing our community together to get active and raise awareness. Staying active is so important—especially for those going through treatment and beyond—as it can help improve well-being and recovery. We love it when our friends, family, and lime community join in on the active fun too—getting lime and getting their legs out for lymphoma!
This May, choose your challenge—walk, run, cycle, or dance—and help make a difference. Stay tuned for details on how to join!
Let’s make Legs Out for Lymphoma 2025 the biggest yet!
Following recent regulatory meetings, Pharmaceutical Benefits Advisory Committee (PBAC) and Medical Services Advisory Committee MSAC new treatments have been recommended for eligible Australian lymphoma and CLL patients:
Newly diagnosed Chronic Lymphocytic Leukaemia (CLL) and Small Lymphocytic Lymphoma (SLL) – all oral, fixed duration combination of Ibrutinib plus Venetoclax tablets
Mycosis Fungoides. (CTCL) - Ledaga
Relapsed/refractory Large B Cell (LBCL) - expanded access to axicabtagene ciloleucel (Yescarta), a CAR-T cell therapy for large B-cell lymphomas (2ND line therapy)
Diffuse large B-cell lymphoma (DLBCL) - Epcoritamab (Epkinly) has been granted provisional approval in Australia for the treatment of adult patients with relapsed or refractory diffuse large B-cell lymphoma (DLBCL) after two or more lines of systemic therapy. It is currently listed on the PBS the Epkinly Access Program (EAP) has been created to provide eligible patients access to epcoritamab
We’re excited to announce our new partnership with Gathered Here, Australia’s most trusted free online will platform.
Leaving a gift in your will is a simple yet powerful way to make a lasting impact. If you’d like to include Lymphoma Australia in your will, you can now do so completely for free—and it only takes a few minutes.
At Lymphoma Australia, gifts in wills help ensure that Specialist Lymphoma Care Nurses can continue providing vital support to patients and their families, through diagnosis and beyond. By including a gift in your will, you’ll create a legacy of care, helping Australians affected by lymphoma receive the guidance and resources they need.
If you have any questions or would like to discuss your bequest, please call our team on 07 2113 4148 or email fundraise@lymphoma.org.au.
Anne’s Story: Healing Others Even After She’s Gone
When Anne was diagnosed with lymphoma, it was a journey she never expected—one filled with uncertainty and challenges. But through the hardest days, she found comfort in the care of Lymphoma Australia's dedicated Lymphoma Care Nurses.
One of the first things Anne received was a Patient Treatment Support Kit, filled with practical resources and thoughtful items to help her through treatment. It made her feel cared for, reminding her that she wasn’t alone. Alongside the compassionate support of her nurses, the kit brought reassurance and hope when she needed it most.
Grateful for the kindness and care she received; Anne wanted to give back. Before she passed away, she made the generous decision to leave a gift in her will, ensuring that others facing lymphoma would receive the same support she had.
Today, Anne’s legacy lives on. Her gift helps fund the vital work of Lymphoma Care Nurses and ensures that more patients receive the care and support that made such a difference in her life.
Anne’s generosity continues to change lives—ensuring no one faces lymphoma alone.
You too can leave a lasting legacy. Learn more about Gifts in Wills and write your free will today.
Managing Nausea
Nausea, or feeling sick, is a common side effect that many people get when having treatment for lymphoma.
Causes:
Chemotherapies, surgery, radiotherapy and some immunotherapies can cause nausea which can lead to vomiting if not managed well. This usually happens in the first few hours to days after treatment.
It is triggered from a part of your brain called the vomiting centre. Several signals can trigger nausea, but the main cause from chemotherapy occurs in an area of your brain called the chemo-receptor trigger zone, which reacts to chemicals or medicines in your blood.
Many patients who experience nausea and vomiting after chemotherapy can also develop anticipatory nausea. This means you may feel nauseous before coming into the hospital for treatment, or once you get there even before treatment begins.
Management Strategies:
Prevention of nausea is much better than treatment. Some simple management strategies to do this include:
eating light or bland foods in small amounts throughout the day
try foods or drinks with ginger in them
drink plenty of fluids to stay hydrated (at least 2-3L a day)
suck on hard lollies, ice blocks or ice during chemotherapy
keep cool and relaxed before and after treatment
identify and avoid triggers that make you feel sick
make sure you take anti-nausea medication as prescribed
Talk to your health care team if your medication is not working or if your nausea is not controlled – there are other options that may work better for you. For more information, visit Nausea and vomiting - Lymphoma Australia
Everyone’s lymphoma and CLL experience is different. Our Lymphoma Care Nurses are here to help patients and families navigate the health system, access the most up to date information about lymphoma and to take the fear of the unknown out of the lymphoma journey.
Please call our nurse on 1800 953 081
You can email us on nurse@lymphoma.org.au
Leave a lasting legacy. By including Lymphoma Australia in your Will, you can help provide vital support to lymphoma patients and their families. Learn more here
