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May 2025 | Newsletter No.5 | #ncukintheloop
PATIENT STORY
A Chance Discovery, by Hayley
Neuroendocrine Cancer Site: Lung (Typical Carcinoid)
"My GP persuaded me that I really ought to be kinder to myself"
NEW PODCAST
In this episode of the Not Just NE Cancer podcast, our CEO and Co-Founder Catherine Bouvier, talks to Tanya Hills, Global Patient Engagement Lead at Boehringer Ingelheim.
Together, they explore:
Common misconceptions about the pharmaceutical industry
How patient organisations and pharma can work together
NEUROENDOCRINE CANCER UK IN THE NEWS
"I had no idea I was dying - and then I found out on the NHS app"
In this deeply personal article, Melanie recounts the shocking moment she discovered a diagnosis of atypical lung carcinoid — a rare form of neuroendocrine cancer — through the NHS App, having lived symptom-free for years without any knowledge of the disease.
NEW BLOG
Why Self-Advocacy Matters in a Neuroendocrine Cancer Diagnosis
Self-advocacy is about speaking up for your needs, asking questions, making informed choices, and ensuring you’re heard throughout your healthcare journey.
NEW WEBINAR
Bill Harris and Elena Vrana from The Christie, discuss:
What clinical trials are and their phases
Online tools for trial recruitment
The importance of patient participation
A neuroendocrine cancer clinic patient case study
FEATURED FUNDRAISERS
We’re incredibly grateful for our amazing and supportive community. In recent weeks, a remarkable group of runners took to the streets in support of Neuroendocrine Cancer UK — raising awareness, generating vital funds, and paying tribute to their loved ones.
At the same time, one of our inspiring patients living with neuroendocrine cancer opened her garden to the public and shared her beautiful mosaics to raise money, while also answering questions about her condition.
Together, they’ve raised thousands and helped spark vital conversations about a cancer that is too often overlooked.
Thank you so much!
A HUGE THANKS
While we love to shine a spotlight on individual fundraising achievements, we want to extend our heartfelt thanks to everyone who supports Neuroendocrine Cancer UK. Your dedication, passion, and creativity make an incredible difference.
Did you know there are so many ways to get involved? Whether you're baking sweet treats for Cakes for a Cause, taking the plunge with a skydive, or challenging yourself with a marathon, there’s a fundraising activity to suit everyone.
Visit our fundraising page below to explore the possibilities and start planning your next adventure today!
JUNE'S WEBINAR: Neuroendocrine Cancer of the Lungs
SPEAKERS: Professor Mansoor, Consultant in Medical Oncology, The Christie NHS Hospital
WHEN: Date: 10th June 2025 | Time: 6.00 - 7.30pm
NEUROENDOCRINE CANCER UK'S STRATEGY
‘No more blind spots: It is time to see neuroendocrine cancer clearly’
We are excited to introduce our new strategy, designed to enhance our impact and drive meaningful change in the neuroendocrine cancer community.
Help Us Reach More Patients
We're connecting with hospitals to raise awareness of our services and ensure more patients get the support they need.
We'd love to hear from you if you can help by sharing our information with your hospital team.
Click the button below for more info and to volunteer!
Feedback please
Since this is a new format for our newsletter, we wanted to check in and see how we're doing. We’d appreciate it if you could take a moment to answer two quick feedback questions below.
Thank you
We look forward to seeing you next month and keeping you in the loop!
Neuroendocrine Cancer UK
