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August 2025 | Newsletter No.8 | #ncukintheloop

 
 
 

Hello again,

Apologies for the confusion — the earlier version of this email contained some errors. Please find the corrected version below.

Thank you

Neuroendocrine Cancer UK

 
 
 
 
 
 

PATIENT STORY 

Illness Upon Illness, by Katie

Neuroendocrine Cancer Site: Pancreas

"I am more than the sum of my illnesses; more than the language used to define them. "

READ STORY
 
 
 
 
 
 
 

AUGUST WEBINAR READY TO WATCH

Surgical Management of SI-NET and Mesenteric Nodal Disease

Watch consultant surgical oncologist Mr. Sam Ford from Queen Elizabeth Hospital, Birmingham, in a 30-minute pre-recorded presentation on the surgical management of small bowel neuroendocrine tumours (NETs) and mesenteric nodal disease.

 
 
 
 
WATCH OUR WEBINARS
 
 
 
 

NEUROENDOCRINE CANCER UK AMBASSADOR SERIES

By Carolyn

 

"I was invited to be an Ambassador in 2023, after being an active member of several of the private online Patient Support Groups (PSGs) on Facebook and attending many patient education meetings since my diagnosis 21 years ago"

READ CAROLYN'S STORY
 
 
 
 
 
 
 
 
 
 

WELCOME TO OUR NEW AMBASSADOR 

Kerie-Anne Ivory

 

We’re delighted to introduce Kerie, who joins us as a Neuroendocrine Cancer UK Ambassador. Diagnosed with a small bowel NET in 2012 at just 37, Kerie has undergone major surgeries, radiotherapy and now lives with cancer.

READ KERIE'S STORY
 
 
 
 
 
 
 

INCA (International Neuroendocrine Cancer Alliance) PATIENT EMPOWERMENT 

Cathy facilitated a discussion with members of the INCA community from Australia, Africa, USA, India, UK & Norway to share insights and experiences, and to explore how we can collectively strengthen the voice of patients in shaping their care and the systems that support them.

 
 
 
 
 
READ MORE HERE
 
 
 
 
 
 
 
 

NEW INITIATIVE PUTS PATIENT VOICES AT THE HEART OF NEUROENDOCRINE CANCER RESEARCH

We’re proud to announce the launch of a James Lind Alliance (JLA) Priority Setting Partnership in neuroendocrine cancer. This national initiative will bring together patients, carers, and healthcare professionals to identify and prioritise the most important unanswered questions in diagnosis, treatment, and care—ensuring future research focuses on what matters most to those affected.

READ MORE HERE
 
 
 

RESEARCH UPDATE

PROFESSOR SAM FORD

Please watch our video of Professor Samuel Ford, the NCUK-sponsored Surgical Specialty Lead (SSL) for neuroendocrine cancers speaking from the Royal College of Surgeons with an update after an SSL meeting. 

 
 
 
 
 

PATIENT EDUCATION EVENT 2025

We’re delighted to invite you to our in‑person Patient Event in Glasgow this November! Join us for an inspiring day of guest speaker presentations, meaningful conversations with doctors, and the chance to connect with fellow patients. Register via the button below.

Event Details:

  • Date: Saturday 8th November 2025
  • Time: 10:00am – 3:00pm (lunch included)
  • Venue: Glasgow (Just a 10-minute walk from Glasgow Central Station
 
REGISTER HERE
 
 
 
 

PATIENT SUPPORT GROUPS

Every week we offer a variety of support groups designed to meet the diverse needs of our community. With sessions led by caring staff or community facilitators, you’ll find a safe space to share stories, gain insights, and grow stronger together.

PATIENT SUPPORT GROUP CALENDAR
 
 
 
 
 

FEATURED FUNDRAISERS

We’re incredibly grateful for our amazing and supportive community. In recent weeks, a remarkable group of runners took to the streets in support of Neuroendocrine Cancer UK — raising awareness, generating vital funds, and paying tribute to their loved ones.

Together, they’ve raised thousands and helped spark vital conversations about a cancer that is too often overlooked.

Thank you so much! 

 

CHARITY FOOTBALL MATCH

IN MEMORY OF DAVID (DIPPA) HIPWOOD

On the 10th of August, a charity football match was held in memory of David (Dippa) Hipwood at Monckton Recreation Centre. This was a chance for family, friends, and work colleagues to remember David while supporting Neuroendocrine Cancer UK.

A friend of David, Gary Braithwaite set up the event and he told us “Apart from the odd blister and an achy back it was an incredible day”

On the day the teams were led out by David's sons, Lewis and Cal. As captains in the battle for Dippa’s Memorial Trophy. Friends, family, and former colleagues stepped onto the pitch to play their part in remembering Dippa.

The game finished 5-1 to Team Callum!

Together they have currently raised an amazing £3471.13, with David's ex employer pledging to donate another £1500 to the total - Thank you so much from the Neuroendocrine Cancer UK Team.

 
 
 

A HUGE THANKS

While we love to shine a spotlight on individual fundraising achievements, we want to extend our heartfelt thanks to everyone who supports Neuroendocrine Cancer UK. Your dedication, passion, and creativity make an incredible difference.

Did you know there are so many ways to get involved? 

Visit our fundraising page below to explore the possibilities and start planning your next adventure today!

CLICK HERE TO VISIT OUR FUNDRAISING PAGE
 
 
 
 

SEPTEMBER WEBINAR:  NETWorking for Life: With the Power of Peer Support

SPEAKERS: Neuroendocrine Cancer UK Ambassadors, led by Chrissie Barlow with contributions from Kath Lewis, Carolyn Evans and Polly Bell. With support from Jon Brooks.

 

WHEN: Date: 22nd September 2025 | Time: 6.00 - 7.30pm

REGISTER HERE
 
 
 

RACE PLACES - SIGN UP NOW!

Neuroendocrine Cancer UK received no government or NHS funding, nor grants from larger cancer charities. We rely entirely on the generosity of our community to support this vital work, for which we are deeply grateful. 

If you'd like to get involved and support us, take a look at the fundraising calendar below: 

PLACES STILL AVAILABLE FOR VITALITY LONDON AND GREAT SOUTH RUN

REGISTER YOUR INTEREST HERE
 
 
 

Feedback please

Since this is a new format for our newsletter, we wanted to check in and see how we're doing. We’d appreciate it if you could take a moment to answer two quick feedback questions below.

Thank you

FEEDBACK
 
 
 
 
 
 
 

We don’t have NHS or government funding. We don’t have grants from the larger cancer charities. 

We are solely reliant on the generosity of members of our community to fund our ongoing work, to whom we are so grateful. 

 
I'D LIKE TO DONATE TO NEUROENDOCRINE CANCER UK
 
 

We look forward to seeing you next month and keeping you in the loop!

Neuroendocrine Cancer UK

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Neuroendocrine Cancer UK

Holly House 

74 Upper Holly Walk 

Leamington Spa

Warwickshire

CV32 4JL

Registered Charity Number 1092386

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