NCUK's Not Just NE Cancer Virtual Series

Hello and welcome to our first summary of our 'Not just NE Cancer' virtual series. Throughout January we looked at Neuroendocrine Cancer symptoms.

We particularly focused on the following Neuroendocrine Cancer sites:

Upper GI | Lower GI | Lung | Skin

To help raise awareness of these complex cancers, we produced the below symptom awareness graphics. Please feel free to save and share.

SURVEY

We also asked you to get involved and have your say in our monthly survey. We had an incredible response and received 248 completed surveys! Thank you to everyone who took the time to answer our questions, we will be sharing the results throughout February.

VIDEOS

This month semi-retired GP, David talked to us about the symptoms he experienced for 13 years prior to diagnosis. We also featured several medical videos from the experts. You can watch them all below:

PODCASTS

Real life experiences, practical advice and everything in between. Whether you are diagnosed with Neuroendocrine Cancer or another rare or less common cancer, our podcast series cover topics from initial diagnosis, treatments and follow up, looking after your mental health and the professional perspectives from those involved in your care. Hosted by Catherine Bouvier and produced by Neuroendocrine Cancer UK. We hope this series answers some of your questions or provides a source of support – or both, after all, this is not just NE cancer.

Episode 1: NCUK CEO, Catherine Bouvier speaks to Ambassadors, Maxine and Simon about their symptoms prior to diagnosis with Neuroendocrine Cancer.
Further information: - MEN1 / - Small Bowel

Episode 2: NCUK CEO, Catherine Bouvier speaks to Debra and Michelle about their symptoms prior to diagnosis with Neuroendocrine Cancer.
Further information: - Lung Neuroendocrine Cancer Primary / - Rectal Neuroendocrine Cancer Primary

LISTEN HERE

Thank you to this month's video and podcast guests for sharing your personal stories and also to the medics, for your time and knowledge.

FEBRUARY

This month we will be focusing on 'Cancer Diagnosis'.

We will be discussing topics and providing support for the following areas:

Getting the Right Care
Being Prepared - Useful Questions for Your Appointments
Emotional Support
Neuroendocrine Cancer Terminology & Abbreviations

Again, this month you will have access to videos, podcasts and much more, from those who have experienced diagnosis first-hand, and from the professionals involved in your care.

You can find out more about our virtual series here ➡️

About Us - Neuroendocrine Cancer UK

A diagnosis of cancer is one of the greatest challenges anyone can face. Being diagnosed with a rare or uncommon cancer can have additional consequences, not least in terms of awareness, early diagnosis and access to expertise. Feelings of isolation, fear, uncertainty and anxiety are not uncommon.

Neuroendocrine Cancer UK exists to address the unmet needs voiced by the Neuroendocrine Cancer community, to support patients and their loved ones with the physical and psychological burden of Neuroendocrine cancers.

In 2020, Neuroendocrine Cancer UK (formerly known as NET Patient Foundation) rebranded. We changed our name to better reflect our community, building on the foundation we have laid down over the last 17 years (2002 – Living with carcinoid, 2006 – NET Patient Foundation, 2020 – Neuroendocrine Cancer UK). We want to reduce confusion, and increase awareness of this cancer type and by giving us a more focused and explanatory name, we can better serve our community.

The ethos and mission of the charity remains the same – to support all affected by Neuroendocrine Cancer: to support and inform patients and families from diagnosis, enabling access to the best care and treatment, whilst stimulating Neuroendocrine Cancer research, increasing national awareness and influencing improvements in outcomes.