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February 2025 | Newsletter No.2 | #ncukintheloop
SAME BUT DIFFERENT
We’re thrilled to share that our CEO, Catherine Bouvier, has been featured in the latest edition of Rarity Life! Her article, Empowering and Supporting the Neuroendocrine Cancer Community, raises vital awareness about neuroendocrine cancer and the challenges faced by those living with it.
We’re proud to be part of this incredible publication by Same but Different, which highlights stories, experiences, and insights from across the rare disease, disability, and cancer communities.
PATIENT STORY
Tim’s Type 3 Gastric Neuroendocrine Cancer Story
Neuroendocrine Cancer Site: Stomach – Type 3
Hospital: Kings College London
Date Diagnosed: September 2024
"My NET journey started, like so many others, by accident. Shell-shocked, at home, I started to madly research."
WEBINAR
In this educational webinar, recorded in February 2025 and presented by Nikie Jervis, Director of Support Services at Neuroendocrine Cancer UK & NMC registered nurse, terminology in neuroendocrine cancer care is discussed, including:
- What do we mean by terminology?
- Why (and how) is it used
- Common prefixes, root words and suffixes
- It’s use in neuroendocrine cancer
- Scans and Bones
NEW PODCAST
In this episode of the Not Just NE Cancer podcast, the first of 2025, Nikie Jervis, Neuroendocrine Cancer UK's Director of Support Services and NMC registered nurse goes back to basics to explain 'What Neuroendocrine Cancer' is.
In conversation with CEO and Co-Founder, Catherine Bouvier Ellis, they discuss the function of our neuroendocrine system, how the cells work in that system and how they play an important role in the sending and receiving of messages from either our brain or endocrine system.
CAKES FOR A CAUSE!
Registrations Open!
Cakes for a Cause is a fundraising event where you can come together with friends, family, colleagues and your local community to raise critical funds to support those impacted by neuroendocrine cancer.
Cakes for a cause runs throughout the month of April. How and where you enjoy your cake is up to you! It could be a cosy coffee morning, an elegant afternoon tea, or simply enjoying a sweet treat in your home, office, school or park.
National Cancer Plan England 2025 – Consultation Open
The UK Government has launched a public consultation to shape England’s National Cancer Plan 2025, aiming to improve cancer diagnosis, treatment, and outcomes, especially for rare and childhood cancers.
Announced on World Cancer Day by Health Secretary, Wes Streeting, the plan prioritises early diagnosis, access, prevention, treatment, and research. Cancer charities welcome the initiative, emphasising patient voices.
BLOG
February is always an important month for Neuroendocrine Cancer UK. It is the month of World Cancer Day and Rare Disease Day which gives us the perfect opportunity to talk about the unmet needs of this misunderstood cancer.
World Cancer Day 2025-27's theme is “United by Unique" and puts people at the heart of cancer care.
On Friday 14th March, a Private Members Bill for Rare Cancers is due its second reading in Parliament. The aim of the Bill is to promote, encourage and support research in rare cancers - and for individuals better access and inclusion into clinical trials.
MPs usually travel back to their constituencies on a Friday - so we need your help to encourage your local MP to stay, attend the reading, and add their support for this Bill. For the Bill to move forward, we need at least 100 MPs in the chamber voting ‘aye'!
Find out how you can help us below:
We look forward to seeing you next month and keeping you in the loop!
Neuroendocrine Cancer UK
