Getting our Legs Out; Walk for Johnny Mannah; Lymphoma treatment updates & more
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Legs Out 2022!
We are so grateful for the generosity and support of all those who have taken the time to contribute. Thank you to everyone who has set up a fundraising page and shared it with their network.
A massive $88,000 of our first $100,000 target has been raised already!
This is the minimum cost for us to fund one Lymphoma Care Nurse. We really need your help to reach this target. The end goal is for $200,000 - LEGS do this!!
BUT WE NEED YOUR HELP. You can still sign up - take part this week or anytime during March. Share your involvement and share your fundraising page link with your networks. You will be so surprised how easy this is and how many people will donate to you, in support of Lymphoma Australia.
Every dollar helps us get closer to our target to fund Lymphoma Care Nurses and be there for the 18 Australians diagnosed EVERY DAY.
Why not get your work colleagues to join you? Form a team and create a challenge! Get the whole office to wear their shorts, fundraise and have some lime-tastic fun on Friday 11 March for Shorts Day.
This Friday 11 March is Legs 11 Shorts Day!
We want you to wear your shorts, show us your pins and get those legs out across Australia.
Hop into your shorts and really get those Legs Out for Lymphoma!
Get those shorts on at work, don some funky socks, climb to the top of a mountain, dance down the street, wear leg warmers, put your feet up! Nominate your CEO or manager to wear their shorts to all their meetings, let staff dress up in lime, and take a team photo in the foyer. Think flashbacks to working from home!
Be outrageous, be comical and help draw attention to #LegsOut4Lymphoma!
Be bold, be bright, have fun!
JOIN US for a special live Zoom walk for Legs 11 day! 11am-12pm (ADST) - Friday 11 March
Lymphoma updates
Zanubrutinib on the PBS for MCL
Australians with a relapsed and/or refractory Mantle Cell Lymphoma (MCL), a form of non-Hodgkin lymphoma, will have access to a new treatment through the Pharmaceutical Benefits Scheme (PBS).
An oral therapy, zanubrutinib is now approved for the treatment of adult patients with MCL who have received at least one prior therapy or in first line treatments for patients unsuitable for chemo-immunotherapy.
Mantle cell lymphoma is an aggressive, relatively rare type of non-Hodgkin lymphoma.
Zanubrutinib (BrukinsaTM) is a highly specific and novel BTK (Bruton tyrosine kinase) inhibitor; BTK is a protein that certain cancer cells need to survive. Like the previously approved ibrutinib and acalabrutinib, zanubrutinib irreversibly binds to the kinase resulting in a prolonged inhibition of its activity.
"Australia has some of the highest rates of non-Hodgkin’s lymphoma in the world, and I know Australian MCL patients will be welcoming the news today about BRUKINSA being added to the PBS,” said Sharon Winton, CEO, Lymphoma Australia.
Fact Sheet Updates
Have you seen our NEW patient fact sheets? A focus in 2022 is improving the health literacy in our resources. We have updated some of our fact sheets, with more to come, including new disease specific booklets.
View our new fact sheets here
Patient Support Groups
Community news
"Something I learned through my encounter with cancer, is that you're not the only person affected by it" - Johnny Mannah
Led by Tim Mannah, a group of walkers from the Cronulla Sharks and Parramatta Eels will walk a total of 35km from CommBank Stadium to PointsBet Stadium. The team will set off at 7am on Thursday 17 March, and aim to arrive at Cronulla by late afternoon.
Our walkers include: Tim Mannah, Luke Lewis, Dino Mezzatesta, Ben Ross, Craig Gower, Jonathan Docking, Isaac de Gois, Kaysa Pritchard, Paul Gallan, Jeremy Latimore, Adam Dykes, Simon Benstock, Jim Sarantinos, Nicholas Tynan, Brett Kimmorley, Dave Gower and James Graham.
Your support along the way would be greatly appreciated!
You are invited to take part on the day! Join us to cheer on the walkers as they commence from Parramatta at 7am, or in the afternoon meet us at Cronulla and do a lap of the oval with the walkers.
Please register your interest in attending.
