NAAF Board of Directors

We Are Stronger Together

Wherever you or your loved one is on their journey with alopecia, we are strongest when we come together as a community to support each other, and to advance research for treatments and ultimately a cure. 2023 is full of achievements all possible thanks to the support of friends like you: the second of two FDA-approved treatments, a revitalized patient conference, a new and improved website at naaf.org, the frequently viewed “You Are Not Alone Education and Empowerment” webinar series, and the inaugural Walk For Alopecia™, just to name a few. Please consider a year-end gift to continue this important work. Together, we can empower a better future for all those living with alopecia areata.

Molly Tuttle’s Custom Banjo
Auctioned Off to Benefit NAAF!

Our wonderful friend and community member, Grammy award winning singer-songwriter Molly Tuttle has teamed up with Deering Banjos and Ketch Secor of Old Crow Medicine Show to create a one-of-a-kind banjo. Modeled after the popular American Made Artisan Goodtime Two, Molly’s banjo is custom stained in NAAF’s colors and proudly bears NAAF’s symbolic tree logo on the peghead. The drumhead has been signed by both Molly and Ketch along with a handwritten line from Molly’s award-winning song Crooked Tree. It is the perfect holiday gift! Anyone can bid on the banjo between now and the auction’s close on Sunday, December 10th at 8 PM Eastern. All auction proceeds will be donated to NAAF.

Tell Your Legislators – Make Wigs Affordable!

Wigs should be affordable for patients with alopecia areata, and our legislation in both the House and Senate will help make that happen.  All you have to do is enter your name and address on the web page, and a communication will be automatically sent to your lawmakers urging them to support these bills.  

We’ve already surpassed our original goal of 1000 emails.  Help us meet our new goal of 2000 emails by the end of the year!

Catch Our Latest Webinar

NAAF’s recent webinar, Men & Alopecia Areata: Our Unique Experiences, has the community talking! Four men shared their perspectives on navigating life with alopecia areata, from interactions in school to job interviews and relationships. One attendee wrote, "As a father of a now adult child with alopecia, I wish I would've known better how to support and connect with my child around alopecia. Outstanding informative and practical webinar!" Another attendee said, “Honest sharing of experiences, and really solid advice from young men of character.”

In case you missed it, you can watch now on-demand!
 

Keya Trammell

New Webinar - Makeup Tips for Alopecia: Techniques for Eyebrows, Eyelashes, and More!

Many people with alopecia areata lose their eyelashes and eyebrows. If you are interested in learning makeup tips for creating the appearance of eyebrows and eyelashes, then this webinar is for you! Learn from a Chicago-based veteran makeup artist, Keya Trammell. Keya was diagnosed with alopecia totalis at the age of 2 and is now using her makeup skills to help the alopecia community feel confident and comfortable. Have your makeup pencils ready!

Join us for this live webinar taking place on Wednesday, December 13, 2023, at 7:00 pm ET / 6:00pm CT / 4:00pm PT.

This webinar is part of NAAF’s You Are Not Alone, Education and Empowerment Webinar Series,
supported by Eli Lilly and Company, Pfizer, and Sun Pharma.

Industry Partner Program: Supporting NAAF’s
 Mission and the Community

Each year, NAAF’s Industry Partner Program (IPP) brings together pharmaceutical and biotech industry leaders with a focus on alopecia areata (AA). IPP members work together with NAAF on common goals: encouraging the development of new treatments and ensuring that those treatments are accessible to all who want them. Importantly, IPP members also engage with and learn from the AA patient and caregiver community.  

Corporate members of the IPP support NAAF’s programs through their memberships. They participate in programs as well, often attending the annual Patient Conference and supporting Alopecia Areata Awareness Month. NAAF is grateful for the support of the 2023 IPP membership: Pfizer, Eli Lilly and Company, Sun Pharma, Legacy Healthcare, Bristol Myers Squibb, and Zura Bio.

Thank You to Our Industry Partners