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February 2026 | Newsletter No.14 | #ncukintheloop
Our Invisible Cancer Report sparks national conversations
Since its launch on World Cancer Day, the Invisible Cancer Report has achieved significant national and regional media coverage. It has been featured by over 40 media outlets, including more than six national newspapers, with coverage across the UK and an estimated reach of 238 million.
But the real success wasn’t the numbers — it was the conversations started, understanding shifted, and people telling us they felt seen and heard.
One particularly exciting outcome has been how often neuroendocrine cancer is being named and explained in media coverage. For a cancer that is so often misunderstood or overlooked, this visibility is vital, and it will make a real difference to awareness, recognition, and ultimately earlier diagnosis. We’ll continue to build on this momentum.
A huge thank you to all of you for sharing the report, please keep sharing and helping us reach even more people.
With Rare Disease Day this Saturday 28th, we have another important opportunity to highlight the report and the symptom checklist to remind people that not all rare diseases have rare or unusual symptoms — many are common experiences that deserve to be recognised and taken seriously.
Patient Story
“Self-advocacy is vital” – Andy’s story of pancreatic neuroendocrine cancer
Neuroendocrine Cancer Site: Pancreas
"Joining up the dots here was very difficult, but … I’m a great one for doing my own research, and I find it reassuring"
A day in the life of… a nuclear medicine technologist
Behind every advanced cancer treatment is a team of highly skilled professionals working at the intersection of science and compassionate care. In this article, Raquel Massa, a nuclear medicine technologist at The Christie NHS Foundation Trust in Manchester, shares her journey into nuclear medicine and offers an inside look at a rapidly evolving field.
Hospital: The Christie NHS Foundation Trust
Ambassador Spotlight
Hi everyone. My name is Kerie, and I became an ambassador in July 2025, so I am still a newcomer to the team, but I have enjoyed my time so far enormously – not least as part of the media campaign to raise awareness of neuroendocrine cancer on this year’s World Cancer Day by taking part in The Invisible Cancer Report.
Latest Webinar
Beyond the Primary: Understanding Metastatic Neuroendocrine Cancer –
Nikie Jervis (Director of Support Services and Policy and NMC Registered Nurse) explains what it means when neuroendocrine cancer spreads beyond the primary site. The session is aimed at helping patients and families better understand metastatic neuroendocrine tumours (NETs) and neuroendocrine carcinomas (NECs).
Help Us To Help Others
One of the most powerful ways to support our work is by setting up a monthly donation. Regular giving helps us plan ahead, grow our services and provide consistent support to people affected by neuroendocrine cancer when they need it most. As we receive no government or NHS funding, and no funding from larger cancer charities, we rely entirely on the generosity of our community — even a small monthly gift can make a real and lasting difference.
Cakes for a Cause - Register Today!
Cakes for a Cause is a fundraising event where you can come together with friends, family, colleagues and your local community to raise critical funds to support those affected by neuroendocrine cancer.
Cakes for a Cause runs throughout the month of March. How and where you enjoy your cake is up to you! It could be a cosy coffee morning, an elegant afternoon tea, or simply enjoying a sweet treat in your home, office, school or park. Now is the time to start planning!
Patient Support Groups
Every week we offer a variety of support groups designed to meet the diverse needs of our community. With sessions led by caring staff or community facilitators, you’ll find a safe space to share stories, gain insights, and grow stronger together.
All agreed and scheduled groups are listed on our Events Calendar : which is being currently populated with all agreed 2026 dates.
Fundraise for Us!
We’re incredibly grateful for our amazing and supportive community. we want to extend our heartfelt thanks to everyone who supports Neuroendocrine Cancer UK. Your dedication, passion, and creativity make an incredible difference.
Did you know there are so many ways to get involved?
Visit our fundraising page below to explore the possibilities and start planning your next adventure today!
