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October 2025 | Newsletter No.10 | #ncukintheloop
WELCOMING LISA WALKER AS THE NEW CEO OF NEUROENDOCRINE CANCER UK
CLICK ABOVE TO WATCH LISA'S VIDEO
We’re delighted to announce Lisa Walker as the new CEO of Neuroendocrine Cancer UK.
Lisa brings over 20 years of experience in healthcare and charity leadership, including co-founding and leading an organisation supporting people with Crohn’s disease.
Having been part of the Neuroendocrine Cancer UK team for more than three years, Lisa has already made a significant impact - raising awareness among healthcare professionals, enhancing research initiatives, and deepening engagement across our community.
PATIENT STORY
From Cramps to Clarity, by Andrew
Neuroendocrine Cancer Site Small Bowel
"They came about once a month, lasting only a day. Annoying, but nothing alarming. But by October, the cramps became more frequent – once a week, lasting two days at a time. That’s when I knew something wasn’t right."
AMBASSADOR ALAN REPRESENTS THE NEUROENDOCRINE CANCER COMMUNITY DURING A TRAINING EVENT WITH NOVARTIS
This month we're featuring another one of our Ambassadors, Alan Motyer-Lowndes. Alan has been an Ambassador for over 2 years now, and is a patient at The Christie Manchester. He's also a member of our Manchester Patient Support Group, and one of the judges for this year's Heroes 2025 Awards, and has also written a couple of patient experiences stories for us, which can be found on our website here:
A Business Man Blog & From Diagnosis to YouTube, by Alan
Back in August this year, we invited him to be ‘a patient voice’ representing the neuroendocrine cancer community during a training event with the pharmaceutical company, Novartis.
NEUROENDOCRINE CANCER UK HERO AWARDS
A huge thank you to everyone who submitted nominations and shared their truly inspirational stories! We’re now busy shortlisting our finalists, and very soon you’ll be able to have your say and vote for your favourites. Watch this space!
RAISING AWARENESS OF NEUROENDOCRINE CANCER FOR GPS
Neuroendocrine Cancer UK took to the stage at the recent Best Practice Birmingham event to shine a spotlight on why greater awareness of neuroendocrine cancer among GPs is so vital.
PATIENT SUPPORT GROUPS
Every week we offer a variety of support groups designed to meet the diverse needs of our community. With sessions led by caring staff or community facilitators, you’ll find a safe space to share stories, gain insights, and grow stronger together.
Click button below to view dates and locations for upcoming Patient Support Groups.
FEATURED FUNDRAISERS
We’re incredibly grateful for our amazing and supportive community. In recent weeks, a remarkable group of runners took to the streets in support of Neuroendocrine Cancer UK — raising awareness, generating vital funds, and paying tribute to their loved ones.
Thank you so much!
Over 70 golfers and 10 helpers came together for The Bruce Family, for a full day of golf, food, and fundraising in memory of Julie, their wonderful mum, raising an incredible £7,665.97.
Rachel took on a 10K, 30-obstacle mud trail run in honour of her amazing mum. Rachel smashed her £500 target, raising £590.00.
Nurse and NET patient advocate Birdie ran both events this year, raising £125.00 while balancing her demanding job administering Lanreotide to NET patients.
After an extraordinary health journey - from NET diagnosis to heart surgery - Rita wanted to give something back. She held a yard sale and craft stall, raising £460.00 and sharing her gratitude for the support and information that helped her through her recovery. 🌷
In memory of their dear friend and colleague Fiona, the team - Ross, Rona, Carol, Fiona, and Sarah - proudly walked together, raising £495.00.
A HUGE THANKS
While we love to shine a spotlight on individual fundraising achievements, we want to extend our heartfelt thanks to everyone who supports Neuroendocrine Cancer UK. Your dedication, passion, and creativity make an incredible difference.
Did you know there are so many ways to get involved?
Visit our fundraising page below to explore the possibilities and start planning your next adventure today!
NOVEMBER'S WEBINAR: Influence of neuroendocrine cancer on male & female health
SPEAKERS: Prof. Maralyn Druce, Professor of Endocrine Medicine, Consultant Physician and Endocrinologist at Barts Health NHS Trust.
WHEN: Date: 17th November 2025 | Time: 6.00 - 7.30pm
INSIDE PRRT: WHAT HAPPENS ON THE DAY
This month, six members of our patient community attended The Christie for PRRT (Peptide Receptor Radionuclide Therapy). For anyone preparing for this treatment, or a nuclear medicine scan, this article takes you step by step through what typically happens on the day – from arrival to aftercare.
Feedback please
Since this is a new format for our newsletter, we wanted to check in and see how we're doing. We’d appreciate it if you could take a moment to answer two quick feedback questions below.
Thank you
We don’t receive NHS or government funding. We don’t have grants from the larger cancer charities.
We are solely reliant on the generosity of members of our community to fund our ongoing work, to whom we are so grateful.
We look forward to seeing you next month and keeping you in the loop!
Neuroendocrine Cancer UK
