CATHERINE BOUVIER ELLIS STEPS DOWN AFTER 19 YEARS LEADING NEUROENDOCRINE CANCER UK 

After 20 years of exceptional leadership and unwavering dedication, Catherine Bouvier Ellis, the founding CEO, is stepping down. Catherine leaves behind a remarkable legacy, not only in founding and growing Neuroendocrine Cancer UK, but in championing the neuroendocrine cancer community globally through her work with INCA. This transition marks the closing of a significant chapter and the beginning of the next - with continued and growing strength, vision, and purpose.

AMBASSADOR LISA TAKES PART IN NURSE WEBINAR ON NEUROENDOCRINE CANCER UK

This month, we're featuring Lisa, who has been one of our patient ambassadors for three years now. Lisa, a Child Psychotherapist by profession, recently took part in a Nurse Webinar Education event with our colleagues at Neuroendocrine Cancer Australia. Lisa represented UK patients and told her story of a late diagnosis of Atypical Lung Carcinoid (Lung NETS). She said, "Looking back on my journey to diagnosis, there were moments when things could have significantly changed for me. Even to the point where, when I was being treated for suspected asthma, I was told I was using the inhalers incorrectly. I wasn't. But there seemed to be little suspicion that something even more serious may be going on."

Lisa, from Greater Manchester, lives with her husband and 2 children and remains under the care of The Christie NET Centre of Excellence (Lung team) in Manchester. You can read her full story here

PATIENT SUPPORT GROUPS

Every week we offer a variety of support groups designed to meet the diverse needs of our community. With sessions led by caring staff or community facilitators, you’ll find a safe space to share stories, gain insights, and grow stronger together.

Manchester Patient Support Group (PSG) had its largest turnout ever this month and we were delighted to welcome guest speaker, Raquel Massa, a nuclear medicine specialist at The Christie NET Centre of Excellence, Manchester.

Raquel came to chat about all things related to PRRT (Peptide Receptor Radionuclide Therapy) and definitely eased some of the anxieties patients face, when heading into any new treatment. Raquel also reminded us that if patients are feeling particularly  daunted by nuclear medicine scans, they can flag this up to staff who will do their utmost to help. Staff are knowledgeable and regularly trained to handle patients' fears - and in some cases, can arrange for nuclear medicine scans to take place when departments are quieter and less daunting.

Click button below to view dates and locations for upcoming Patient Support Groups.

FEATURED FUNDRAISERS

We’re incredibly grateful for our amazing and supportive community. In recent weeks, a remarkable group of runners took to the streets in support of Neuroendocrine Cancer UK — raising awareness, generating vital funds, and paying tribute to their loved ones.

Together, they’ve raised thousands and helped spark vital conversations about a cancer that is too often overlooked.

Thank you so much! 

The Big Half London 2025

On the 7th September, our incredible team of runners took on The Big Half in London, raising awareness and vital funds for Neuroendocrine Cancer UK. Each ran with their own powerful story and inspiration, and together they’ve made such an amazing difference.

A HUGE THANKS

While we love to shine a spotlight on individual fundraising achievements, we want to extend our heartfelt thanks to everyone who supports Neuroendocrine Cancer UK. Your dedication, passion, and creativity make an incredible difference.

Did you know there are so many ways to get involved? 

Visit our fundraising page below to explore the possibilities and start planning your next adventure today!

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