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Welcome to the Latest Edition of the Lymphoma Australia Community Newsletter
September was a big month with World Lymphoma Awareness Month and Go LIME. A huge thank you to everyone who went LIME to raise much needed funds and awareness for Lymphoma.
This September, our Go LIME campaign brought together patients, carers, healthcare professionals, hospitals, oncology units, and community members to raise awareness and funds to support the vital work of our Specialist Lymphoma Care Nurses for people affected by Lymphoma.
Together we've raised $31,856.11 (so far)!
Dee hosted a Go LIME Afternoon Tea at work, raising funds and spreading awareness among colleagues.
"I was diagnosed with Hodgkin Lymphoma in 2024 and have drawn on the support of Lymphoma Australia from the very start of this journey, through to remission and beyond. Lymphoma Australia made a world of difference for me as a patient, and I want that experience for everyone going through this. You're not alone."
Special shout-out to those who raised over $300 on their individual fundraising page and received a Go LIME T-shirt! Send us a photo at fundraise@lymphoma.org.au we'd love to share your celebrations.
There's still time to donate:
Help Shape the Future of Chronic Lymphocytic Leukaemia (CLL) Treatment and Support in Australia!
If you or someone you know is living with CLL or SLL (Small Lymphocytic Lymphoma), we invite you to take part in this anonymous survey. It will take 15-20 minutes and will help Lymphoma Australia improve future care by centring it around what truly matters to patients. Your voice and experiences matter to ensure your care and support is optimal, regardless of where you live.
We are proud to share a new practical guide for people diagnosed with aggressive lymphoma. The Aggressive Lymphoma Roadmap was co-created with people who have lived experience alongside clinical experts. This resource aims to help address gaps in information, support and treatment pathways.
A big thank you to all involved in bringing this important resource to life.
Download your copy below:
💚 in person, 💻 online
💻 Under 40's Online Support Group -- 2nd October
💚 Gold Coast In-Person Support Group -- 3rd October
💚 Cairns In-Person Support Group -- 7th October
💻 Partners and Carers Online Support Group -- 14th October
💚 Sydney In-Person Support Group -- 15th October
💻 Primary CNS Lymphoma Webinar -- 22nd October
💚 Perth In-Person Support Group -- 26th October
💻 Impacted By Lymphoma Online Support Group -- 30th October
💻 Impacted by DLBCL Online Support Group -- 4th November
💻 Indolent Lymphoma Online Support Group -- 26th November
💚 Melbourne In-Person Support Group -- 3rd December
If you are having trouble registering for an event, please contact our nursing team at nurse@lymphoma.org.au or 1800 953 081.
UPDATES IN MARGINAL ZONE LYMPHOMA
Hosted by Lymphoma Australia
Dr Jason Hu & Masa Lasica
NAVIGATING FERTILITY & MENOPAUSE DURING AND AFTER TREATMENT
Hosted by Lymphoma Australia
Professor Kate Stern, Aisling Murphy & Dr Genia Rozen
WHAT'S NEW IN MANTLE CELL LYMPHOMA?
Hosted by Lymphoma Australia & Professor Con Tam
ACCESSING CAR-T THERAPY FROM A REGIONAL, RURAL & REMOTE PERSPECTIVE
Hosted by Lymphoma Australia, sponsored by Gilead
Dr Allison Barraclough & Dr Safia Belbachir
Webinars and in-person education events are led by lymphoma experts who discuss the diagnosis and treatment of specific lymphoma subtypes and key research and treatment updates.
UPDATES IN PRIMARY CNS LYMPHOMA
Free Online Webinar
A/Professor Matthew Ku
Matthew is a clinical and laboratory Haematologist at St Vincent's Hospital, Melbourne.
Join us for a free online webinar exploring the latest in Primary Central Nervous System (CNS) Lymphoma. This session will cover current treatments and future care approaches, and is tailored to patients, families and carers of those affected by Primary CNS Lymphoma.
Spaces are limited so register below to secure your place.
🗓 Date: Wednesday 22 October 2025
🕓 Time: 4:00pm - 5:30pm (AEDT)
📍 Location: Online via Zoom
💻 Cost: Free (registration required)
New Treatments for Lymphoma are on the way!
⚠️ Australia has a complex regulatory process to follow before we can have new treatments available in Australia. However, it is pleasing to report that the following therapies have been recommended by the Pharmaceutical Benefits Advisory Committee at their July meeting for listing on the PBS.
The inclusion of these treatments as a potential therapy for eligible subtypes could make a significant difference in outcomes for some patients.
Whilst this does not mean we have patient access (yet) it is a big step forward.
💚Acalabrutinib (in combination with bendamustine and rituximab, ABR) for the first line treatment of Stage III or IV MCL in patients who are ineligible for stem cell transplantation
💚 ADCETRIS® (brentuximab vedotin) in combination with doxorubicin, vinblastine and dacarbazine (A+AVD) for the first-line treatment of advanced (Stage III/IV) Hodgkin lymphoma
💚 Glofitamab (in combination with gemcitabine and oxaliplatin (Glofit-GemOx), for the treatment of patients with RR DLBCL who have received one or more lines of systemic therapy and are unable to receive autologous stem cell transplant (ASCT) or chimeric antigen receptor T-cell (CAR-T) cell therapy.
Lymphoma Australia will keep our community updated as they are processed in our HTA system.
We are thankful to have a partnership with GC Dental, who generously supply products that are included in our treatment support packs each year.
Included in our Treatment Support Packs is GC Tooth Mousse, which helps:
💚 Lubricate and moisten the mouth, tongue and throat
💚 Provide immediate comfort & relief
💚 Deliver extra protection for your teeth
Thank you GC Dental for helping support our patients!
GC Dental are committed to creating quality-of-life oral care products and educational resources that help people feel more comfortable and supported through their treatment journey.
We are inviting people living with lymphoma who have undergone treatment, to share their experiences by completing a short 5-10 minute survey below. Your insights will help contribute to shaping products and resources that make a meaningful difference for patients like yourself.
The team of health professionals and patients at Concord Hospital have developed an app called MyHodgkin MyHealth to help track long-term, or late side-effects of treatment. The hope is to improve long-term outcomes and experiences for those affected by Hodgkin Lymphoma.
Everyone’s lymphoma and CLL experience is different. Our Specialist Lymphoma Care Nurses are here to help patients and families navigate the health system, access the most up to date information about lymphoma and to take the fear of the unknown out of the lymphoma journey.
Please call to speak to one of our nurses on the Nurse Support Line 1800 953 081, or email us at nurse@lymphoma.org.au.
