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Welcome to our monthly Hope newsletter!
In this issue:
Help us shape the future of HOPE
Hope joins IIH UK national conference
Upcoming courses
Keep cool with Harry
If something in this newsletter catches your eye, if you'd like to explore ways we can work together, or if you have any feedback or topic suggestions, we’d love to hear from you. Get in touch at hope@h4c.org.uk
We need your help in shaping the future of HOPE
We are inviting our past and present Hope Programme participants to help shape the next decade of our work.
This is more than just feedback—it’s about building a community-led movement for HOPE. We want to understand what matters to you, what works, what doesn’t, and your vision for what self-management support should look like over the next 10 years.
Please answer as openly as you wish, everything you share is important to us.
The survey is open until the end of August. We will share the findings, plans and stories in the autumn, so you can see the difference your input makes.
Thank you in advance for helping us. We are grateful for you.
Anna Carlson, Hope 4 The Community CIC Head of Partnerships, with IIH UK conference attendees.
Hope joins IIH UK national conference
This month, our Head of Partnerships, Dr Anna Carlson was delighted to be out in the community, joining the IIH UK National Conference in Staffordshire on Saturday 7th June.
Idiopathic Intracranial Hypertension (IIH) is a neurological condition that causes raised pressure around the brain, often resulting in severe headaches, vision problems, and other symptoms. IIH UK, established in 2008, is the country’s leading voluntary organisation dedicated to supporting people living with IIH, raising awareness, and promoting research.
At the conference, we shared highlights from the Hope Programme for IIH, including practical sessions on improving sleep and the benefits of gratitude. Attendees also took part in a mindfulness session and heard first-hand experiences from people who have already completed the Hope Programme.
We are excited to be recruiting for the next programme, starting on 17th September.
July Hope courses
Check out the group-facilitated Hope courses starting in July or book onto the self-guided courses and start now!
Keep cool with Harry
The UK has been experiencing a heatwave. Here are a few tips from our mascot Harry.
💧 Keep your water topped up
🪟 Close the curtains and stay cool inside
🧓 Check in on someone who may need a hand
“Like having therapy on my own sofa. My time for me to think about me. Really enjoyed reading others thoughts and sharing together. IIH can be lonely but Hope gave me a feeling of community. I am not alone”.
- Donna, Hope Programme for IIH participant
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