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Nerve Centre - Your Quarterly News Update

Hi there,

In this Autumn edition of Nerve Centre, I’d like to personally thank you for your support of MSWA.

Click here or click the image below to watch the video message.

Thumbnail image of MSWA CEO Melanie Kiely with a YouTube icon overlaid.

Melanie Kiely
MSWA CEO

 
 
Photo showing four happy MSWA Albany staff after they saw the completed interior of their new Albany Services Centre

“We absolutely love our new Services Centre!”

This joyous photo captures the moment our Albany staff saw the completed interior of their new Services Centre.

At MSWA, we are excited that our new $7m Albany development is nearing completion, and that the adjoining High-Support Accommodation is also on schedule to welcome its first residents.

“It was awesome to see the facility for the first time. We were overwhelmed! It’s finally here! It’s unbelievably huge compared to our last facility. And there’s still furniture and physio equipment to come!”

- Caroline Clarke-Smith, Outreach Coordinator Albany (pictured far right)

THANKS TO OUR COMMUNITY OF SUPPORTERS

This state-of-the-art development is made possible by your generosity. In particular, participants in our Albany events (and their sponsors) have directly helped us to expand our footprint in the Great Southern, increasing our capacity to support regional people living with neurological conditions.

The recent MSWA Albany Ride saw just under 200 cyclists help raise over $42,000 (and it’s still climbing). An absolutely remarkable achievement!

You can check out some photos from the big day here!

Browse photo gallery
Three happy riders from the MSWA Albany Ride celebrating being the highest fundraising team this year

Albany Riders (above): Brad, Paul and Nick from Worst Pace Scenario, the highest fundraising team this year.

PS – missed out on the MSWA Albany Ride? Register for the MSWA Albany Swim below!

 
Research update
 
 
Photo of Dr Onno van der Groen overlaid with the text Researcher in Focus

Researcher in Focus: Dr Onno van der Groen

We are pleased to introduce you to a local researcher whose work has been directly made possible by you, our fundraising community.

Dr Onno van der Groen is leading the Motor Interventions in Neurological Conditions (MINC) trials at Edith Cowan University. The trials utilise modern gaming technology and an exoskeleton called ‘Mindpod’ (pictured above) to improve health outcomes for individuals living with neurological conditions.

Dr van der Groen explains:

“The Mindpod motion capture and gaming system enables fun exploration and practice using whole arm-hand movements to guide a dolphin in a gaming environment. This immersive and engaging technology is an innovative tool for intense training”

The MINC trials are part of a broader Research Program SPIN (Systematic Profiling in Neurological Conditions) which was founded at ECU in 2019 and has been generously supported by MSWA since its inception.

Read more
 
Get involved at MSWA
 
 
Photo showing three girls in fancy dress dancing by the side of a swimming pool, overlaid with the text MSWA Albany Swim

MSWA Albany Swim – Saturday, 14 May

The 2022 MSWA Albany Swim is a unique, family-friendly event that caters to people of all ages and capabilities.

This year we are celebrating our 10th annual event. It is an amateur swimming event that takes place at Albany Leisure and Aquatic Centre, where teams compete to swim the longest distance in a set 8-hour period.

The event allows you to have fun, whilst helping make a real difference to people living with neurological conditions in the Great Southern region.

Join us
 
A lady and young girl smiling while holding a handwritten sign that says "Thank you!"

Get your free Readathon t-shirt!

Get ready to read as much as you can this August! The MS Readathon has been inspiring kids to read more for 44 years, and this August, it will be more fun than ever before.

Reading takes kids on incredible journeys of discovery, awakens their imagination, and builds their confidence. This year, we have some new Ambassadors who will share their stories. There are plenty of prizes and incentives, and some fun activities to get kids (and adults) motivated to read.

Make sure you register your interest today, so you don’t miss out on your super cool free t-shirt, which will show everyone that you are reading this August to help families living with a neurological condition.

Register now
 
Promotional photo of the Mega Home Lottery house with the words Hurry almost sold out overlaid.

Last chance to call City Beach home!

Give yourself a chance to change your life (with a $3.7M Grand Prize Package) as well as the lives of thousands of Western Australians living with a neurological condition.

Buy a ticket today!

Hurry! Tickets are almost sold out and they won't last!

Buy tickets
 
Three people wearing race numbers and smiling after just completed Step Up for MSWA

Step Up for MSWA – Powered by ALTRAD: Sunday, 19 June

The 2022 Step Up for MSWA – Powered by ALTRAD is a stair climbing event where participants take on the 1,103 steps to the top of Perth’s tallest building – Central Park.

Challenges include the Mini Climb, One Up, Double Up and Multi-Climb.

With 4 different climb options to choose from there is something to suit people of all ages, abilities and fitness levels.

Step Up and make a difference for the thousands of Western Australians living with neurological conditions.

Join us
 
MSWA Stories
 
 
Photo of Margaret Cable and her husband, Brett, smiling while attending a family picnic and bbq

“Little did I know that I would need MSWA’s help one day”

“I used to donate, and I’d always buy a lottery ticket from MSWA,” recalls MSWA Client Margaret Cable. “Little did I know that I would need their support one day.”

Margaret was diagnosed with MS two years ago, at the age of 59. But her journey with MS began over 15 years ago, when she first noticed a weakness in her right arm when raking the garden. Unfortunately, over the next decade, despite worsening mobility on her right side, visits to the GP and a specialist never amounted to a referral for an MRI.

It wasn’t until Margaret booked in to see a podiatrist for her walking difficulties that multiple sclerosis was first suspected. “I hadn’t even sat down and the podiatrist said, ‘Margaret you need an MRI to find out what your neurological problem is’.”

Continue reading
 
Portrait style photo of Julia Hewson wearing a red scarf

Pictured above: MSWA Client, Rhys Coffey, and Morre Coffey

Fundraiser in Focus: Rhys Coffey

Coffey’s cooking has done it again!

In January, Rhys Coffey held his second fundraising BBQ for MSWA and raised just under 5k for fellow Western Australians living with a neurological condition.

Over 300 people came to the Mangles Bay Fishing Club on a hot afternoon for a BBQ of epic proportions! The day was filled with raffles, a live band, cooking demonstrations, face painting, and activities for the kids, not to mention a quick dip in the ocean to avoid the heat.

Rhys, a BBQ aficionado, whose adventures have their own social media following, catered for the crowd with the help of his many supporters, including fellow MSWA Clients.

Rhys explains his reason for holding the event was to raise awareness and to give back:

"What the day meant to me was all about raising awareness for invisible disabilities and giving something back to the people who helped me transition to my new life with MS. It was about doing something for the community and raising money to find a cure. As I have said before, the way I do it is through BBQ, and being able to share something I love with a passion I have. It was simply amazing bringing over 300 people together in the name of charity through BBQ. It was one of the best days of my life! This is my second fundraiser and I’m going to continue doing them in the future as long as I can."

From all of us at MSWA, thank you Rhys.

If you are planning your own unique and amazing fundraising event for MSWA, the team at Nerve Centre would love to hear about it:

Get in touch
 
Did you know?
 
 
MSWA Client Tracey using the Mindpod exoskeleton to control a dolphin on a TV screen

Did you know our Clients are now using the Mindpod system in their weekly therapy?

If you’ve happened upon one of our Clients playing a video game while wearing a robotic exoskeleton recently, you can be forgiven for wondering what on earth is happening at MSWA’s Wilson facility!

We’ve recently installed a Mindpod system, a cutting-edge piece of wearable technology that restores and improves upper limb function for people with restricted arm movement.

What we love about this news is that the Mindpod is the end result of a local research trial funded by MSWA (we featured it at the top of this newsletter). It perfectly demonstrates that when you enter our lotteries, join in our events, fundraise or donate, you enable us to fund neurological research that goes full circle – out the lab and back into our Services Centres for the benefit of our Clients.

Read more about Mindpod, the MINC trials and MSWA’s commitment to research here:

Find out more
 
MSWA - We know neuro

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