Irene Clelland
CEO Arafmi
Hello everyone,
Here’s a question for you: Why do so many mental health carers have to do so much for the person or people they support?
Well in the past month, we’ve received a formal explanation. After the nation’s health ministers met on 16 August, they released the Analysis of unmet need for psychosocial supports outside of the National Disability Insurance Scheme. Behind the rather long-winded name the report details how many people, experiencing moderate or severe mental ill-health, in our families and our communities need these supports but are not receiving them from any health service. Hence the ‘unmet need’.
The figures are pretty astounding:
Australia: 493,600 people
Queensland: 92,010 people
Again, that’s the number of people not receiving the support that governments know they need.
Psychosocial supports include managing daily living skills and housing, navigating mental health systems, creating opportunities for a social life and accessing education and jobs. Sound familiar? This support
should be provided by psychosocial services, but very often lands in the laps of carers instead.
No wonder 46 per cent of mental health carers, who participated in our At What Cost? report say they, too, are experiencing mental ill-health.
Importantly, the unmet needs report didn’t include
much about the psychosocial needs of mental health carers themselves in these figures; there’s just not enough data around.
The unmet needs report was released after a coalition of mental health organisations, including Arafmi, and led by Mental Health Australia called for it to be made public. We hope now that the figures are out, state and federal governments will work out how to plug this massive gap with increased services.
It’s one reason we’re also backing the Queensland Alliance for Mental Health, the peak body for community mental health organisations, in its push for more funding for the sector in the lead up to the 26 October state election. You can check out the Alliance’s campaign here.
In the past couple of months the Arafmi team and I have spent a bit of time meeting both state and federal MPs, trying to raise awareness of the challenges faced by mental health carers. On a work trip through Canada I was able to share information and experiences with Canadian counterparts and the
Canadian Mental Health Commission. I found it really valuable to hear how carers are doing, in a country which has such similar systems. (And a chance for lucky me to fulfil a childhood dream of seeing the Rocky Mountains – just glorious.)
Keep an eye out in the next week or so for a special State Election bulletin from us, with information and resources for you to use to advocate for better recognition and support of carers.
Have a great month,
Irene
Each month explore a selection of articles we've curated especially for you.
Use your experience as a carer to help change the systemArafmi is inviting family, friends, kin, and community members who care for someone with mental ill-health to participate in a new Community of Practice.
What's involved: - meeting 4-6 times a year online
- sharing information and expertise on issues important to Queensland mental health carers, with input from guest speakers and experts
- developing and using skills to drive systems change, drawing on your Lived Experience (known as systemic advocacy).
It's an exciting time to get involved. Governments and services are increasingly looking to mental health carers to help redesign systems and services, and paying them for their time. Arafmi is also stepping up its advocacy efforts
on behalf of carers across Queensland. If you have any questions please contact the Advocacy team.
New Carers Action PlanTim Johnston, Lived Experience Policy Officer and Alex Tyson, General Manager - Carer Program and Advocacy (top right in the photo) were pleased to join Hon Charis Mullen, Minister for Child Safety, Seniors and Disability Services, and Multicultural Affairs, along with fellow carers and supporters, for a morning tea on 13 August. This event provided an opportunity to share real-life stories with the Minister and highlight the needs of mental health carers in Queensland. The morning also marked the launch of the QLD Carers Action Plan 2024-2026, which aims to enhance support for
carers and ensure access to essential services. Irene Clelland, Arafmi CEO, who is a member of the QLD Carers Advisory Council, contributed to the development of this plan.
Advocacy Brief: Sexual Safety of Consumers in Mental Health Inpatient UnitsThe National Mental Health Consumer and Carer Forum’s (NMHCCF) Advocacy Working Group has published its Advocacy Brief on the Sexual Safety of Consumers in Mental Health Inpatient Units, which you can view here.
Significant consultation with members of the NMHCCF was done to produce this work, including an online consultation on 10 July as well as the circulation of a survey. The Advocacy Working Group would like to thank everyone who was involved in this project and provided input.
Shape the Future of Youth Mental Health The Third National Child and Adolescent Mental Health and Wellbeing Survey, Young Minds: Our Future, aims to uncover how many young people experience mental ill-health and how this has changed over the past decade. To better support our youth, the Queensland Centre for Mental Health Research in partnership with Curtin University is seeking young people (16-24) and parents/carers of children (4-17) to join an advisory group for this important study.
National Carer StrategyOur Lived Experience Advocacy Team Lead, Sue Goodwin, Carer Program and Advocacy General Manager, Alex Tyson and three Arafmi carers recently attended consultations to help shape the design of a National Carer Strategy. The Australian Government has allocated $3.8 million for the development and implementation of this strategy over the next few years. We encourage you to share your thoughts on what matters most to you and how
you can be better supported in your role as a carer by completing the questionnaire. The deadline is 13 September.
Culture CareAynur Goss from our Culture Care Program connected with culturally and linguistically diverse mental health carers and promoted Culture Care by attending
events throughout August for Multicultural Queensland Month. Each event brought together people from diverse backgrounds to celebrate culture over authentic dishes, captivating dances and musical performances from around the world. These events included: - Luminous Festival, Queensland's largest multicultural event, held at South Bank
featuring a lantern parade - World Women, a targeted event for women held in Zillmere, attended by
Councillor Sandy Landers - World of Cultures Festival, showcasing the diverse communities in Logan.
Book your retreat at our Carer Hub
If you're interested in a retreat at the Carer Hub, please contact our team. Even a brief break can be rejuvenating, whether you're enjoying some time on your own or connecting with others. We offer flexible options to suit your needs, such as: - Overnight Retreats
- Day Only Retreats
- 3-day Inner
City Retreat
- Self-Care Workshop and Create and Connect activities in addition to a retreat.
We currently have spaces available for the “Day Only Retreat” on 17 September. We are now accepting names for the waitlist for the two-night retreat scheduled from 16-18 September. We offer monthly Inner City Retreats. These 3-day retreats include opportunities to connect with other carers, participate in wellbeing activities, and enjoy river walks. To book a spot or express interest in the
Inner City Retreats or day retreat workshops, please email our Carer Support Team. Thank you to a recent guest, a professional photographer, for capturing the stunning photo featured in the banner above.
Upcoming Program - Emotional CPR Training Workshop for 18-25 year oldsEmotional CPR (eCPR) training helps people to support themselves and others through an emotional crisis by utilising three simple steps of connecting, empowering, and revitalising. eCPR training is for everyone. People who use eCPR report that it becomes a way of life and strengthens their relationships with family, friends, co-workers, ourselves and the world. Free Workshop Details - Dates: 26-27 September, 10:00am-4:00pm
- Format: 12-hour interactive training, online and face-to-face in Fortitude Valley
- Extras: Lunch and snacks and access to an ongoing support group.
End of year workshopThe end of the calendar year can be a stressful and emotional time. From October, the Arafmi carer support team will be running an interactive workshop to support ourselves and others through those times. We will be sharing anecdotes, tips and tricks and explore scenarios together. Further details will be available closer to the time.
New Arafmi Workshop in September:
The Carer/Supporter Journey Join us for our new workshop, The Carer/Supporter Journey to learn from the experiences of other family members, friends, partners and unpaid carers who have supported someone with mental ill-health Using Australian research and experiences, we will explore potential situations and emotions we could experience, and skills to use, as we walk alongside the person we support. Contact the Carer Support Team for more information.
L to R: Wendy McCormick, Headspace, Alex Tyson, Arafmi and Arthur Poropat, Chair of
the Family and Friends Reference Group.
Family and Friends Talking about Mental HealthOn 12 August, families and friends caring for young people experiencing mental ill-health gathered with Headspace, Arafmi, and Carer Gateway at IndigiScapes in Redlands. The event provided a wonderful opportunity for connection and information sharing about support available for carers. Carers often prioritise others and may forget to care for themselves. This event was a valuable reminder of the importance of
self-care and that carers are not alone. Thank you to Headspace Capalaba for organising this event and supporting those who care for young people.
Thank youA big thank you to everyone who responded to the Arafmi Annual Carer Survey and congratulations to the 10 winners of $100 gift cards. Your valuable feedback is now helping us to plan for our future workshops, events, support services and advocacy activities.
Date Claimers - Mental Health Week and Carers Week Queensland Mental Health Week, from 5-13 October aims to promote mental health and wellbeing, reduce stigma and discrimination and celebrate the mental health and community sectors. This year’s theme, Connect for Mental Health encourages us all to take steps to support our mental health and that of our communities.
National Carers Week, from 13-19 October is an opportunity to recognise and celebrate our wonderful carers. The theme Millions of Reasons to Care, highlights the need to increase awareness of the many people who care for family, friends or kin.
Arafmi will be hosting and participating in various events, including a Carer Forum and a Carer Gala Dinner. Look out for more information which we will be sharing soon.
Save the date for Arafmi’s 2024 Mental Health Carers Forum – Wednesday 16 October 2024Find out about using your Lived Experience as a mental health carer to advocate for policies and services which better support you and the person you care for. Also, hear from key speakers including, Brian Herd, Australia’s leading expert on law relating to older people and future planning and Shanon Cooper, a mental health carer with extensive experience working in the human services sector. All this with morning tea, lunch and a bit of fun, too including massages, laughter therapy and a dance performance. This is a free event for mental health carers.
Brian Herd Brian is a partner at HopgoodGanim Lawyers in Brisbane. For some 30 years, he has practised in law relating to older people and their families including Advance Health Directives, retirement living and aged care, incapacity and decision making and family agreements. In his award-winning book, Avoiding the Ageing Parent Trap he offers advice and solutions to respond to the various strains and stresses that adult children will be exposed to in meeting the needs of their ageing parents.
Shanon Cooper Shanon is the mother of 8 and grandmother of 16, caring for multiple family members with mental ill-health. Shanon brings extensive Lived Experience and extensive knowledge of support services to the role of Advanced Carer Peer Worker and the Service Integration Coordinator for Metro South Addictions and Mental Health (MSAMH). With a strong aspiration to make a positive difference in the community, Shanon assist carers, clinicians and organisations to navigate the complex web of services that are available.
Atherton Coffee ConnectDay: Every 4th Tuesday
Time: 10:00am-12:00pm One of our carer support team members will be at a local cafe from 10:00am-12:00pm where you can drop in, have a chat and catch up with us and other carers. For more info contact the Carer Support Team.
In July, Susan and Arna joined Arafmi as part-time administration staff. They connected with us through Your Caring Way, a new program designed to help carers pursue their own goals, whether in training, education, volunteering, or employment.
Susan Susan has a background as a Technical Systems Analyst and Interior Architect, and she is also a dedicated carer and advocate, focusing on medical treatments, early intervention, and community events. Her goal is to help carers find the right support and resources, so they know they are not alone. Outside of work, Susan loves singing, performing, reading, creating arts and crafts, travelling, meeting new people, and trying new activities and cuisines.
Arna Arna finds Arafmi to be a perfect fit, thanks to our strong carer-focused team. She first connected with Arafmi through Carers Queensland while she was seeking support to care for her son's mental health complexities alongside his long-standing disability.
Her Lived Experience drives her passion to support other carers and advocate for their needs to be better understood by the government and the wider community. Outside of work, Arna enjoys walking her dogs, tending to her garden and chooks, and catching up with friends who are also carers.
Workshops
Online and face-to-face workshops are provided for carers each month and cover a range of topics to assist you. These include workshops to build skills, knowledge and confidence in areas like: - How to communicate with the person you support
- How to create and maintain healthy personal boundaries
- Learning what the NDIS is and how to apply for access to this for
the person you support
- Practical tools for carers – learn about resources and information to assist you at different points in your caring journey including tips for communicating with clinicians and templates to assist you.
Feedback from a recent workshop: I felt so encouraged today. Not so alone with tangible
‘hope’ that I can learn and grow more. I think that really says something about the workshop and your facilitation skills... I look forward to attending as many workshops as I can over time as life permits.
Arafmi Carer Event CalendarExplore Arafmi's free support programs. Our calendar includes tailored
support groups, workshops and events for mental health carers.
Free film event: UnconditionalAs part of National Carers Week, Carers QLD is hosting a free private movie screening of Unconditional, a film that delves into the lives of four unique carers. Watch the trailer.
Date: Friday 18 October
Time: 10.30am-12.30pm
Where: Red Hill Cinemas
RSVP: By 20th September
This is an invitation-only event with limited spaces.
Big Blue Table - Host an Event This October, Mental Health Month, Beyond Blue is inviting you to fight the stigma of mental health one meal at a time. Host your guests, share a meal, start meaningful conversations and help raise funds for those facing anxiety, depression and suicide.
Online Health ServicesQueensland Health
Do you have regular appointments with Queensland Health? Save time and skip the hassle of travel and parking with Queensland Health’s video call (Telehealth) appointments. Click here for more info.
Health Direct
The site uses a symptom checker to understand your healthcare needs and links you to the service that is right for you. Click here to access the service.
New Group: Weekly Carers Coffee Drop InWellways Carer Gateway is starting a new weekly, carers group on 12 September. Meet with other carers in a supportive space to make connections, share knowledge and experiences allowing you to get to know other people in similar circumstances. Date: Thursday 12 September, then
weekly
Time: 10:00am-12:00pm
Where: Carer Gateway UMG office,
1993 Logan Road, Upper Mount Gravatt Q 4122 No RSVP is required, simply drop in.
World Suicide Prevention Day
Tuesday 10 SeptemberSuicide touches countless lives, but together, we can make a difference. By raising awareness, breaking the stigma, and encouraging open conversations, we can help reduce the number of suicides around the world. This World Suicide Prevention Day (and every day) start a conversation.
WellMob Online Wellbeing ResourceWellMob brings together online wellbeing resources in one place made by and for mob. Here you will find websites, apps, podcasts, videos, helplines, social media and online programs all with a focus on social and emotional wellbeing. The resources topics include:
relationships, men and women specific resources, parenting, gender identity, elders and elderly, young people, disability, mind, body, culture, keeping safe and healing.
Always here for youYou can call Arafmi’s 24 hour Carer Support Line to share your feelings, receive support, find new resources and learn helpful coping skills to help you in your caring role.
It’s comforting to know that when you need to talk – someone who understands will be there – at any hour. Call us on 1300 554 660 (Brisbane) or 1800 351 881 ( Regional QLD)
Arafmi acknowledges Aboriginal and/or Torres Strait Islander peoples as the First Nations peoples of Australia and recognises their continuing connection to country, waters, kin, and communities. We pay our respect to Elders past, present and future and are committed to ensuring that Aboriginal and/or Torres Strait Islander peoples voices are heard and respected across Queensland.
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