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Hi ,
Welcome to the July edition of Vitality!
We're excited to share that the annual MSWA Client and Community Forum returns on 3 September. Join us as we share an overview of the year ahead, developments in neurological research and innovative technology to support clinical care.
Additionally, STOP-MS and FIRMS-EBV clinical trials have commenced recruitment for trial candidates. This significant study will test whether antiviral medications against EBV can help slow MS or reduce symptoms. Read more below.
You may also be aware of the National Disability Insurance Agency (NDIA)'s release of the new NDIS Pricing Review. Alongside our fellow disability support providers across Australia, we are extremely disappointed in the NDIA's decision to reduce the pricing of vital therapy services, MSWA is advocating in many different ways to challenge this decision by the NDIA. Read more here.
As always, there is plenty of opportunities to get involved in MSWA through our workshops and events!
Stay warm, and happy reading!
Research News
MS Australia's response to the new
NDIS Pricing Review
MSWA shares the sentiment of MS Australia to express our extreme disappointment with the 2024-25 NDIS Pricing Review. The changes to NDIS pricing for therapy supports and travel will have a significant impact on the allied health services delivered by MSWA impacting our high-needs Clients, transport and distance.
MS Australia is calling for the NDIA to reconsider the impacts of these new pricing arrangements; introduce a tiered pricing system for therapy supports; establish clear independent pricing; and a flexible, participant-focused and sustainable pricing model for the NDIS.
Source: MS Australia, July 2025
New treatment for relapsing remitting MS recommended for PBS listing
In May 2025, the Pharmaceutical Benefits Advisory Committee (PBAC) recommended adding ublituximab (Briumvi®) to the Pharmaceutical Benefits Scheme (PBS) for treating adults with relapsing remitting MS.
Ublituximab takes less time to administer and needs less frequent dosing than some other similar treatments, while being just as effective.
The process now moves to the Federal Government for final approval for inclusion on the PBS. This would make ublituximab more affordable and accessible for people with relapsing remitting MS.
Source: MS Australia, June 2025
AI supporting neuro conditions research
AI is amplifying the trajectory of research by enabling researchers to analyse data with increased efficiency. Machine learning makes quantifying relationships between different variables, far easier. This is leading to deeper understandings, earlier diagnosis, better management strategies and the potential development of new cures for neurological conditions.
Source: Australian National University, 2025
Reshaping disease treatment
The Personalised Medicine Centre promises to reshape the way diseases are treated based on a person's unique genetic makeup, lifestyle and needs. The project aims to bridge the gap between scientific discovery and clinical applications to improve patient's outcomes. The collaborative research project is led by Murdoch University and Perron Institute.
Source: Murdoch University, 2025
Final patient dosed in Phase 2 stroke trial
Dosing of patients in Argenica Therapeutics’ Phase 2 clinical trial of the neuroprotective drug ARG-007 in acute ischaemic stroke has been completed. The drug could potentially extend the therapeutic time window for medical intervention. MSWA contributed to the pilot phase of the project in 2017.
Source: Perron Institute, June 2025
NDIS Pricing Review: The price is NOT right!
The Raw Nerve Podcast latest episode addressed the 2024-25 NDIS Pricing Review. Together with other sectors, MS Australia opposes the price reductions, claiming that these decisions will put strain on its member organisations and will significantly impact the Australians living with neurological conditions and their wider community.
Source: MS Australia, July 2025
Get involved in research
MS and EBV: Clinical Trials
Two new trials—STOP-MS and FIRMS-EBV—will test whether existing antiviral medications against EBV can help slow MS or reduce symptoms like fatigue. Australians can register their interest and check eligibility now through MS Trial Screen.
Shape the future of health & medical research
Have your say on how consumers and the community are involved in health and medical research. Express your interest to join one of the 24 roundtables being held nationally, to give your input on the draft Statement.
Eating patterns for MS
This cross-sectional online study by the University of Wollongong, aims to discover the enablers or facilitators following an eating pattern for someone with MS, and the barriers that prevent adherence to a dietary pattern.
STRONG-MS
This study examines the effectiveness, acceptability and feasibility of ONERO: a supervised, High-Intensity Resistance and Impact Training (HiRIT) program that may improve bone health and muscle strength in people with MS.
Australia MS Longitudinal Study
The AMSLS collects real life data from people living with MS. It is a survey-based research study that has been running since 2001. The data collected is used by policy makers and MS medical and support services to criteria a positive change and improve the lives of people with MS. The AMLS is always accepting new participants.
PLATYPUS
PLATYPUS adaptive clinical trial will seek to reverse neurological damage caused by progressive multiple sclerosis. The first of its kind in Australia, the flexible nature of the multi-arm, multi-stage adaptive design will allow researchers to investigate the potential benefits of several existing medications simultaneously.
Health and wellness
These groups and workshops are facilitated by MSWA professionals, specialising in neurological care. With expert guidance, participation in these groups and workshops will help equip you with practical strategies, creative outlets and opportunities to share your experience in a safe space. We can talk to you about funding options if the below support services are not included on your NDIS or HCP plan.
Bunbury Carer Group
Be part of a supportive network that understands the unique challenges a carer faces. Join our carer group where your experiences are valued and respected. We'll navigate the caregiving journey, share the load and find strength in your collective experiences.
When: Thur 7 Aug, 10am - 12pm
Where: MSWA Bunbury Centre
E: trudy.tuckey@mswa.org.au
Lymphoedema: The importance of looking after your legs
Swelling in the legs is a common and often overlooked issue for individuals with mobility impairments. This presentation will explore why swelling occurs, practical management strategies, and exercise options.
When: Thur 14 Aug, 5pm - 6pm
Where: MSWA Kelmscott Centre
E:jorgio.khayrallah@mswa.org.au
Wilson Continence Clinic
MSWA Nurses are conducting Continence Clinics to identify and manage urinary and bowel issues, helping people to regain confidence and improve their quality of life through practical management strategies.
When: 28 Aug, 9am - 12pm
Where: MSWA Wilson Centre
E: nursing.metro@mswa.org.au
MSWA Bunbury Swim
Ready to make a splash at the next MSWA Swim event? MSWA Bunbury Swim returns, gather your team and take part in the seven-hour swim challenge support people living with neurological conditions in the South West region and beyond!
When: Sat,13 Sep
Where: South West Sports Centre
Register now!
Other Opportunities
MSWA Client and Community Forum
Join us for a day of neurological insights and connection! We’ll be presenting a range of interesting topics, including an overview of the year ahead at MSWA, developments in neurological research and innovative tech to support care.
When: Wed, 3 Sep, 9am - 4pm
Where: Telethon Speech & Hearing
Online: You can also join us online via live stream
West Coast Eagles vs Adelaide Crows
It’s the battle of the birds! The West Coast Eagles take on the Adelaide Crows at Optus Stadium on Sunday, 10 August. Enter below for your chance to score one of two double-passes on offer and witness the action-packed Sunday afternoon game! This giveaway is exclusive to MSWA Clients!
Could you be our next MSWA star?
We’re inviting one Client to take part in an exciting upcoming video project that will showcase MSWA and share a glimpse into your own personal journey. The professionally produced shoot will take place over two days. You will need to feel comfortable speaking to camera and sharing your story.
Thanks for reading!
