Your vital research update
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Hello,
Welcome to this edition of Vitality.
This month we are happy to share our expression of interest form for our Client Advisory and Co-design Committee, and another presentation from our Client Forum last year.
Take a look below.
Until next time, take care.
What's New?
As we move into 2023, we are intent on doing more to put you and all our Clients at the centre of everything we do.
As I mentioned in my letter at the end of last year, we want to hear from you and continue to keep listening, understanding, and actioning feedback. To achieve this, in February of 2023 MSWA will be establishing a Client (and carer) Advisory and Co-design Committee. This Committee will be a formal mechanism for MSWA Clients and their carers to provide input into MSWA’s Client services and service delivery models and processes, including how we communicate with you. This committee will establish a strong connection with the community and MSWA.
We are conscious that for the Committee to affect change, we need an enthusiastic and diverse group of people to volunteer to sit on it and contribute. We are therefore calling for nominations from now until 15 February, after which we will select the Committee that is representative of people with a variety of:
• Gender
• Cultural backgrounds
• Geographical locations
• Neurological conditions; and
• Needs or stage of their health journey
If we are oversubscribed, we will consider other avenues of participation.
If you or your carer (not MSWA carers) are interested, you can find the Terms of Reference here, which outlines the role and workings of the Committee.
Please take the time to read the Terms of Reference and if you are still interested, please fill out this form.
I would like to thank you and highlight the importance we place upon your feedback now and in the future. We look forward to the improvements we can achieve together with closer collaboration.
Kind regards
Melanie Kiely
CEO
This Month in Research
MSWA’s Annual Client Forum
Our next feature video from the MSWA Client Forum is, Transcranial Magnetic Stimulation (TMS) & Neuroplasticity from Perron Institute.
Stay Connected
Mindfulness & Connection Group
Are you interested in learning mindfulness for stress management?
Peer Coffee Catch-ups
Connect with others who live with MS over a coffee at our monthly catch-ups at various locations around WA.
Northam MS Peer Support Group
If you're in the Wheatbelt region and living with a neurological condition, join us in September at Bridgeley Community Centre.
Neuro Carer Group - Life-limiting Conditions
Caring for someone with a life-limiting condition? Get support and guidance from MSWA counsellors.
MS and Other Neuro Conditions Carer Support Group
Our monthly sessions welcome carers of people with any neurological condition.
Rockingham Carer Group
If you're a carer based in the Peel region, join us when we meet on the first Thursday of each month at a Rockingham community venue.
Introduction to Self-Compassion
This 7-week course encourages learning and discovering through exercises, personal reflection, and group discussions. We will hold the challenges of living with chronic illness in focus throughout the course, because Self-Compassion is particularly relevant to anyone living with a neurological condition or disability.
The workshop begins on the 13 March 2023.
MSWA holds a variety of events throughout the year for people living with a neurological condition, their families and carers. These range from physical exercise, to meditation, stress management and social interaction.
Get Involved
Click here or click the image above to learn about the Mindpod system.
SPIN Study
You are invited to participate in a research project, which is part of the Systematic Profiling in Neurological Conditions (SPIN) study. This project seeks to examine the feasibility of a contemporary gaming environment in people with MS.
If you’re interested in participating, click the button below.
Share Your Stories
If you have an interesting story you would like to share with our readers, we would love to hear from you.
