Your MSWA research update
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Hi ,
Welcome to the November edition of Vitality!
The final edition of Vitality for the year is here, bringing you exciting opportunities to engage in research and connect with your neuro community.
You can help shape the future of research for Australians living with neurological conditions through the MS Australia Lived Experience Expert Panel (LEEP). Read on to stay informed about the latest updates on neurological research across the nation.
There are also valuable opportunities to get involved in the festive season with the MSWA Butler Christmas Markets!
Happy reading!
Research News
Your voice matters:
Join MS Australia's Lived Experience Expert Panel
Are you passionate about driving positive change for Australians living with MS? MS Australia is currently recruiting for their Lived Experience Expert Panel (LEEP).
The initiative will gather expert insights from the MS Community and ensure a strong, authentic voice guides MS Australia's work in advocacy, research, policy, education and awareness.
Successful applicants will be selected for their ability to help achieve the goals of the LEEP and provide meaningful feedback on MS Australia’s policies, research, and communications.
Source: MS Australia, November 2024
Rising prevalence of MS across Australia
MS Australia supported researchers combined multiple research sources to calculate the number of Australians living with MS, which shows an increase prevalence over time, both nationally and in most states and territories. This has implications for the resources needed to treat and manage MS today and into the future.
Source: MS Australia, October 2024
Raw Nerve Podcast:
Crisis Toolkit unpacked
Having a plan can make all the difference. Dr Tennille Luker delves into emergency preparedness for people living with MS, guiding them in creating their own Crisis Toolkit. This podcast features Eilish Maguire from Australian Red Cross, Assoc Professor Yvonne Learmonth from Murdoch University, Jane Gilliand from MS Plus and Jenni Vanyai, who lives with MS.
Source: MS Australia, November 2024
Lifestyle habits to improve brain health
The brain’s ability to compensate for damage, known as “brain reserve”, can help protect against MS-related decline. A recent Australian study, gathered expert advice to identify lifestyle changes and strategies to improve brain health for people with MS. Next step of this study is to seek global agreement from experts on these recommendations, to ensure they are widely accepted and applicable.
Source: MS Australia, November 2024
Effects of elevated cholesterol on nerves
A lab model using stem cells derived from the skin of people with PMS was developed to investigate how increased cholesterol production may contribute to nerve damage. The study found that elevated cholesterol levels could have harmful effects on nerves. However, using a cholesterol-lowering drug showed potential in reducing these effects, suggesting a promising new treatment approach for PMS.
Source: MS Australia, November 2024
Get involved in research
Australian MS Longitudinal Study
The AMSLS collects real life data from people living with MS. It is a survey-based research study that has been running since 2001. The data collected is used by policy makers and MS medical and support services to create positive change and improve the lives of people with MS. Take part in this study to share your experience and shape MS research.
PLATYPUS
PLATYPUS adaptive clinical trial will seek to reverse neurological damage caused by progressive multiple sclerosis (PMS).
The first of its kind in Australia, the flexible nature of the multi-arm, multi-stage adaptive design will allow researchers to investigate the potential benefits of several existing medications simultaneously. Register your interest to take part.
Personalised Digital Nutrition Program for People with MS – Lived Experience Advisory Panel
The MS Nutrition Research Program, based at Deakin University and Curtin University, investigates links between diet and MS. Researchers have worked with the MS community to co-design a digital nutrition program, with next steps to develop clinical trials.
Researchers are looking to recruit people with MS to join their Lived Experience Consumer Panel. The Panel will be involved in the development and testing of a digital nutrition education program, Eating Well with MS that is tailored for people with MS.
Other Opportunities
MSWA Butler Christmas Market
Christmas comes to MSWA Butler!
This free and accessible community event, brought to you by MSWA Outreach and Accommodation, will have something for everyone, with beautiful hand-crafted stalls, delicious food, entertainment and door prizes.
This will also be an opportunity to tour our residential accommodation facility, offering modern units for independent living with access to 24/7 support.
Date: Friday, 13 December 2024
Time: 10am - 1pm
Where: MSWA Butler, 245 Butler Blvd
Thanks for reading!
