Walk 4 Epilepsy October 2023
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Edition 58, 2023
Hi Friend,
Welcome to this edition of Brainwaves. A primary focus within this edition is the “Walk for Epilepsy”.
This is the 3rd year that this National event is being held. People are encouraged to walk, swim, run or ride to raise awareness and donations for their local organisation.
I encourage you to visit the links below for the promotional videos and to register your participation.
I have received positive feedback regarding the research that I have included in the last 2 editions of Brainwaves. This edition has a link to a report focusing on Epilepsy and the family.
We have requested membership to the South East Asia Chapter with the International Bureau for Epilepsy.
This is an International umbrella network organisation comprised of more than 130 national epilepsy patient education and advocacy associations world wide.
Enjoy this Brainwaves and I always welcome your feedback and comments.
Kind regards
Wendy Groot, CEO Epilepsy Tasmania.
There are incentive prizes and more for those walking, riding, swimming or running.
Some of our Tassie team preparing to film our state promotional video.
Share your registration on social media to garner more support for your fundraising efforts.
Neil Balme, Former AFL Player for Richmond was diagnosed with Epilepsy in 2020 and has only now come public with his diagnosis in support of W4E 2023.
Monday 4 September marked the beginning of Include a Charity Week 2023. This is an annual, nation-wide, social change campaign that aims to raise awareness of the importance of having a Will, and encourages more people to include a charitable gift within it.
In support of the campaign, Willed will be offering Epilepsy Tas supporters 50% off full price Wills from Monday 4th to Sunday 17 September 2023. You will be able to redeem the offer in two ways; either by registering via your co-branded landing page or by entering the code IAC50 at checkout.
Good News Story -
Virginia writes -
Last month Amy (Peer Support L’ton office) and I (Registered Nurse L’ton Office) travelled to the North West Coast on an outreach visit. We started the day in Burnie with a Mental Health round table talking about services and programmes on the NW/W Coast. We both gained interesting and valuable contacts from this meeting.
Later that day we ran an Education session at a school and it was encouraging to spend time afterwards with teachers to hear their experiences teaching students with Epilepsy. It was great to hear positive feedback from them that they understood more fully what epilepsy is and its impact on education, family and social activities and how they as educators can make their school Epilepsy friendly for all.
Amy was also able to have contact with a family living with epilepsy and provide support and information to them.
The next day we travelled to Devonport to gratefully receive a donation from the Devonport North Rotary Club and hear how members were directly impacted with Epilepsy and its impact on family life.
We then met a Complex Care Coordinator Registered Nurse who supports people in the N & N/W regions assisting people with complex medical issues.
It was great to chat about Epilepsy Tasmania with her and further develop that relationship of referral.
In summary a very worthwhile experience getting out into the community to create and enhance relationships and spread the word of EpTas.
Tell us your good news. We would love to hear from you.
Education, Training and Administration
It is so encouraging to receive positive feedback from families and organisations in relation to the training and support we provide.
If you need Support, Emergency Management Plans, Information, Products, or Peer Support, please don’t hesitate to contact us on 03 6344 6881.
Upcoming Training - Worksafe Month October 2023
Tuesday 3 October 2023, 10-11AM, Amy, our Peer Support Coordinator and I will be facilitating a workshop entitled "Epilepsy Services, Supports and Health & Safety in the Workplace."
New Report Released - "Exploring Epilepsy and the Family"
This report was released on International day of families . It was prepared by the International Bureau of Epilepsy Global Youth Team. The authors were from Chile, Ireland, Canada and Australia.
Epilepsy Tasmania is considering how we might implement the recommendations.
October 18 2023
This is our official opening day and welcome to our new Launceston premises.
Our updated signs are in place, so you won't have trouble finding us on the corner of Willis/Boland Streets.
See you on the 18th if not before!
Download the Epilepsy First Aid Poster for Your Workplace
Place it in prominent positions around your workplace for both staff and customers.
“Never stop believing in Hope, because miracles happen every day"
Author Unknown
Epilepsy Tasmania is a not-for-profit community organisation improving the quality of life of Tasmanians with epilepsy, and those around them, through education, coordination and support.
