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From our Director
Prof Jennifer Tieman
RePaDD Director
(@JenniferTieman)
NPCW 2022: Talking about what is important
Now in its 27th year, NPCW is organised by Palliative Care Australia (PCA) and supported by the Australian Government Department of Health. It is Australia’s largest annual awareness-raising initiative held to increase understanding of the many benefits of palliative care. The theme for National Palliative Care Week 2022 is It’s your right. The theme seeks to raise awareness about the rights of all Australians to access high-quality palliative care when and where they need it. The campaign is also challenging a community perception that palliative care is a synonym for end-of-life care. PCA wants the community to know it is so much more than that. Anyone with a life-limiting illness has the right to live as well as possible, for as long as possible.
RePaDD updates
Aged care rights cannot be mere words on parchment
Written by Carolanne Barkla, Chief Executive, Aged Rights Advocacy Service. (@saagedrights)
Older people, their families, and the community, expect that palliative and end of life care is core business for aged care providers. This is a matter of trust between them, the provider and the government who funds the care component of aged care services. There is no doubt that many aged care providers are supporting older people receiving aged care services to die well, but clearly more needs to be done.
CareSearch: Improving access to and use of evidence in palliative care
This month’s release of the new Evidence Centre marks the final stage of the CareSearch portal development started in 2021. With an expanded repertoire of evidence resources in support of palliative care the new Evidence Centre simplifies access by adopting a clinician lens to evidence retrieval. From pre-appraised, practice ready evidence to the very latest Australian research studies in palliative care access to evidence is easier than ever. To help you get the most out of these resources CareSearch has also launched two training hubs within the Evidence Centre: Evidence Training and Translation Training. Here you can learn about implementing evidence-based change to improve patient care and accelerate the benefits emerging from research. Congratulations to the CareSearch team on this milestone achievement that complements the Community and Health Professional centres released in 2021.
RePaDD recognising National Palliative Care Week 2022
During National Palliative Care Week 2022, RePaDD held events to acknowledge the fantastic research being undertaken at Flinders University in palliative care. RePaDD would like thank the many contributors and supporters of these celebrations. Above is a snapshot of some of these events. Check out @RePaDD1 on Twitter to continue the celebrations.
Hear from Dr Deidre Morgan (@deidremorgan51), researcher from RePaDD, who shares some of her observations throughout her career so far in working with people who are dying. Deidre explores what carers can do to minimise discomfort and empower their clients and how we, as a society, can get better about talking about death and dying.
Congratulations to PhD Student Paul Tait
RePaDD PhD student, Paul Tait (@pallcarepharm), recently submitted his PhD by prior publication exploring how Australians living in the community with a life-limiting illness manage medications.
In the early nineties, Hepler and Strand coined the term pharmaceutical care to describe the whole gambit of duties a pharmacist performs. Pharmaceutical care involves “the process through which a pharmacist cooperates with a patient and other professionals in designing, implementing, and monitoring a therapeutic plan that will produce specific therapeutic outcomes for the patient”.
Welcome our new member, Shyla Mills
Shyla Mills is the CEO at Palliative Care Queensland (@PalliativeCareQ) a leading charity and peak body in Australia.
Inspired by international models of palliative care, Shyla has successfully led the introduction of several new public health palliative care programs at Palliative Care Queensland including Ambulance Wish Queensland (which when launched in 2019 reached over 155 million people online) and public education programs, Last Aid and PalliLearn. Welcome to the team, Shyla!
To find out more about our members, or get involved with us, please check our website.
Published research
Health-care workers' understanding of and barriers to palliative care services to Aboriginal children with cancer
To identify barriers in the understanding and provision of optimal palliative care to Aboriginal children with cancer by health-care staff, with the aim to....Read More
"Holding back my own emotions': Evaluation of an online education module in pediatric end-of-life care
There are enormous challenges to clinical practice when providing pediatric end-of-life care, such as decision-making....Read More
Persisting breathlessness and activities reduced or ceased: a population study in older men
This study aimed to evaluate the impact of breathlessness on function in terms of activities that have been reduced or ceased (‘compromised’) in older men....Read More
Steps towards equitable care: creating webpages to highlight diversity for Australia's aged care and end of life care workforce
The impact of Australia's diverse population on the aged care sector has been acknowledged, with the Royal Commission into Aged Care Quality and Safety findings.....Read More
Events
RePaDD Seminar Series
The RePaDD lunchtime seminars, held fortnightly on Tuesdays from 12.30-1.30pm, is a free series open to all, focussed research implications for palliative care, death and dying across the community, and health and social systems. You can catch up on past seminars here.
Upcoming Seminars:
7 June 2022: Grief has no expiry date - mixing poetry and health economics to explore the effects of grief on older adults' health, wellbeing and healthcare use
Dr Katrin Gerber (@DrKatrinGerber) and Dr Lidia Engel (@LidiaEngel)
21 June 2022: Sleep, Palliative Care and Research: Why bother, they are dying!
Dr Peter Allcroft
5 July 2022: NDIS Participants with psychosocial disabilities: Investigating their formal supports following a life-limiting diagnosis
PhD Student Kathy Boschen (@kathy_boschen)
You can register for the series at Eventbrite. For further information on this series, email us at repadd@flinders.edu.au.
Want to contribute to the RePaDD Review?
Please submit your story or feedback to repadd@flinders.edu.au
