We wish you a Merry Christmas and some time off to enjoy our beautiful State.
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Edition 47, 2021
Hi Friend,
Our last Brainwaves edition prompted some welcome constructive feedback following my thoughts of changing the word Epilepsy Tasmania uses to describe a 'carer'.
Thank you to the interstate Neuropsychologist who took the time to say they agree that the carer title implies helplessness and may negate the intermittent aspect of the relationship when the person with epilepsy requires no assistance. This caring relationship can also range from being equal in role to only being called on to supply occasional support if needed.
Suggestions for a new description so far include:
- 'assisting companion'
- 'partner in management'
- 'concerned co-resident'
- 'concerned family'
- 'epilepsy support person'
- 'caregiver'
What word do you feel best describes someone who provides care and support to someone living with epilepsy? Please let me know.
As we enter this holiday season, please remember that many people are still feeling the impacts of the last two years, so staying in touch and checking up on those around us can help lessen any sense of isolation being felt.
See you next year,
Wendy Groot, CEO Epilepsy Tasmania.
AGM - 101 of what you missed
The Board made the decision to change Epilepsy Tasmania's Constitution and Governance Structure. In day to day reality, these changes will not affect our service delivery in any way but will strengthen the organisation.
FEEDBACK FROM OUR WEBINAR
During October's Worksafe Month, Epilepsy Tasmania was pleased to host its first live webinar in conjunction with Worksafe Tasmania.
We presented a one-hour discussion with slides, videos and personal stories to explain what epilepsy is, how it affects people and in particular how employers can be supportive.
Feedback from over 21 participants was very positive about what they learned and how our information was presented, so we are encouraged and confident to host further webinars down the track.
Thank you to WorkSafe Tasmania for the opportunity and support.
Telehealth and Virtual Care in the Community
Telehealth Tasmania’s private and secure virtual care program enables patients to receive quality care in their own home or local health centre via virtual (video) link, improving access to specialist healthcare and reducing the need to travel for specialist advice.
Peer Support Pilot Project
As part of the Epilepsy Smart Australia Pilot Program, we are seeking your views to design a national peer support program for people living with epilepsy and their support networks.
We are seeking your input to help us to get it right!
To complete the survey, click HERE
For more information: livingwell@epilepsyqueensland.com.au
Thank you in advance for contributing to this exciting project!
A Very Smart School
Congratulations to Campbelltown School who have completed their fourth consecutive year of Epilepsy Smart School training and are much better equipped to provide epilepsy support and care to their students who have epilepsy.
Christmas Hours
Epilepsy Tasmania will close over the Christmas and New Year period from 3 pm on Thursday 23 December until we reopen at 9 am on Monday 10 January. If you require support over this period:
- Call the National Epilepsy Support Services line - 1300 761 487
- Call Emergency Services of Police, Fire, Ambulance - 000
- Go to your nearest hospital emergency department
- Call the Mental Health Triage Helpline - 1800 332 388
- Call LifeLine - 13 11 14
“ Not all storms come to disrupt your life, some come to clear your path."
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Epilepsy Tasmania is a not-for-profit community organisation improving the quality of life of Tasmanians with epilepsy, and those around them, through education, coordination and support.
