Brainwaves Ed 79, 2026

Dear Friends

As 30 June approaches, many people choose to make a tax-deductible donation to support causes they care about. If you are in a position to do so, a gift to Epilepsy Tasmania will help us continue providing practical support, trusted information, education and advocacy across our state.

No matter the size, every contribution helps create lasting impact for people living with epilepsy and those who support them.

Most importantly, thank you for being part of our community. Your support, encouragement and belief in our work mean more than words can express.

Together, we are building a Tasmania where people living with epilepsy are understood, supported and empowered to live their best lives.

Warm regards, 

Paul Quilliam CEO

Senate Inquiry into Epilepsy - Submissions

The Australian Senate Inquiry into Epilepsy in Australia has provided a significant national platform for people living with epilepsy, their families, carers, clinicians, researchers, service providers, and advocacy organisations to share their experiences and recommendations for change.

The Inquiry has received over 200 submissions, reflecting the strong engagement of the epilepsy community and the importance of addressing the challenges faced by Australians affected by epilepsy.

We extend our sincere thanks to everyone who took the time to prepare and submit a submission, share their personal experiences, provide professional insights, or encourage others to participate in the process. Every contribution has helped build a stronger, more comprehensive picture of the realities of living with and supporting people with epilepsy in Australia.

Together, these submissions highlight the need for improved diagnosis and treatment pathways, greater access to support services, increased community awareness, enhanced research investment, and more equitable care across the country. The breadth and depth of engagement demonstrate the community’s collective commitment to driving meaningful change and ensuring that the voices of those affected by epilepsy are heard and considered in future policy and service development.

A final report will be presented to Parliament in September 2026 and we'll keep you updated.

The theme for this year's International Day of Play is Protect Play, Protect Childhood

Come and join the L'ton Epilepsy Tas team, Playgroup Tas, Early Years Partnerships and other organisations who will be joining in this community event to support all children.  Epilepsy Tasmania will have some fun activities for your little one/s.

Play has a special way of bringing people together and creating joyful moments for all to share, so join us for a welcoming morning filled with creativity, connection, and the simple joy of play, at 50 Glen Dhu St, South Launceston.

Let's continue to build partnerships, community and epilepsy awareness together.

Leave a Lasting Legacy with Epilepsy Tasmania

Would you like to support Epilepsy Tasmania through a gift in your Will?
You can now write your Will online from the comfort of your home in just 15 minutes—for as little as $159.

We’ve partnered with Willed, an Australian organisation that makes end-of-life planning simple, affordable, and accessible. Their experienced team of lawyers, paralegals, and funeral consultants are here to support you every step of the way—from writing your Will, to managing probate and funeral arrangements.

By leaving a gift to Epilepsy Tasmania, you’re helping ensure we can continue supporting Tasmanians living with epilepsy for generations to come.

Start your Will today at www.willed.com.au/epilepsytasmania

Thank you for leaving a legacy of care, compassion, and hope. 

Your feedback is important to us and could win you the Prize Package below.

Download the Epilepsy First Aid Poster for Your Workplace

Place it in prominent positions around your workplace for both staff and customers.

Epilepsy Tasmania is a not-for-profit community organisation improving the quality of life of Tasmanians with epilepsy, and those around them, through education, coordination and support.

"Every dead end is just a good place to turn around. One small, positive thought in the morning can shift your perspective and change the trajectory of your entire day."