Celebration and Gratitude
No images? Click here
Edition 81, 2026
Hi Friends,
It has been an important time for the epilepsy community, and there is much to celebrate, yet much still to do.
Our Walk for Epilepsy 2026 – Move for the Moments campaign is bringing people across Tasmania together throughout October. Whether you are walking, running, riding or simply moving your way, every person taking part is helping raise awareness, create connection and support people living with epilepsy. Every moment matters, and we are incredibly grateful to everyone who is getting involved.
The Challenge begins on 1 October - that's only 1 day away
Move for the Moments 💜 - moments of resilience, hope, connection and progress that shape every epilepsy journey.
Registrations are open – so don't wait!
💜 Register 💜 Create your fundraising page 💜 Download resources and/or grab a tshirt or hoodie 💜Get your family, friends or colleagues involved 💜 Start moving throughout October 💜 Raise awareness and funds for epilepsy
Every step creates momentum. Every moment creates impact.
Let’s get Tasmania moving for the moments that matter. 💜
💜 Dine, Donate & Make a Difference!
We’re thrilled to be featured again on a Grill’d Local Matters jar at Grill’d North Hobart from tomorrow 1 October!
It’s easy! Order at Grill’d restaurant inhouse or online and you’ll receive a token to vote for the cause closest to your heart. Pop your token in the Epilepsy Tasmania jar and help support Tasmanians living with epilepsy.
🍔 Order your Grill’d favourite.
🟣 Drop your token in our jar.
💜 Help make a difference!
Thank you to Grill’d North Hobart for continuing to raise awareness and supporting Epilepsy Tasmania!
We have also reached an important milestone in the Senate Inquiry into Epilepsy in Australia, with the final report and 27 recommendations now tabled. The report provides a national roadmap addressing areas including diagnosis and care, specialist services, workforce, research, NDIS access, regional and rural care, and stronger connections to community support.
For Epilepsy Tasmania, this is a significant achievement after more than two years of advocacy. But the work does not stop with the recommendations. The next step is turning them into meaningful change for people living with epilepsy and their families.
A Stronger Pathway from Diagnosis to Support
One recommendation has particular significance for Epilepsy Tasmania and the people we support.
Recommendation 17 calls for a national referral model connecting people diagnosed with epilepsy with epilepsy community organisations.
It recognises the importance of making that connection stronger and ensuring people don’t have to navigate epilepsy alone.
For many people, an epilepsy diagnosis can leave them wondering “What happens now?”
Medical treatment is essential, but people and families may also need:
- practical information and epilepsy education
- seizure management support
- help navigating services
- connection with others who understand epilepsy
- support to adjust to life with epilepsy.
For Epilepsy Tasmania, it is also an important recognition of the support we have been providing to Tasmanians for many years.
Community epilepsy organisations can help bridge the space between the consulting room and life at home, school, work and in the community.
Implementation will require cooperation between the Australian Government, state and territory governments, health services, clinicians, researchers, disability systems, community organisations and people with lived experience.
Thank you to everyone who has supported our work, shared their story, is taking part in the Walk or helping raise awareness. We particularly acknowledge former Tasmanian Senator Wendy Askew, whose willingness to listen, understand the issues and advocate within Parliament was instrumental in helping bring the Inquiry forward.
Together, we are creating a stronger voice for epilepsy and a more connected future for our community. 💜
Still need training in 2026? Planning ahead for 2027?
Our Education and Training team provides tailored training for schools, workplaces, disability services, families and community organisations, helping people feel confident knowing what to do when someone has a seizure.
Don’t leave it until next year – get in touch and secure your training now.
education@epilepsytasmania.org.au
Liz: 0456 231 632 | Sarah: 0422 818 490
Thank you to those people who have already partnered with Entertainment by purchasing a membership in support of our fundraising goals. We know you are excited by the bargains you can now score.
Warmly,
Paul Quilliam
CEO, Epilepsy Tasmania
Thought for the month
“If I cannot do great things, I can do SMALL things in a great way." Martin Luther King Jr.
Download the Epilepsy First Aid Poster for Your Workplace
Place it in prominent positions around your workplace for both staff and customers.
Epilepsy Tasmania is a not-for-profit community organisation improving the quality of life of Tasmanians with epilepsy, and those around them, through education, coordination and support.
