Edition 72, 2025

Hi Friends,

 A Message from the CEO 

🌿 Walking Together — Walk for Epilepsy 2025

As the days grow warmer and spring edges closer, we’re excited to welcome the return of Walk for Epilepsy 2025. From 1–25 October, Tasmanians will come together with people across Australia to take part in something that truly changes lives.

This event isn’t just about distance or fundraising totals — it’s about community, courage, and connection. Every participant helps raise awareness of epilepsy, and every dollar raised supports families right here in Tasmania.

For our returning walkers

Many of you joined us last year, and we’re thrilled to see your names appearing again in 2025. Your commitment shows how powerful it is when people keep showing up to champion the epilepsy community.

For those who joined us before but haven’t yet registered

We remember the energy and generosity you brought last year. If you’ve been thinking about coming back, we’d love to welcome you again — your involvement makes this event feel like family.

For our first timers

A special welcome to those joining for the very first time. Whether you’re participating for yourself, in honour of a loved one, or simply in support of the cause, your decision to get involved is a generous and powerful act. You’re now part of a growing community helping Tasmania better understand and support people living with epilepsy.

For everyone in our community

Walking for epilepsy sends a strong message: that epilepsy matters, that Tasmanians living with it matter, and that no one should ever feel alone on their journey. By taking part, you’re not only raising funds — you’re sparking awareness, building understanding, and inspiring hope.

🌟 Will you join us this October?
Together, we can create a brighter, more supportive Tasmania for everyone affected by epilepsy.

👉 Register today and be part of something extraordinary

Warmly, 

Paul Quilliam
CEO, Epilepsy Tasmania

Watch Neil Balme, former AFL player who shared his story last week on The Front Bar.

There are many resources available for you as you promote Walk for Epilepsy.  Please don't hesitate to contact us if you need support or more information as you promote and raise awareness for those impacted.

Are you wanting to find out more about epilepsy/seizures and learn how to help someone having a seizure?

Providing the right help at the right time is crucial

Our Education and Training team prepare individuals to help someone with Epilepsy. Whether you are a teacher, coworker, disability worker or family member we have training to support your situation and needs.

• What is a seizure, what is epilepsy?
• Types of seizures
• Causes and triggers
• Seizure first aid
• When to call an ambulance
• Administering Emergency Medication
• Tailored assistance to your setting
• Plans for you to help the person with epilepsy.

Want to know more?

Contact us: education@epilepsytasmania.org.au 

Liz 0456 231 632 | Sarah 0422 818 490

From our Social Worker

As a social worker with Epilepsy Tasmania, I am here to assist you and your family in managing the challenges associated with epilepsy. Whether you require guidance navigating services, strategies to manage stress, or support in accessing the information and resources you need at this time, please know you are not alone. Together, we can identify the most appropriate tools to help you feel informed, supported, and empowered.

If you would like to speak with me, please phone me on 0439 439 041

Shirl – Social Worker, Education & Training 

From our Registered Nurses

Midazolam and Seizure Control

When a seizure doesn’t stop on its own, it can be frightening and stressful – both for the person experiencing it and for those around them. In these moments, having something that works quickly and safely can make all the difference. That’s where Midazolam (Zyamis) comes in. It’s a fast-acting medicine that can be given outside of a hospital setting, often as a nasal spray or liquid inside the cheek.

The main benefits:

·        Fast relief – it helps calm seizure activity quickly.

·        Simple to give – caregivers, teachers, or family members can be trained to use it.

·        Reduces risk – stopping a seizure early can prevent it from becoming prolonged or more complicated.

·        Avoids hospital trips – timely use of Midazolam often means fewer ambulance call-outs and emergency visits.

Midazolam works by briefly calming down the overactive brain activity that causes seizures, and it wears off quickly so that recovery can begin safely.

It isn’t for everyone, and it isn’t for everyday seizure control. Instead, it’s used for people who have longer seizures, clusters of seizures or simply need a reliable “back-up plan.” Having Midazolam on hand can bring real peace of mind, knowing there’s a safe and effective option if a seizure goes on too long.

Epilepsy Tasmania provides training and support for caregivers who may need to give Midazolam (Zyamis). Please feel welcome to call our nurses, Kate and Jill,  if you’d like to talk this through or ask any questions.

Jill – Outreach Education & Training Registered Nurse 0422 101 272

Kate - Outreach Education & Training Registered Nurse 0407 994 205

Leave a Lasting Legacy with Epilepsy Tasmania

Would you like to support Epilepsy Tasmania through a gift in your Will?
You can now write your Will online from the comfort of your home in just 15 minutes—for as little as $159.

We’ve partnered with Willed, an Australian organisation that makes end-of-life planning simple, affordable, and accessible. Their experienced team of lawyers, paralegals, and funeral consultants are here to support you every step of the way—from writing your Will, to managing probate and funeral arrangements.

By leaving a gift to Epilepsy Tasmania, you’re helping ensure we can continue supporting Tasmanians living with epilepsy for generations to come.

Start your Will today at www.willed.com.au/epilepsytasmania

Thank you for leaving a legacy of care, compassion, and hope. 

Peer Support

Epilepsy Tasmania Feedback Survey

Epilepsy Tasmania is a not-for-profit community organisation improving the quality of life of Tasmanians with epilepsy, and those around them, through education, coordination and support.

This survey is for anyone who has recently interacted or received services from Epilepsy Tasmania. This short survey asks a few questions about your experience and satisfaction with Epilepsy Tasmania services.

Your answers will remain anonymous. https://www.surveymonkey.com/r/5ZB2BH2

“If you cannot do great things, do small things in a great way.” —Napoleon Hill