GenV continues for Victorian families
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Spring Edition 2023
Message from our Scientific Director
At GenV, we believe that it is possible to find solutions that help children and adults. Maybe this is why you joined GenV, too.
GenV isn’t one project with one question. It’s a place for many questions. It’s a platform designed to find many solutions at the same time.
And a platform must be made of something. GenV is made of families - your family, families like yours, and families that reflect all of Victoria. Without you, there is no GenV.
That’s why this week is so special. On 3rd October 2023, the last GenV baby was born. Now, more than 45,000 children and 69,000 parents are part of GenV. Soon, we are leaving Victoria’s 58 birthing hospitals. We thank every one of them.
But the GenV door is always open. Children born Oct 2021-Oct 2023 can join at any age. Services across Victoria are helping to connect families with us. Families can contact us directly too.
We’re excited about the questions coming to GenV already. Check out some highlights below and on the MCRI website!
With best wishes,
Professor Melissa Wake
GenV Scientific Director
What’s next for you and your family?
We plan to stay in touch with you as your child grows. Our newsletters and website share news about GenV’s progress. If your contact details change, please let us know using the link below.
GenV reaches out from time to time to ask how you and your child are going. This happens through your GenV and Me short surveys. Thank you for every survey you fill out. You are helping to create the GenV dataset that researchers will use for decades to come.
The rest of GenV mostly happens in the background. This means it takes very little of your time. Learn more on the GenV Website.
Latest news on our Participant Advisory Panel
Over 700 parents and guardians are part of the GenV Participant Advisory Panel!
Members share their experience of GenV so far. They tell us their ideas and how they want to stay informed.
We also ask about important topics like data access and genomics testing.
Want to help shape the future of GenV? Being part of the Panel is easy.
Celebrating birthday's across Victoria
One of the ways we stay in touch with you and your family is through birthday e-Cards.
Every month, we wish over 3,000 GenV children a very happy birthday.
We are so happy when families share a peek of their child’s special day with us - just like GenV baby Henry who celebrated his 1st birthday this year.
GenV Spotlight: Why are registries important for research?
GenV works with many types of research studies. Registries are a collection of information about people who share something in common. For example, a health condition or a specific experience. Researchers bring information together so they can learn more about a condition. This may lead to faster and better solutions. Here are a few examples of registries working with GenV…
Keep in touch with GenV
Have questions or feedback? Changed your contact details? Please reach out to the GenV team at:
Phone: 1800 GEN VVV (1800 436 888)
Email: genv@mcri.edu.au
Website: genv.org.au
Keep up with GenV via our social media:
GenV is led by the Murdoch Children’s Research Institute (MCRI), supported by The Royal Children’s Hospital and The University of Melbourne, and funded by the Paul Ramsay Foundation, the Victorian Government, The Royal Children’s Hospital Foundation, the National Health and Medical Research Council and the Medical Research Future Fund.
