No images? Click here October 2021: CP-Achieve BulletinWelcome to the October edition of the CP-Achieve newsletter. This month we welcome a new PhD student, Jacinta Pennacchia. Her topic will address a significant gap in our knowledge and practice, the mental health of young people with cerebral palsy. Her supervisors are Christine Imms, Dave Coghill, Robbie Eres and Mats Granlund (from Sweden). She will be working closely with our other mental health projects building our work in this important area. I am looking forward to Robbie and Iain’s webinars next week. More webinars are being planned so let us know if there are specific topics you would like covered, or potential speakers that you feel would provide interesting and informative material. I also commend the 2022 Photo Exhibition to you. We had some wonderful photographs last time, many of which have been used in our presentations and to further our work. Earlier this week, we reached a significant milestone. Our first survey of adolescents and young adults was dispatched through the Victorian Cerebral Palsy Register and social media. This 'Understanding Survey' is one of CP-Achieve’s key projects and we are hoping to get as many people as possible to respond: https://redcap.mcri.edu.au/surveys (ACCESS CODE: RPLP4EW84). In designing the survey, we tried to make it as short and accessible as we could. We do hope however that participants might be willing to take part in future questionnaires, as there is so much more information that we would like to have to help us work towards the best outcomes for people with cerebral palsy and their families. Please keep in touch at any time about the work of CP-Achieve. Let us know of any opportunities to improve the lives of people with cerebral palsy and their families. Dinah Reddihough, CP-Achieve Principal Investigator Welcome, Jacinta Pennacchia!Jacinta Pennacchia is a speech pathologist completing her PhD at the University of Melbourne. Her clinical experience is in a specialist school setting for children and adolescents with disabilities, supporting students to have a means of autonomous communication and self-advocacy skills. Jacinta is currently involved in research focusing on the mental health of young people with cerebral palsy. She looks forward to bringing her clinical knowledge on complex communication needs and AAC into her research around mental health assessment in this population. CP-Achieve Webinar SeriesOctober 25th 5:00pm-5:30pm This 30-minute webinar will provide information about the who, what, when, where, why and how’s of addressing loneliness in young people with CP, and the opportunities and challenges in Paralympic sport Dr Robert (Robbie) Eres expertise largely surrounds the social determinants of health and how social factors, including loneliness and social exclusion, exacerbate mental health symptoms (e.g., social anxiety, depression, stress) and contribute to poor physical health outcomes. Dr Eres is experienced in the development and evaluation of digital applications targeting loneliness and mental health variables in vulnerable groups (e.g., young people with psychosis, social anxiety disorders, those identifying as LGBTQIA+). Prior to his current research trajectory, Dr Eres explored the neurobiological correlates related to empathy and moral judgment and decision making. He used neuroimaging techniques to differential functional and structural brain regions associated with empathizing with different group memberships. Dr Iain Dutia is research officer at The University of Queensland, School of Human Movement and Nutrition Sciences. He is also a postdoctoral research fellow at CP-Achieve. His main interests are in enhancing physical and mental health in adolescents and young adults with disabilities, and his research to date has focused on increasing participation and enhancing performance in Para sport for athletes with high support needs. Iain also works clinically as a physiotherapist and has a background in sports injury prevention and rehabilitation. 2022 Photo Exhibition Submission Now Open! The AusACPDM and CP-Achieve are excited to announce the launch of our second Lived Experience Photo Exhibition. We’re seeking people of all ages with lived experience of childhood-onset disability to help celebrate our diverse community by submitting quality, original photographs within the themes of Family, Fun, Fitness or Friends. Photos that meet the exhibition guidelines will be showcased on our website where the community will be able to cast a vote for their favourite. One photo in each category will be selected as a winner, and the entrant will be awarded a prize of $100AUD. Submitted images may be used to complement future online and published work by the AusACPDM and CP-Achieve. To submit your photos click the button below. During the online submission process, entrants will be asked to agree to the exhibition terms and conditions. There is a maximum of three entries per person. Entries close midnight 11.59pm 21 December 2021. The exhibition and voting will open on 31 January 2022 with winners to be announced on 4 March 2022. World Cerebral Palsy Day World CP Day may be over, but that doesn't mean the mission for people around the world to come together to celebrate and support those living with CP, embrace diversity and to help create a more accessible future for everyone needs to end! Join the movement of World Cerebral Palsy Day to help create awareness and action around cerebral palsy, because every person living with cerebral palsy is a reason to strive for change. Demystifying Loss and Grief Workshop presented by Very Special Kids Are you looking for an opportunity to understand grief and loss? Have you ever wanted to know more about what to say and what to do when someone is experiencing grief and loss? You might have heard of the five stages of grief, but would you like to understand the latest theories about grief and loss? Lucinda Fraser is a Family Support Practitioner at Very Special Kids, covering the Loddon Mallee region. She has previously worked in the areas of trauma, grief, loss, suicide prevention and postvention across paediatric and adult hospitals, and community settings. As a social worker, she is drawn to areas such as palliative care that are often stigmatised, and enjoys the work that comes with bearing witness to vulnerability and allowing people to be seen and heard, particularly as they face their own mortality or are grieving. Parks Victoria's Disability Action Plan Parks are for everybody. To make sure our parks are inclusive and welcoming for all Victorians, Parks Victoria develops a Disability Action Plan every four years. Parks Victoria have been working closely with partner organisations to support people of all-abilities to enjoy parks. They want to continue to build on the work achieved to date, by listening to community and striving to make parks more accessible through the new Disability Action Plan. Having your say matters. They want to hear from many Victorians to make sure the new Disability Action Plan captures your view and makes parks more inclusive and accessible. How to participateParks Victoria wants to hear from you to help shape the new Disability Action Plan. Have a say today by:
have a question?We’re happy to help with any questions you might have. Check out more information on our socials linked below! |