Future of telehealth | Lung cancer community walk
Breathe Deep TOGETHER
Saturday, November 5
|
|
Join us to kick off Lung Cancer Awareness month! This year’s Breathe Deep TOGETHER event will be held in person and virtually across the country on Saturday, November 5th, and is a day of community, hope, celebration, and remembrance. In-person events include New York City, Boston, Washington, DC, Chicago and Kingston, PA. If you aren’t near one of these locations, walk with family and friends in your own neighborhood while tuning in to the broadcast to be part of the nationwide lung cancer community. Everyone who registers by September 30 gets a free Breathe Deep TOGETHER event kit to use when walking. |
Small Cell Lung Cancer Patient Gateway Launched
|
LUNGevity’s new Small-Cell Lung Cancer Gateway provides patients and caregivers with a central hub for information, scientific news, and webinars specific to them. The Patient Gateway also helps connect patients and caregivers with others impacted by small-cell lung cancer. |
|
This is LUNGevity’s sixth Patient Gateway. Others include:
- KRAS-positive lung cancer
- Non-small cell lung cancer
- ALK-positive lung cancer
- EGFR-positive lung cancer
- Lung cancers with rare mutations and fusions
Find the Gateway for your specific type of lung cancer and check in often for new expert blogs, information, and videos.
Advocacy Focus – Improving Telehealth
If some or all of your medical care moved online during the COVID-19 pandemic, you understand the potential benefits to patients. Telehealth, or telemedicine, can reduce costs, stress, and time away from work and family.
However, telehealth has only been accepted temporarily by insurers and state licensing requirements because of the declared public health emergency. These services may be in jeopardy for many patients.
Visit the LUNGevity Action Network to learn more about the current telehealth landscape and get updates on how you can contact your policymakers about important telehealth legislation.
EGFR-Positive Lung Cancer Talk with Q&A
Thursday, September 22 at 3:00 PM ET
Are you newly diagnosed with EGFR-positive lung cancer? Register today to hear lung cancer expert Dr. Zosia Piotrowska, from Massachusetts General Hospital Cancer Center, share key information every newly diagnosed EGFR-positive lung cancer patient needs to know. Dr. Piotrowska is a researcher and thoracic oncologist who will be available during this Facebook Live to answer your questions in the comment section.
New Expert Video: Biomarker Testing Basics & KRAS-Positive Lung Cancer
Lung cancer survivor Rosemary Conway and Dr. Hatim Husain, an oncologist at University of California, San Diego, joined LUNGevity's Dr. Amy Moore to discuss what biomarker testing is, how it impacts treatment, as well as recent progress in KRAS-positive lung cancer. If you missed the live event, you can still view it on the KRAS Patient Gateway.
Simplifying Clinical Trials for Patients
LUNGevity, along with a group of oncology thought leaders, created a framework to make it easier for patients and clinicians to find and compare clinical trials.
This framework, published in JAMA Oncology and sent to the US Food and Drug Administration (FDA) as a recommendation, helps simplify eligibility criteria for clinical trials. It touches on 13 different eligibility categories in the hope of standardizing clinical trial information.
“LUNGevity’s Scientific and Clinical Research Roundtables aim to make clinical trials more patient-centric and accessible, so that all patients have an opportunity to engage with and benefit from clinical trials,” said Upal Basu Roy, PhD, MPH, Executive Director of LUNGevity Research and author of the paper. “Through previous publications, the Foundation has advocated for expanding eligibility criteria and removing restrictive eligibility in lung cancer clinical trials to increase the number of patients able to access lifesaving therapies."
The US FDA is expected to release an official statement on simplifying clinical trial eligibility criteria later this year.
