Free Online Courses and White Papers to Improve Support for Black and Hispanic Parents of Children
with Down Syndrome

Free Resources for Advocacy Organizations and Medical Professionals to Improve Support for Black and Hispanic Parents

Between 2022-2024, we held community conversations with Down syndrome advocacy leaders and Black and Hispanic parents of children with Down syndrome to get their input on helpful practices for medical providers and advocacy organizations to use when supporting new and expectant parents and sharing research-based information. Then, we shared the parent recommendations with health equity experts and medical providers to identify strategies, platforms, and formats to better meet the needs of Black and Hispanic new and expectant parents of children with DS.

Now we have free online modules available for medical and genetics professionals and Down syndrome organization leaders to help improve their practice and capacity to support Black and Hispanic new and expectant parents. We also have white papers summarizing all the findings.

This online module can be completed at your own pace and includes the following features:

• online lessons
• instructional videos
• video podcasts featuring the voices of parents
• reflection activities
• links to many helpful resources

Read a summary about the project: Patient Centered Outcomes Research Project

“These resources were funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EADI-24186). The statements presented in these resources are solely the responsibility of the authors and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute® (PCORI®), its Board of Governors, or Methodology Committee